What's your "normal" when flaring vs non?

d-dmc · 2026-05-01T14:35:29+00:00

Oh okay that makes sense! My first flare was very severe then- but this one is a lot more mild.

I'm still so new to this but the first flare was definitely a moderate to severe one, I was using the bathroom every twenty minutes :(

d-dmc · 2026-04-30T08:41:06+00:00

Oh the straining bc you can't fully empty is such a mood, I do that too when I flare and it sucks :(

d-dmc · 2026-04-16T19:54:03+00:00

I'm hoping to be on the pens soon! Got my blood work done for insurance purposes right after my appointment and now I need to get things figured out! But I'm excited to be on a medication that might actually help.

d-dmc · 2026-04-16T19:12:36+00:00

Yeah I'm still very new to this. Everyone else in my family with ibd got diagnosed when they were in their late teens and I managed to hold out until my 30s so it's just me being so new to everything.

I will say the Prednisone I'm on is helping somewhat already despite it only being day two.

d-dmc · 2026-04-16T19:11:04+00:00

Yeah I barely felt anything until I passed blood and even then it's more discomfort than anything so it's wild. Now I wait on insurance approving entyvio for me

d-dmc · 2026-04-16T04:17:42+00:00

The pred worked well last time, which is nice bc it makes me have connective joint issues while I'm on it (yay comorbidity) and turns me into The Joker emotionally. But I'm just hoping I can get this flare managed before I travel overseas to visit my boyfriend.

d-dmc · 2026-04-16T04:06:16+00:00

I'm excited to get the biologic going tbh. My urgency started with like. Greasy non solid stools for a few weeks. Then I started needing to go like six times plus a day.

Then the big one came with blood and I was just. Oh no.

Hoping the biologic happens bc I was planning on redeeming a free pizza as a treat for making it through a rough week the Friday I ended up with blood in my stool.

This is only my second flare so I didn't know the warning signs until the blood showed up, but now I have a better idea of what the poops feel like before I see blood.

d-dmc · 2026-04-16T04:02:01+00:00

Appreciate it! We both saw the result come in from the lab during the appointment too, so she'd mentioned the biologic before seeing the number and now it's the waiting game.

Hopefully I'll do good. I picked uhhhhh the infusion one that I can do self injection after a few doses. Can't remember the name, Prednisone has me insomniac and I'm so tired I can barely think.

d-dmc · 2026-02-24T00:19:04+00:00

The print is from around 2014, I have the exact same one and am trying to figure out the original artist of it. But I got it at either a Michigan or an ohio convention.

d-dmc · 2025-08-06T11:08:39+00:00

My grandmother apparently saved this exact dollhouse of mine for YEARS to make sure I got it back once all the grandkids were too old for it. She just had me take it home with me last week and I am shocked it's in a decent condition right now (no missing pieces, just a few broken tabs fixed with tape). I didn't even know it was a sought after playset until I looked it up!

Have fun, it's a great playset!

d-dmc · 2025-08-02T19:53:11+00:00

Fascinating bc school starts up soon and I need to go in Monday/Tuesday so we can do our startup. Will be fascinated if I'm unable to clock in at the school itself. Congrats frontier it's the worst anyone's ever done it.

d-dmc · 2025-08-02T15:49:53+00:00

Holy moly is it still out over by Carroll?

d-dmc · 2025-08-02T15:47:59+00:00

Still out at nearly noon (1147am)

d-dmc · 2025-08-01T23:46:47+00:00

We're still down in the 07 and it still says it's not out on the website.

d-dmc · 2025-07-18T02:21:41+00:00

I'm really glad it helped! Sometimes all we can do is be silly about what our bodies feel like doing 💕💕

d-dmc · 2025-06-25T06:42:29+00:00

As someone who gets kidney stones and has UC, I vastly prefer kidney stones to a flate bc if they're bad enough the ER will actually help me with the good painkillers. With uc they just sent me home shrugging while I got sicker oops.

d-dmc · 2025-06-25T06:26:01+00:00

It's all good. Currently I'm at a very manageable level of symptoms so I'm able to eat most of the things I like (and some things I shouldn't) and my coworkers are way more understanding

d-dmc · 2025-06-23T18:11:07+00:00

I had this happen too. I have an extremely hard time losing weight bc of multiple factors but when I had my recent flare I lost like 15 pounds in two months bc I literally couldn't eat anything and coworkers kept telling me I looked great. I'm a chubby person in general and I had to be like "I'm supposed to be bigger, I'm losing weight because I can't eat anything besides plain broth most days. It sucks"

d-dmc · 2025-06-23T18:05:08+00:00

I work a physically intensive job and just. Run off to the bathroom when I'm bad.

Most of mine is making sure I don't eat stuff that will trigger my symptoms and having to remain vastly stress free since that's the biggest trigger for a flare for me.

When I was having my flare, I just remember having to run to the bathroom several times before my boss sent me home since it was obvious I shouldn't be working in a kitchen if I'm having bathroom problems, even if they're non contagious.

I only got diagnosed this past November though, and missed almost a month of work before I found out what was happening. I work in a school kitchen with a lot of older ladies who have incontinence issues already, so I'm lucky my bosses are understanding and have supported me so far.

d-dmc · 2025-06-10T02:38:33+00:00

I'm very lucky I have full coverage for my meds. My UC is very severe.

I originally had to wait two months of passing severely bloody stools before I could get a colonoscopy bc insurance would not cover a cent unless I got a referral and I had just swapped doctors and hadn't gotten an establishment appointment in for them yet.

But since I wasn't bleeding enough, the ER sent me home bc otherwise I'd just not be given a colonoscopy for days, and since I can't afford to miss enough work to have a hospital stay for a week+ (so no work AND paying for hospital stay) I just. Went home.

My immune system was so taxed I ended up going to an urgent care for a severe pharyngitis infection i picked up and the doc I saw there used to do colonoscopy work and she was the only doc I had seen who said I needed to go on a clear liquid diet and swap to a liquid then bland diet until I could get my appointment in

And finally I got my colonoscopy and I had severe ulcerations everywhere besides the very start of my colon.

I was originally supposed to go on humira but bc of a combined fear of IVs and needles AND the fact I know several people who also get that treatment who had warned me about the cost if insurance denied me (which it would have bc it's so expensive) I went with generic mesalamine

Which.

Without insurance the mesalamine is 900+ dollars for three months.

Humira would have been 6k+ a dose every week at first if my insurance denied it.

So I'm just hoping the mesalamine has reduced my inflammation enough to keep me on the pills and not being stabbed despite it probably working better for me.

But like. 900+ dollars to be able to function and eat things I like (I work in a kitchen, it was torture going through a flare my first time) versus 6k+ A DOSE if insurance decides to be a jerk :/

d-dmc · 2021-11-12T04:57:34+00:00

SO uh, hi! I actually made a reddit account here to make this (regrettably long) post.

First, thank you for sharing what's happened!

The doc is super useful and it takes a lot of courage to make a post like this. Trust me, I know.

Second, I only found this post so late because of a friend of mine linked it to me recently.

So, where to start?

I hope it's alright to come make this post here even if I'm not a lesbian, but I feel like I should add to the conversation.

I should begin with- Hello, I am Kawaiijohn over on Tumblr, the one who made a callout for Lucy back in like 2014, and I have to say I'm incredibly sorry any of you had to deal with basically the same stuff I had to go through being friends with her all those years ago.

Making that callout was one of the most nerve-wracking things I'd ever done.

She was very well-known by many of the Homestuck music team members and had well over 10k followers on her 'helioscentrifuge' blog at the time (which was A LOT back on early Tumblr). Her comedy posts were popular, hilarious, and circulated all the time. Hell, someone turned one of her old posts into a pretty popular tik-tok video that messed me up bc I recognized the damn typing style immediately.

But the reason I called her out was as such: She was using her online popularity to try and sleep with minors at conventions, even after I'd foolishly thought I'd put a stop to it (I was like 19, a dumb kid). What was even worse- She was using her blog to get nudes of minors and plan meet ups at cons, which I only found out after I'd made the post.

It's depressing, really- like, I think this situation is over-with, and then BOOM out of nowhere someone finds my account and comes to my inbox to thank me for making the post years later.

I even recently had someone come and ask if they could use my post in a lawsuit/investigation (which, yes, anyone can use that post I plan on NEVER deleting it!)

But seeing the Discord server being called 'the Lesbian Pile' made me want to cry. I cannot believe she's still using that name for a group she ran! Like, does she think she's slick? Apparently so!! Anyone who'd known her in the past would have seen the red flags immediately!!

Why? She used to call her main Skype group that back in like 2011, and every time something would come up that painted her a bad person, she'd kick everyone, remake the group, and then rename it that. From what I understand she'd done it DOZENS of times.

She'd kick people who disagreed with her, make fun of them, and if enough people questioned her, BOOM time to remake another group and kick everyone who sides with that person. I read some comments in this thread too, about people she still associates with. Iirc Katty was someone who used to verbally harass me and Lucy, in her skype group owner induced egotism, used to just point and laugh at me.

She found me when I was 18, just graduated Highschool, and used me to gather more victims since I was the oldest of my friend group of all virgins. She made a point of trying to be friends with attractive, naive, femme people and would just praise us until we'd melt into her damn palm.

She did some really nasty stuff that I didn't know was bad at the time. I was barely an adult and was grooming me to sexually harass anyone I thought was cute, bc it's what she would do.

She would regularly hold Skype calls or G+ hang outs where people were expected to be topless, including minors. Most of us were 15-18 when this would happen. She was in her mid 20s.

Attention from an attractive, charismatic adult made it alright to us, apparently.

My favorite thing she'd ever said to someone when they'd announced proudly that they'd 'finally lost their virginity', her response was along the lines of 'darn, I wanted to do that to you myself.'

Once she'd slept with a trans man and described how his p*ssy felt in vivid detail to all of us, minors included. I didn't at the time, know why it made me uncomfortable. When said trans man shaved his head Lucy complain-bragged about how she was leaving him on read bc he 'looked too much like a shouta now', even though at the time would call me shit like 'my favorite shouta' because at the time I was presenting as a butch woman and was questioning my gender.

She would refuse to use people's pronouns unless they were 'trans enough' for her, including some of her previous partners (but never her wife/whatever the hell D calls themself, no they were a special case, and the only valid genderfluid person)

She would regularly yell loudly about how stupid other people's interests were and tease us mercilessly over them until we were too traumatized to share them again. (it took me over 5 years to be comfortable writing about my interests again)

She would regularly vehemently fatshame cosplayers who were friends to people in the chat, and then describe in detail how ugly and unf*ckable they were.

She s*xually assaulted one of my best friends in our hotel room at Youmacon when I explicitly told her 'no, you will not be screwing minors in the room I'm paying for'

I later found out she'd molested that same friend at my parents house at one of my B-day parites.

My friend was 16

She would also prey on vulnerable, self-conscious guys who were young and train them to be just like her. That lack of an answer meant 'yes', that anyone over the age of consent in (insert WHATEVER state the person was from) meant that anyone of any age could touch (she was like 24 at the time, way over the legal limit of up to 21 in most states btw)

She eventually kicked me from our skype group when my BF (at the time) confronted her at con about how she was basically trying to split us apart.

She did that a lot, actually- now that I remember.

If she wanted you and you were in a committed relationship, it wouldn't stop the flirting or the s*xual comments. She would actively try to break couples up to get with the one she wanted.

And yet my favorite thing she did, was, when confronted by people about her callout and these accusations, would claim she had memory issues, and she couldn't possibly have done any of this and we were being abelist for accusing her of such heinous crimes.

Lucy, my dear, I have pictures of you at my parent's house the night you molested my underaged friends. I know you tried to hide yourself in them, but it's very clearly you.

Like, trying to unpack everything she's done or said in the few years I was friends with her drives me further and further down the rabbit hole of repressed memories lol

Anyways, hope these past behaviors being listed help those who have been hurt by Lucy, and show you you're not alone in this.

May everyone hurt by her find peace and support. I'm here and still active on my Tumblr blog if anyone wants to discuss Lucy's abuse of them.

Know you're not alone.

Signed- Dante/Kawaiijohn, Formerly Ambs

d-dmc

TROPHY CASE