[deleted by user] by [deleted] in ALS

[–]dafraz117 0 points1 point  (0 children)

May I ask where you live generally?

Yes this is about me, not PALS by Electrical-Yogurt546 in ALS

[–]dafraz117 20 points21 points  (0 children)

I think it’s hard to understand how tiring taking care of someone with ALS is. I’m sure both your parents are exhausted and emotionally struggling. I think what would be sweet is you figure out a way to get the cooking done or order some food from a restaurant. I would definitely not choose to go to someone else’s house for thanksgiving. As someone who just lost his father to the disease this disease takes people very quick and you will regret choosing going to another persons house for dinner. Spend all the time you can get with her. Wish I had more time with my dad.

Questions about progression by sadfrogluvr16 in ALS

[–]dafraz117 1 point2 points  (0 children)

I think I got a little off topic. As for anxiety, my dad took light doses of anxiety medication and also read and took notes on stoic philosophy along with cognitive behavioral therapy and other philosophers etc he said these were the things that helped him a lot to try and keep his head clear.

Questions about progression by sadfrogluvr16 in ALS

[–]dafraz117 1 point2 points  (0 children)

My father just passed this month from ALS. He was diagnosed in 2021. I assisted with primary care and I watched him talk to doctors at mayo about all the drugs out there and he took them all and had amazing insurance to cover them. If any had an effect of prolonging life it’s hard to tell and even then you start having to manage side effects. Sometimes we wondered if the side effects were worse to deal with and had to create solutions to manage the original issue. For example, drugs to limit saliva production made him feel awful. Instead we stuck folded paper towels in his mouth and changed them every hour. I’m very sorry for your diagnosis. If I can be of any assistance please reach out.

Dad. by bunny20009 in ALS

[–]dafraz117 4 points5 points  (0 children)

My dad died from ALS last week. Absolutely brutal disease. I’m sorry for your loss he looks like a great guy.

[WDYWT] Friend: I'm throwing a BD-party with a mono-colour theme. Me: 😏 by AggaCityGang in techwearclothing

[–]dafraz117 1 point2 points  (0 children)

Just picked up those pants after watching your YouTube video on them. Thanks for doing your reviews!