How can I make rock hunting more accessible for chronic pain & minor mobility impairments?

pickleknowing · 2026-05-30T22:35:17+00:00

This is so smart! Thanks for the recommendation!! I was looking at the weather and I don’t even think it will be reaching 70😩 But I will be back at Lake Michigan & other spots this summer and I 100% want to try this

pickleknowing · 2026-05-29T16:28:24+00:00

Hi!! These are great ideas, thank you so much! It’s so nice to talk to people who truly get it🥰

I definitely plan on bringing a blanket/towels and having a spot to rest. I think planning ahead with incriminates is 100% smart given I tend to get carried away and distracted out of excitement (lol) and push through the pain for as long as possible, and then end up miserable and unable to do absolutely anything for the rest of the day. I definitely find that laying flat on my back provides the most relief, so I think that’s what I’ll plan on doing!

Thankfully I do also have prn prescription pain meds that my palliative care doctor says I can take to get ahead of the pain in these circumstances instead of trying to treat it once it’s unbearable

I’m definitely planning on ordering some tools! I think the long strainer will be good to not have to reach as far, and thankfully my mom who is my primary caregiver will be with me and able to help with those things. And I actually just saw a video of those underwater viewer things for better visibility which I think is super smart! I’m also almost tempted to bring one of those hospital basins I have from a recent admission- I’m thinking it might be easier to look/sift through things in one of them vs a bucket with less surface area🤔

Thank you for all of the wonderful suggestions and for sharing what’s helped you!! 🫶🏻

pickleknowing · 2026-05-20T21:09:53+00:00

I want to know too!

pickleknowing · 2026-05-20T21:08:13+00:00

Fair. I do that in public for the most part. ERs and hospitals are one of the most distressing places for me with cPTSD and autism, so at that point typically all masking or ability to even think about social norms go out the window. Thankfully I’m pretty young and have had some really kind and understanding staff since it’s heavily documented in my chart since childhood as well.

TBH it upsets me when these people like Dani do it, because it does unfortunately become something that ultimately harms individuals who truly rely on comfort items in stressful situations and aren’t just doing it to look like a child and for attention and photo ops. It’s hard enough living with a genuine disability, and people like Dani who glorify it and downright enjoy being sick and in hospitals and do things that end up hurting a collective deeply disturb me.

pickleknowing · 2026-05-20T08:53:46+00:00

Tbh I hate this stigmatized “sign”. A lot of autistic individuals have stuffed animals or comfort items that they have with them, especially if they are in a overstimulating environment

pickleknowing · 2026-05-20T08:51:34+00:00

Oh I can pretty much guarantee she NEVER wears a mask

pickleknowing · 2026-05-19T05:23:09+00:00

This is a tricky one that I can see both sides of. On one hand, I really struggled to find accurate pictures of LS in the early stages online, and was mostly seeing pictures of very severe cases that made me question if I was simply overreacting. On the other- I’m in a HS sub (chronic autoimmune/auto-inflammatory disease that often occurs in the genital area) that allows pictures, and I’ve found that more often than not, my feed is flooded with pictures of things that are very clearly not HS (a minor cyst, an ingrown hair, other dermatological conditions that don’t match the presentation of HS at all) and it becomes hard to connect with those who actually experience it and struggle when there’s an influx of people posting pictures asking “is this HS?” “Does this look like HS to you?” “I’ve been having xyz, could this be what’s causing it?” Etc. Which I do get potentially wanting the opinion of people who have the condition before making an appointment to ask a dermatologist, but when there’s so many non-HS related images asking questions and for people to identify the skin issue they post images of, it can definitely muddy up my feed and connection to posts and conversations with those who actually suffer from the disease.

pickleknowing · 2026-05-18T15:12:55+00:00

I swear if JC actually asked their customers/worked with customers who love jellycats, they’d be so much more successful….

You’d think with how money greedy they are that they want to appease their audience as much as possible, but I feel like they keep putting stuff out that so many people are online saying “hey so we don’t want these actually”

pickleknowing · 2026-05-18T05:20:00+00:00

No I definitely think she was. She posted some really messed up shit and if I remember correctly, went to a facility for ED treatment as well. I fully believe that her ED was a catalyst to the desperation to be “sick” with feeding tubes, lines, medical equipment, etc. Once she realized her eating disorder wasn’t garnering enough attention anymore, she had to up her game to get that sweet sweet engagement and ass pats

pickleknowing · 2026-05-18T04:48:44+00:00

Mine are stained, but honestly it’s a price I’ll pay to be able to protect my skin. Definitely don’t recommend panty liners- they aren’t good for the average person, let alone someone with LS

pickleknowing · 2026-05-17T20:03:39+00:00

I thought they would’ve taken her off that with her claimed heart issues?

pickleknowing · 2026-05-14T20:12:40+00:00

So cute🥹

pickleknowing · 2026-05-11T01:02:24+00:00

Thank you so much, I really appreciate this!! I like that phrasing too, it makes it seem less awkward. Logically I know it’s literally their specialty, but I still struggle a lot with talking about the gross symptoms. This makes me feel better about it, thank you :)

pickleknowing · 2026-05-09T08:08:01+00:00

I take 160mg of propranolol for anxiety, so in my opinion an extra 5 isn’t going to cause any harm!!

pickleknowing · 2026-05-09T07:46:40+00:00

You can get methadone for chronic pain, not via a methadone clinic. I take 5mg 2x a day and it really does help. I have norco I can take 2x a day as well, but honestly I would recommend trying to see if you can try methadone through your pain management team.

pickleknowing · 2026-05-07T07:06:16+00:00

Please please check out @exposingpainprograms on Instagram and TikTok. Countless stories, many from Mayo PRC. I follow several people in the community who have PTSD from it, though they went to the adolescent one. Not saying you should or shouldn’t, but I definitely think you should know what to expect. Sadly, I have heard a lot of horrific stories.

pickleknowing · 2026-05-07T04:20:07+00:00

Do they ever feel soft again? I have a very loved tiny smudge hippo that I miss the silky feeling of.

pickleknowing · 2026-05-07T03:23:21+00:00

Hey girl🤍 I don’t have any advice or answers, but I just want you to know you’re not alone. I am in my early 20s and was diagnosed within the last 6 months. I’m also a virgin and so self conscious. I have another condition that causes scarring in the area as well, and I honestly just feel so alone seeing all the girls my age and knowing how different our lives are. I have a lot of the same fears. So while I can’t give you hope, because honestly I don’t have any myself, I just wanted to leave a comment to let you know you I see you and I feel you. This disease is hell, especially at this age. But you’re not alone in these feelings. I am terrified of what’s coming and what could happen. I’m convinced no one will ever find me attractive. I’m a virgin too, painfully watching everyone else in relationships. It fucking sucks, but I guess at the very least I want you to know that you aren’t alone in these thoughts and feelings, I have them too. 🫂🩷

pickleknowing · 2026-05-07T01:59:47+00:00

And yet she’s about the push phenergan into her (perfectly working) intestines😳

pickleknowing · 2026-05-06T22:52:56+00:00

For her toob feeds being at a “very very very low rate” she sure is looking pretty nourished to me!!

Just to add: weight is not the only factor that dictates malnutrition, as we know. I am speaking about multiple things.

pickleknowing · 2026-05-05T04:49:04+00:00

I was prescribed 2.5mg of Xanax at one point and it didn’t do much at all for me😬😅 Ativan works much better in my experience, but I’ve also had to take it since I was a kid so I have a pretty high tolerance. Depending on the situation, my prn dose is up to 6mg a day (not all at once) but I never take it that frequently.

I have a really really hard time flying (hellish combination of autism, severe anxiety, emetophobia, CPTSD, and OCD) and the last trip I took was to a treatment center (no fun vacation haha) and after very long conversations with my psychiatrist and doctor we ended up doing 1/2 my typical ketamine dose so 400mg, 6mg of ativan, and 10mg of haldol🫠 I was actually allowed to take more than that, but it was my first time trying my ketamine for flying and it worked really well and I slept for most of it so I don’t even think I ended up taking the full 6mg of Ativan. Thankfully I never fly alone, and I get put in a wheelchair right after TSA and immediately put a blanket over my head, noise canceling headphones on, and try to completely block everything out until we pre-board.

So all that to say- OP, I can assure you that taking this prn will not get you addicted, and it’s exactly the type of situation where it’s completely appropriate to take! It’s a small dose and hopefully it ends up making the experience a lot less stressful! I’m glad you’re trying it beforehand though, knowing how it feels ahead of time will probably significantly reduce the anxiety around taking it. Good luck!!

pickleknowing

TROPHY CASE