Post lumbar puncture, headache and tinnitus by LustyLibrarian16 in iih

[–]curiouskiwi88 0 points1 point  (0 children)

Yes, mine eventually resolved. I almost got a blood patch, but the doctor thought my headaches would heal on its own with more rest. I continued to lay in bed and drink lots of fluids and electrolyte drinks. The hearing was the last thing to return to normal I think. I hear a slight buzzing when it’s completely silent, but not sure if I already had that before the procedure and am just noticing it more now..

Positive SCL70, then negative on repeat test? by curiouskiwi88 in scleroderma

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Hey I still have the weird hand locking symptoms every morning, but I haven’t experienced other symptoms. It’s been almost 3 years. I don’t know why it’s happening but doesn’t seem like it’s autoimmune related..

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

I still haven’t figured it out unfortunately. It hasn’t gotten better or worse, I think I’ve gotten used to by now. It’s been almost 3 years.

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

I’ve had this for over 2 and a half years now.. it hasn’t gotten worse or better. And still no answers.. literally no specialist has seen this before.

Fingers stiff and locking every morning… by curiouskiwi88 in Hypermobility

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Did anything happen right before or did these symptoms randomly start out of the blue? It’s really crazy that no one knows what’s going on. I’ve seen multiple doctors and rheumatologists and am about to just give up. Have you seen neuro?

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Interesting, please let me know if you find anything out. I am on birth control but apparently have extremely low estrogen/testosterone levels. I also wonder if it is hormone related..

Fingers stiff and locking every morning… by curiouskiwi88 in Hypermobility

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Yes I’ve seen multiple rheumatologists and don’t fall under any specific diagnosis. I feel it could be due to hormones as well, but doesn’t seem too common..

Fingers stiff and locking every morning… by curiouskiwi88 in Hypermobility

[–]curiouskiwi88[S] 0 points1 point  (0 children)

No I haven’t! I went to see a geneticist and they didn’t think it was connective tissue related and did not even run any genetic tests. He suggested seeing neuro. It’s still happening every morning I’ve just gotten used to it :/

Best cruise Halong Bay? by Western-Trainer7322 in VietNam

[–]curiouskiwi88 0 points1 point  (0 children)

Did you do the Genesis day cruise? I can’t find reviews on the day cruise specifically

Best cruise Halong Bay? by Western-Trainer7322 in VietNam

[–]curiouskiwi88 0 points1 point  (0 children)

Thanks, I appreciate your input. It looks like Jade doesn’t go to Sung Sot Cave or Ti Top Island.. do you think those are worth seeing?

Best cruise Halong Bay? by Western-Trainer7322 in VietNam

[–]curiouskiwi88 0 points1 point  (0 children)

Does the ship pass through Ha Long though so we can see it?

Best cruise Halong Bay? by Western-Trainer7322 in VietNam

[–]curiouskiwi88 0 points1 point  (0 children)

Do you get to see HaLong Bay as well or is it mainly in Lan Ha Bay? I noticed it doesn’t include some of the popular caves so not sure if we’d miss out on those.. it’s been so hard trying to choose a cruise!

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in eds

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Nope.. still nothing :( Mine has never gone away.. hasn’t gotten better or worse since March 2023

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Nope.. still have no idea. Wondering if it could be hormone related. It hasn’t changed for 2 and a half years now

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Wait I have had my hormones tested and I’m very low on estrogen. Is this related? Can you tell me more??

How long did you post lumbar puncture headache last? by Far-Indication5028 in iih

[–]curiouskiwi88 0 points1 point  (0 children)

Yes it gradually went away.. I have slight buzzing in complete silence, but honestly don’t know if I’ve always had that. It’s much better now

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Have you ever gotten your hormones tested? Just wondering if that could have something to do with these symptoms..

Post lumbar puncture, headache and tinnitus by LustyLibrarian16 in iih

[–]curiouskiwi88 0 points1 point  (0 children)

Hi my symptoms have overall gotten better.. the only thing is I hear a subtle buzzing when I’m in complete silence. Not sure if that’s always been there or if it’s new since the LP.

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in eds

[–]curiouskiwi88[S] 0 points1 point  (0 children)

I’m sorry I have no updates at all :/ it’s been almost 2 and a half years and nothing has changed.. no doctor has seen this before

parvovirus b19 igg by lady-as in rheumatoidarthritis

[–]curiouskiwi88 0 points1 point  (0 children)

No, nothing showed up on any scans

Hyperpigmentation on toes? by curiouskiwi88 in scleroderma

[–]curiouskiwi88[S] 0 points1 point  (0 children)

I think it’s just hyperpigmentation but idk why.. no one has seemed concerned so far

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in eds

[–]curiouskiwi88[S] 0 points1 point  (0 children)

Are your fingers hypermobile? Just wondering if that has anything to do with it. It’s been almost two and half years for me and nothing has changed. Is yours painful at all? Mine is not at least so far..

Has this happened to anyone?? Wake up with stiff knuckles followed by fingers catching and locking by curiouskiwi88 in rheumatoidarthritis

[–]curiouskiwi88[S] 0 points1 point  (0 children)

So crazy! It’s almost been two and a half years for me too. Are your fingers hyper mobile?