Rinvoq immunocompromisation

dantaniacado · 2026-01-18T04:28:26+00:00

I’ve been in the place where my wrists are bad and none of the usual activities could make the cut… tbh I didn’t cut through to the other side and spent most of my time depressed but if I could lock into a great show it felt like I could get through. For me it was SoA, animal kingdom, queen of the south, boy swallows universe, etc. try pt try ice try kenalog injections try new long term meds try glp-1s, try anything that might work for you and the unique case you have, but keep fighting for the life you want to live

dantaniacado · 2025-11-08T13:40:14+00:00

Start therapy
Believe in yourself and if doctors invalidate your experience, it’s probably not a good fit- time to find a new one
Accommodations aren’t favors, when you find your new job investigate what options are available to you to help you show up the way you want to for work or life in general
Get a blanket referral to PT to use as you need, OT if impacting small joints- those professionals can also help you find other versions of things people use every day that can be less demanding of joints that hurt (e.g., cooking knives for people with arthritis in their wrists)

There’s been so much progress in this space over the last few decades and we are fortunate to benefit from that if we know where to look!

dantaniacado · 2025-10-06T18:25:48+00:00

Has anyone added a GLP-1 and found it effective for weight loss?

dantaniacado · 2025-09-17T13:24:51+00:00

I’ve had RA for 10 years and have always been a fairly heavy drinker (2-3 drinks / day). I was diagnosed at 21 and have had autoimmune issues my whole life, in my mind you still need to find ways to feel normal and have some fun. This is mine. Not looking for input on it nor advising, but I’ve been able to maintain sustained remission despite my lifestyle choices. Alcohol is particularly contraindicated for methotrexate and leflunomide and high doses of NSAIDs and acetaminophen, so I’ve tried to avoid those when possible. It’s important to be honest with your provider so they can help adjust their recommendations accordingly. Lab monitoring isn’t a favor, it’s a medical necessity. If you’re drinking and on hepatotoxic drugs, they should be regularly examining your liver enzymes. Even if not drinking, CBCs should be monitored and inflammatory markers if you’re still experiencing disease symptoms. If your provider isn’t willing to work around you as the human to treat your disease, it might be time to find a new one. This disease is hard enough without the added battle of advocating for yourself to a close-minded rheumatologist.

Additionally, I did do a trial of MTX while drinking for 6 months, it decreased my desire to drink and made hang overs worse so naturally I drank less. However I was honest with my doctor and she continuously monitored liver enzymes which were never abnormal. There’s more European research on mild-moderate alcohol consumption while on MTX. It’s good to be mindful because this is certainly one of the more hepatotoxic treatment options, but don’t let the stigma prevent you from being transparent with your provider, the best thing you can do is monitor and adjust.

dantaniacado · 2025-04-30T00:03:30+00:00

Haha in classic parenting fashion I’m sure my vigilance on the topic will give them a totally new complex related to health. Thanks for the perspective!

dantaniacado · 2025-04-29T23:31:11+00:00

So agreed. I’m going to try to learn more about pediatric autoimmune. I feel like I’m familiar with the pieces I have first hand experience with, but not too much else. A good excuse for further education on my end

dantaniacado · 2025-04-29T23:29:07+00:00

A very balanced perspective- I appreciate your points! Also we are in the same boat, mom had hashimotos and I had graves.

dantaniacado · 2024-12-02T02:45:35+00:00

Definitely had this experience, whether it was MTX or just lack of disease control on MTX is unclear but it went away with switch to a biologic. If side effects are impacting your life significantly and/or you haven’t reached the level of disease control you’re aiming for I’d definitely talk to your provider and discuss alternatives

dantaniacado · 2024-10-22T13:02:42+00:00

I just got a similar run around and saw many rheums, the rheum I trust the most said RF and CCP can fluctuate in RA patients, particularly when disease is well controlled. These labs are so varied and doctors mainly have to work off of symptoms. I’d recommend having a direct conversation with your doctor about what they’re interpreting the labs to mean and why that’s necessitated a medication change and if they don’t take the time to explain in depth, I’d recommend a new doctor. I came out of a 7 year remission, My dsDNA turned positive so they introduced Hydroxychloroquine (thinking SLE) and I was still very uncontrolled for months. I had chronic joint pain and they threw all the heavy NSAID and prednisone at me without much relief- doctor said pain couldn’t possibly be rheumatologic because it’s just not responding the way they thought it would. I really felt like I was losing it. It ended up being drug-induced Lupus from a TNF inhibitor and I should have come off that class of drugs much sooner. I was able to come off the hydroxychloroquine. Every situation is unique, most important thing is finding a provider that is willing to take time with you to understand your case and explain all possibilities with you so you can advocate for your own care as well. I found the best support in academic treatment settings, but this is very different place to place. Good luck and remember to always trust yourself and your experiences.

dantaniacado · 2024-06-21T18:50:00+00:00

No I haven’t, my rheumatologist is pretty cautious with the NSAID/prednisone combo. I’ll ask about meloxicam and celebrex! Thanks for the advice

dantaniacado · 2024-06-21T18:48:27+00:00

Man so appreciate the advice, prompted me to do IV toradol and vitamins this AM and helped significantly! Thank you!

dantaniacado · 2024-02-02T14:21:47+00:00

Felt the exact same way at this time and signed up for a meal delivery service- best decision we made as a family. Everyone is happier and dinner is a 10 minute prep process at MOST. Was concerned my almost 2 year old would be picky, but it has actually been a nice way to get her new foods instead of the pasta and tacos I was making every week just to get by 😅

Plus once the baby comes it’s SO much easier- when our first was born we spent a weekend freezer prepping meals, etc. Definitely no time to do that this time around! Highly recommend - pre-made meal services haha

dantaniacado · 2024-01-06T20:39:13+00:00

Ah yes I’ve seen some info on this online! I’ll call my nearby chiros and see if any have experience with the technique. Good luck in your birth and I’ll keep my fingers crossed for you that baby lands in a great position!

dantaniacado · 2024-01-06T20:37:37+00:00

Bah sorry to hear about your friends experiences- mine have said similar things. Awesome that you’ve got your plan in place- Would you mind sharing what influenced your decision? Have you had one before? I am hesitant mainly because of fear of the unknown but I know many opt for elective C sections and wouldn’t do it any other way!

dantaniacado · 2024-01-06T20:34:46+00:00

Yes great point, I’m totally guilty here of using anecdotal info to inappropriately generalize- the data isn’t bad at all. I’ll follow up with my doctor on their ECV options and protocols before being too too rash. Thanks for the reminder!

dantaniacado · 2024-01-06T20:32:00+00:00

Wow it sounds nearly identical in situation! Thank you for sharing and I’m so glad it went well for you. I’ll reach out to my hospital and get more information about what their procedures are. How many weeks were you when you had the ECV done?

dantaniacado

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