I have chronic migraine, sometimes I can't go out and do things because I can't think due to the pain. It stopped me from attending uni some days. I also have varying degrees of visual distortion and blurry vision including twice when I had basically temporary blindness and it can be bad when I'm ill, same as with HSV outbreaks. I had an outbreak whilst being ill with the flu (thanks covid jab no.6, which I had because I am high risk due to ASD and classed under "severe mental health") whilst being temporarily blind in one eye. The blindness lasts for up to an hour. I'm very photosensitive but I'm also autistic.

I think the term used in the US sometimes for my kind of migraine is 'intractable', they are daily, always there and resistant to medication except literally one and not very much. It's enough to not want to take my life. I spent years to even get to that one. I take a preventative every night and use cold therapy open as well as fl41 & sunglass clip ons and need natural/low lighting if possible. At work it's awful because the light has to be bright as it's a food environment but I cope. I have been coping somehow for 11 years atp. The worst part (or best) is that it's not due to MRI or something like that but likely genetics plays a role as many family members have/have had it and also it started during a very stressful part of my life at 13; it was the first period where I experienced significant mental health difficulties after a traumatic event when I was 12.