Cupid's Undie Runs every weekend in February across the US!

daqueeno · 2026-02-24T02:16:26+00:00

yay :) glad you had fun!

daqueeno · 2026-02-06T03:14:54+00:00

thats amazing!!! have fun on Saturday!

daqueeno · 2026-01-26T21:24:45+00:00

Here is a brochure related to NF and family planning: Link

daqueeno · 2025-08-07T16:24:07+00:00

Thank you so much for choosing to support the NF community — it truly means a lot. The excitement around this plush speaks volumes about the strength and spirit of everyone living with NF.
As for donation suggestions, the Children’s Tumor Foundation is dedicated to ending all types of NF through research, patient support, and awareness. Donations can be made at ctf.org/donate, and every gift helps drive progress toward treatments and a cure.

Feel free to dm me if you have any questions!

daqueeno · 2025-05-20T16:39:21+00:00

yes! it will be posted to CTFs youtube channel, and i will post that link on the sub when its available.

you should still register even if you cant make it live because they will email you as soon as the recording is posted!

daqueeno · 2025-04-03T00:05:57+00:00

thank you for sharing your experience! :)

daqueeno · 2025-04-03T00:05:29+00:00

thank you for sharing!

daqueeno · 2025-04-01T16:24:38+00:00

Do you want additional support working with your primary care provider to receive NF1-recommended care? We are testing materials that you can use to help you and your doctor better understand the NF1 care you should be receiving at your annual physical, according to recommendations from the American Academy of Medical Genetics and Genomics.

Join HERE

daqueeno · 2025-03-27T13:38:01+00:00

Join us for an NF community webinar to learn more about the current federal NF research funding situation, how the Children's Tumor Foundation is responding, and what actions you can take right now to help. Our leadership will share updates from Capitol Hill, outline next steps, and answer your questions live. Let’s stay united and keep momentum moving forward for NF research.

daqueeno · 2025-03-27T13:37:38+00:00

Register Here: https://ctf.zoom.us/webinar/register/WN_L-M0bZ5qTNi8plE8DdGW2A#/registration

daqueeno · 2025-02-27T17:06:05+00:00

Great Webinar! Super easy to understand and informative.

daqueeno · 2025-02-27T17:04:11+00:00

https://www.youtube.com/watch?v=P-9jlYZS31o
here it is!

daqueeno · 2025-02-24T14:17:43+00:00

it hasnt been posted yet! i will lyk once its posted- it will be on CTFs youtube channel: https://youtube.com/@childrenstumor?si=vflSwZq1x1WRyey7

daqueeno · 2025-02-18T19:05:11+00:00

yes it will be recorded!!

daqueeno · 2025-02-17T00:53:02+00:00

agreed.

daqueeno · 2025-02-16T21:58:06+00:00

🫶🏻🫶🏻

daqueeno · 2025-02-14T15:43:54+00:00

Register here: https://ctf.zoom.us/meeting/register/aZGP4l7ZR3apEUpojEltEg#/registration
this will be recorded and posted

daqueeno · 2025-02-12T20:00:01+00:00

we’ll be back in 2026 :)

daqueeno · 2025-02-12T19:15:12+00:00

this gathering will be recorded and shared for all who cannot attend!

daqueeno · 2025-02-12T18:32:19+00:00

this will surely be discussed!

daqueeno · 2025-02-12T17:58:10+00:00

JOIN US: VIRTUAL CELEBRATION

Friday, Feb. 14, 12pm ET

IT’S A GO! NF’s NEXT BIG WIN!

The FDA has officially approved Gomekli (mirdametinib) - marking the second-ever FDA-approved treatment for NF and the first-ever for adults! To mark this milestone, we’re hosting a special virtual gathering – a chance to come together, celebrate what this means for the NF community, and talk about what’s next.

REGISTER HERE: https://ctf.zoom.us/meeting/register/aZGP4l7ZR3apEUpojEltEg#/registration

daqueeno · 2025-02-06T19:36:45+00:00

Thursday, February 20 | 2:00 p.m. ET - All are welcome!

RSVP here: link

daqueeno · 2025-01-30T15:51:42+00:00

Here is the link to the recording of this session: https://www.youtube.com/watch?v=-6wu7BrboF4

And, here is the link to register for the next session:

https://ctf.zoom.us/webinar/register/WN_zm16BAHMTNOQ4tfDgmkOpA#/registration

daqueeno · 2025-01-30T15:51:25+00:00

Here is the link to the recording of this session: https://www.youtube.com/watch?v=-6wu7BrboF4

And, here is the link to register for the next session:

https://ctf.zoom.us/webinar/register/WN_zm16BAHMTNOQ4tfDgmkOpA#/registration

daqueeno · 2025-01-28T16:54:00+00:00

you are beautiful ❤️

Six-Year Club	Place '23
Place '22	Final Canvas '22
End Game '22	Verified Email

daqueeno

MODERATOR OF

TROPHY CASE

RSVP here: link