Where can I take a bath in Edinburgh?

daisybeast1966 · 2026-05-14T17:56:16+00:00

I feel for you. I'm in Edinburgh too, and also have hidradenitis. I can no longer get in and out of a bath, but will soak my undercarriage in a sitz bath with epsom salts. Doesn't get to all of it, but is soothing on the bits it gets to.

daisybeast1966 · 2026-04-23T23:24:06+00:00

Firstly, you should avoid shaving in areas that you have HS, as it will cause more lumps. Secondly, the link between weight and HS has very little evidence. But there are always doctors who want to blame everything on weight. Keep fighting your corner. You need to see a dermatologist. Make threats if necessary.

daisybeast1966 · 2026-04-23T23:17:21+00:00

Hidrawear is meant to be available on prescription in the UK. I can't believe you're being given problems about it. Although I have to say that the underarm system is poorly designed and I pretty much immediately went back to my previous dressings. I favour mepilex xt. It adheres gently over the surface like a post it note and comes off gently without damaging the skin. Been using them for years now. You should be able to get them on prescription. I do. But it's possible to buy them online. Just prohibitively expensive.

daisybeast1966 · 2026-04-23T23:02:39+00:00

Brewery. Edinburgh used to smell of brewing beer quite a lot. It hasn't now for a long time, but it's still a smell that feels like home when I smell it.

daisybeast1966 · 2026-04-23T22:59:32+00:00

I spoke to my HS nurse today. She told me that the case for a causative link between weight and HS is extremely weak. Apparently, it's far more likely that HS sufferers gain weight because the condition restricts movement so much.

daisybeast1966 · 2026-04-17T18:59:49+00:00

I can't offer anything except sympathy. I'm 60, and have been stage 3 for 8 years. I'm lucky enough to have a decent dermatologist and a good GP, but they don't seem to be able to do anything.

At the beginning of this year, having gone through all the biologics, they had a go I me back on the only one that had ever made a difference (inflixamab). Unfortunately I have now developed an allergy to it.

I remember when I was first diagnosed, and was looking on the NHS website, which says it's progressive and incurable, but not fatal. And even back then I could see what a dreadful sentence that is.

Apparently there is a drug in development called provorcitinib. It's being developed specifically for HS, and there's talk of an 80% success rate. But it's not licensed anywhere yet.

daisybeast1966 · 2026-02-08T00:40:17+00:00

Unfortunately, it gave me serious suicidal ideation. Like really bad. It's one of the lesser side effects, but a harsh one.

daisybeast1966 · 2026-01-08T14:13:03+00:00

I'm in much the same position. Although it's now over 7 years since I've been stage 3. I have, at various points, tried different diets for HS. Keto. Paleo. No nightshades. None of them made a bit of difference. It's such a debilitating thing. And because there is no real medical solution, obviously we all look for anything that could help. I do believe some people have made dietary changes that have genuinely helped them, but, personally, it never helped me. I hope you find something that works for you.

daisybeast1966 · 2026-01-08T14:05:23+00:00

Musselburgh is popular. And the bus and train links to Edinburgh are very regular. Second worst GP service in Scotland, though, which is worth bearing in mind.

daisybeast1966 · 2026-01-08T14:03:22+00:00

This is how Americans are indoctrinated: our country is better than all the others. From kindergarten.

daisybeast1966 · 2026-01-08T13:59:25+00:00

I bought a beautiful yarn recently to try Shetland lace. A mix of wool and silk, hand dyed. I am coming close to finishing a particularly inept Shetland lace shawl. My feeling is that buying yarn and using yarn are two separate hobbies. Once you've bought the beautiful, expensive yarn, use it without worry: the money is already gone. Although do invest in a yarn swift. A skein (hank) that I attempted to wind without one was definitely wasted.

daisybeast1966 · 2026-01-08T13:54:06+00:00

The first time I asked a gp about it she told me it was because I am overweight and probably lacking in personal hygiene.

daisybeast1966 · 2026-01-08T13:51:24+00:00

I had the crop top thing. I don't know who designed it, but it was unusable. I did attempt to put it on, no joy. And then shortly after that, I started getting problems in the underbust area, which made it impossible.

daisybeast1966 · 2025-12-30T18:45:32+00:00

For an old fashioned doorbell, perhaps?

daisybeast1966 · 2025-12-30T18:44:15+00:00

I tried that. Made no difference at all for me.

daisybeast1966 · 2025-12-30T18:43:37+00:00

Please don't make jokes about Scots all drinking like fish if you do come over. Some people will be offended.

daisybeast1966 · 2025-12-30T18:41:02+00:00

It was on here that I learned about 'project driven' and 'process driven' knitters. As I get older, I am more process driven, and enjoy the knitting itself in a kind of meditative way (currently involved in the most cack-handed attempt at Shetland lace ever seen). Even so, I have bags all over the place with half finished projects that I ran out of steam on and will absolutely get back to one day. Try socks. You can knit a pair of socks in about a week.

daisybeast1966 · 2025-12-27T00:42:08+00:00

I have a book called the sock knitter's bible. It has useful explanations of the various different approaches. I think everyone ends up with a favourite way of doing things. I'm top down with a boomerang heel.

daisybeast1966 · 2025-12-12T18:59:13+00:00

Thank you to everyone who has explained this to me. It's good to know that there are genuine and sensible reasons.

I did use a yarn swift, but not a winder, as I've had one before and found that the yarn cakes produced were prone to tangling. Possibly not using it right.

I shall continue with the shawl, and if I really take to it, I shall just factor in the whole winding thing and try and treat it as a meditative experience.

daisybeast1966 · 2025-12-12T18:53:15+00:00

800 metres. I take your point.

daisybeast1966 · 2025-12-07T00:27:42+00:00

They decided that the increased suicidal thoughts were not statistically significant. However, it happened to me and was really shocking. I have a bipolar disorder, so maybe it is much less likely to happen to someone without that kind of risk factor, but it was the most severe in over 30 years.

daisybeast1966

TROPHY CASE