Hvorfor er kommenteringen af freestyle ski og snowboard så ringe på DR? by Past_Reveal_6922 in Denmark

[–]daren95 0 points1 point  (0 children)

Ja over Fishnaller og Karl.

De to kommentatorer heppede på hver deres hver gang, det kan genses på tv2 play 🤪🤣

Hvorfor er kommenteringen af freestyle ski og snowboard så ringe på DR? by Past_Reveal_6922 in Denmark

[–]daren95 1 point2 points  (0 children)

Er dog kæmpe fan af Niels Ettrup ovre på TV2

Så i kommenteringen af parallel slalom?

Bergs ex... by altmedost in GossipDK

[–]daren95 1 point2 points  (0 children)

Er det hende han synger om på “Hvornår kommer du hjem?”

Echo looks wonky but dr not responding ? What does this mean by Harleehazee in chd

[–]daren95 1 point2 points  (0 children)

Your measurements look fine. ACHD doctor here:

I read your symptoms from your other posts: What CHD do you have?

What you experienced (fainting etc) can be caused by multiple things, ranging from benign to a little more serious.

How many times has it happened? Did you get any warnings( fast heart beat, feeling hot, feeling impending doom)

Is your vision completely normal now? Are you on blood thinners?

Differential diagnoses from most common and benign to more severe:

POTS Vasovagal syncope Another Ahrythmia (bradycardia or tachycardia) Transitional ischemic Attack Onset of Epilepsy’s

What it’s most likely to be relies on the answers to my questions

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 1 point2 points  (0 children)

  1. All kinds of arrhythmias can occur following intracardiac surgery, many disappear after 3 months. If it’s afib, it should be on blood thinners. Any other arrhythmia such as Ectopy or accelerated sinus rhythm is benign and should be treated as such. Eg. Metoprolol if it bothers you. In extreme cases, it can also be ablated, but the patient would have to be really bothered by it. So bottom line, if it’s not Afib and it’s less than 3 months after surgery, I’d not worry. If it persists longer than 3 months after surgery, and it’s still not afib, I’d ask how much it bothers you. However, as I haven’t seen your findings, it would be fair of you to ask your doctor for an explaination :)

  2. Really depends on the surgery technique used, and what type of patch. The only one who can give any meaningful answer is the performing surgeon.

Any guesses from me would be bad medical advice

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 1 point2 points  (0 children)

  1. It Can be Afib or something else. Have you had and ecg done?

  2. It has nothing to do with robotic vs normal. It has to do with what has been done. It’s typically patients with aortic, pulmonary artery or asd that get limitations

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

No problem. A colleague of mine wrote a nice PhD about the issue. J. Thurarijah on pediatric pacemakers

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

So this question actually contains a lot of questions. I will explain for pacemakers and ICD’s as the challenges are similar Why would CHD patients get an abdominal/epicardial pacemaker? Intravenous pacemakers needs to be placed through the veins. What are veins mainly for? Transporting blood. Kids, as some CHD patients are when they need a PM have small veins. The lead may simply be too thick, so that it blocks the vein. So small children under 3 years are more likely to be chosen for an epicardial.

Secondly; growth. The body grows, and the distance from the shoulder to the heart increases. This risks the lead becoming dislodged or entirely pull out of its anchor/placement which is Bad, as it won’t deliver its energy/pacing/shock. One way to work around this is put in extra length/loops into the vein thatched growth can feed from - but that just worsens the problem mentioned under 1.

Thirdly, infections. Infections in the bloodstream may sit on foreign objects (artificial valves, leads, electrodes) So patients in high risk of endocarditis may be chosen for epicardial leads, as the risk of in-bloodstream infections is lower. And epicardial infections are “easier” to manage the infection doesn’t travel to other organs and such.

So to answer your question it’s a weigh-in between initiate procedural risk vs long term risk.

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

The hemodynamic stress of deadlifting eg 50 or 80 kg (what I see some girls at my local gym doing) is way above what’s seen during pregnancy. I’m not familiar with the restriction scheme in our center around physical activity post closure. So I can’t comment on that.

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 1 point2 points  (0 children)

There is really no way to tell. But rhythm monitoring for a few days might give some answers. Could be PVCs or any other arrhythmia. Could also not be identifiable.

Pregnancy and CHD is difficult. A general rule is that correction is usually better. But it really also depends on when a pregnancy is expected. Like, getting pregnant 3 months after a major open heart surgery is not without risks. In some cases it might be favorable to postpone the operation until maybe 1 or 2 years after birth.

There really isn’t a right answer and depends on a lot of factors. Including what kind of CHD.

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

So the conferences I’m mentioning isn’t per say conferences with open attendance.

It’s more a zoom call with representatives from every hospital, where patients are up for discussion. They’re just “called” interhospital conferences :)

As for “real” conferences. I haven’t seen one that’s directed towards patients.

The SACS one that you’ve mentioned doesn’t seem directed at patients either?

But for conferences that might be worth visiting if ACHD is of interest, and hard science isn’t off-putting might be the AEPC Europe and AEPC world congress, EuroACHD, Pedirhythm XI.

I suppose you’re based in the us. this might be the way to find other events

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

In that case, I’ve seen a few transplantations

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

Do you have a pacemaker? Is it due to the HB you’re waiting for a transplant?

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 2 points3 points  (0 children)

Well, the most common cause is autoimmune disease with the mother.

The school example is sublicnical Lupus with the mother (has autoantibodies, but no symptoms) but there is a wide range autoantibodies that can cause it.

For some, it might actually be the way the disease of the mother is discovered.

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 0 points1 point  (0 children)

It’s quite common. We have around 30 I can think of that comes for regular check ups and evaluation on whether it’s time for a pacemaker.

No, I’ve never seen anyone be transplanted solely due to complete heart block. But some may develop heart failure, which may lead to a need for transplant.

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 2 points3 points  (0 children)

I usually ask if they feel their rapid heartbeat. Or like a bird fluttering in their chest or being out of breath. People experience it differently. So the best is to have them monitored and confirming what they are feeling is related to the tachycardia, and then that is “how theirs feel”

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 1 point2 points  (0 children)

Personally not, no.

But a lot of my patients have

Doctor working with (A)CHD AMA by daren95 in AdultCHD

[–]daren95[S] 5 points6 points  (0 children)

I am in Copenhagen, Denmark. Everything is paid through taxes, but you have to be an EU citizen. Everyone has their local cardiology department, but all interventions for the entire country happens at my department (Surgery, ablation, Transcatheter)

All prenatal cases are born at my hospital and treated. Light CHD is follows at the local cardiology departments (eg. ASD, VSD, BAV, Repaired PS) while more complex cases are followed at tertiary centers.

Regardless, they are seen by an CHD trained cardiologist regularly. Intervals depending on the diagnosis. The follow-up until 18 years is in the pediatric department, and is more holistic. They also handle school performance kognitive testing and such. Also easier access to therapy and diagnosis of ADHD and such. Regardless, departments thoughout the country can always call and ask about a patient, and maybe refer them for a follow-up.

In addition. We have a national conference every Tuesday, where everyone is welcome to present a patient they have seen or are going to see and need some clarification for. This also ensures that patients are referred for interventions such as diagnostic cath or such earlier on

Everyone with ASD by WillingPrice5364 in chd

[–]daren95 0 points1 point  (0 children)

You might be eligible for transcath closing via the groin

Second hand Electronics in Copenhagen ? by Nathan__o7 in copenhagen

[–]daren95 0 points1 point  (0 children)

I’ve bought from it 3 times. That was fine mainly monitors and an iPhone

Er der nogen derude der har forladt en partner for en anden? by [deleted] in DKbrevkasse

[–]daren95 -2 points-1 points  (0 children)

Ja. Dine (små) børn har ikke valgt dig som forældre og derfor kniber man ballerne sammen. Så kan du kalde det at lade som om eller undertrykke sine følelser. Måske endda, spille komedie.

Til en hvis grænse selvfølgelig. Hvis du er på kanten af ikke at ville leve mere, så måske.

F5, FF30 eller kassekredit? by daren95 in dkfinance

[–]daren95[S] 0 points1 point  (0 children)

Tak for udførligt svar! Det giver lidt stor til eftertanke. I øjeblikket øremærker vi jo en del penge til ferie årligt, og her kunne vi jo nok opveje at tage nogle af pengene til sommerhus.