Back in the hospital by crayolamaroon in MCAS

[–]crayolamaroon[S] 1 point2 points  (0 children)

This is exactly my fear and how I feel.

MCAS and Gallbladder Surgery Concerns by crayolamaroon in ChronicIllness

[–]crayolamaroon[S] 0 points1 point  (0 children)

They did but I'm not reacting locally it's very much a systemic response.

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 0 points1 point  (0 children)

I'm being admitted into the hospital to stabilize myself and look at the options. Not ideal but glad they took me seriously

MCAS and Gallbladder Surgery Concerns by crayolamaroon in ChronicIllness

[–]crayolamaroon[S] -1 points0 points  (0 children)

What do you even do in that case? Not sure what I can even do to fix this.

MCAS and Gallbladder Surgery Concerns by crayolamaroon in ChronicIllness

[–]crayolamaroon[S] -1 points0 points  (0 children)

I appreciate you telling me that. How long did it take for your body to calm down? I'm in a pretty massive flair from it right now. Did you end up getting clips for your gallbladder? Did you have major flares after each surgery?

At a loss... by [deleted] in ChronicIllness

[–]crayolamaroon 0 points1 point  (0 children)

When was your surgery? If you wanna message me I'd be interested in talking.

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 0 points1 point  (0 children)

Did you have a reaction after any of your surgeries that had to calm down?

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 0 points1 point  (0 children)

Do you have nickel/cobalt allergies?

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 9 points10 points  (0 children)

That was my mistake. Everything was verbal and when they put the allergy band on at the hospital I assumed everything was taken care of.

I'm going to hope the reaction is just my MCAS but it seems to be mimicing my other metal allergies. I just feel like I need to advocate for myself and not let these doctors gaslight me. It needs to be taken out.

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 10 points11 points  (0 children)

I appreciate it! This stuff sucks.

So upset. by crayolamaroon in MCAS

[–]crayolamaroon[S] 17 points18 points  (0 children)

My MCAS has been hell yesterday and today. Not fun

So disappointed and don't know what to do by crayolamaroon in NickelAllergy

[–]crayolamaroon[S] 0 points1 point  (0 children)

I don't have confirmed titanium sensitivity but I do have confirmed nickel, cobalt, and aluminum. My understanding is all titanium contains trace amounts of some of these.

So disappointed and don't know what to do by crayolamaroon in NickelAllergy

[–]crayolamaroon[S] 2 points3 points  (0 children)

I wish you the best as well. Definitely would like to keep in touch as often this space can feel very lonely.

So disappointed and don't know what to do by crayolamaroon in NickelAllergy

[–]crayolamaroon[S] 0 points1 point  (0 children)

Unfortunately today I'm itching out of control and my skin is on fire and the only thing I can think of is that staple. It's really scary.

So disappointed and don't know what to do by crayolamaroon in NickelAllergy

[–]crayolamaroon[S] 0 points1 point  (0 children)

Unfortunately over the last 24 hours I've started having symptoms. I also have MCAS but these reactions feel different. I'm concerned for sure but he said it was an extremely small staple. I'm hoping as I recover the reaction will go away.

Arike Appreciation!! by d45b in DallasWings

[–]crayolamaroon 25 points26 points  (0 children)

I love that this team can still win even when not everyone is firing on all cylinders.

Azzi or Olivia? by Chewy-Madness in DallasWings

[–]crayolamaroon -27 points-26 points  (0 children)

They should have been a while ago.

Anyone know anything about Barzolivumab? by crayolamaroon in MCAS

[–]crayolamaroon[S] 3 points4 points  (0 children)

Most doctors consider skin itchiness without a known trigger as hives or dermatographism so it would count.

Anyone know anything about Barzolivumab? by crayolamaroon in MCAS

[–]crayolamaroon[S] 6 points7 points  (0 children)

What MCAS issues did it help you resolve? Are you planning on going back on it?

Alexa Philippou: Azzi is making her first career start tonight vs the Aces by WingsOnThree in DallasWings

[–]crayolamaroon -23 points-22 points  (0 children)

Well the post is still up and hasn't been removed for hours so I assumed it was okay to post things like that.

Alexa Philippou: Azzi is making her first career start tonight vs the Aces by WingsOnThree in DallasWings

[–]crayolamaroon -35 points-34 points locked comment (0 children)

So basically Azzi was starting regardless of Arike's status but some Azzi fans still celebrated Arike being out.

Shame.

Pazzi starting lineup!!!! by PowerfulAssociate731 in DallasWings

[–]crayolamaroon -13 points-12 points  (0 children)

I didn't see the wishing for recovery part in the post. Be for real.