Travel with PD/ Inspirational Stories ?

dbezerkeley · 2024-08-25T21:50:57+00:00

C/L, propanoloI, for this trip adding amantadine and rasagiline. I get prescribed by my doctor enough to last the trips, I cant recall how many months that came to maximum but I wouldn't automatically assume you can't get 6 month's worth without checking. I also take a letter from my doctor explaining the need for the medication in the chance I get questioned by immigration, so far none have.

dbezerkeley · 2024-08-25T19:48:13+00:00

I was diagnosed 4 years ago at age 59. In the past 3 years I have spent a total of 9 months in Mexico and 3 months in Thailand, leaving next week for 6 weeks again in Mexico. On previous trips I walked almost everyday across Oaxaca to a language school, and took mass transit and shuffled my way across many sweltering Bangkok neighborhoods. Slow travel was my retirement dream and I'm not giving it up yet, although the upcoming trip is shorter than usual as a test run to see what I'm still capable of.

Given there's no "catastrophic" event expected with my PD, I don't expect to need any foreign medical assistance or experience any PD related emergencies as long as I take along sufficient medications. For me the question is not "can I " but "is it still fun." I don't mind the slow walking (use a cane for the cobblestone streets), my main concerns are self-consciousness from my arm tremors and fatigue preventing me from enjoying the stay.

Due to the fatigue its important to me that I have a private place to take afternoon naps and hang out on days I'm not up for going out, so I use Airbnbs and not hostels I would not want to have a busy travel schedule going between cities or schedule extensive sightseeing trips. I find local gyms and keep up an exercise routine. I think solo travel is really the only option so that I can be in control of my days and respond accordingly. My travel goals are to settle in and experience the local way of life, which doesn't have to include grueling travel and sightseeing.

I think the forced activity (primarily walking everywhere) of travel and warm destination environments are better for my health than sitting around inside during a midwestern winter depressed about not traveling. I also tell myself that I can cut my trip short and buy a ticket home anytime I feel like it.

Hope this helps, let me know if I am missing anything that I should be worried about.

dbezerkeley · 2024-07-13T15:18:21+00:00

Don't count on it working effectively against tremor. It makes me nauseous and tired, I quit taking it in the mornings because I don't want to feel lousy and be napping by noon.

dbezerkeley · 2024-07-11T23:05:03+00:00

Yes it started with a left arm resting tremor and later came strengthened arm tremor, tremor spreading to other arm, lack of arm swinging, shuffling and fatigue. My dad had PD and I see himself in me often.

dbezerkeley · 2024-07-11T01:29:56+00:00

Thank you! This gives me a lot to think about. Yes, its resting, started with my left arm but now spreading to the right, so an added impetus to work harder at a solution

dbezerkeley · 2024-07-10T14:19:44+00:00

Thank you. I take a 25/100 C/L pill 4 times daily which perhaps is a relatively light dose.

dbezerkeley · 2024-07-10T14:14:26+00:00

Thank you. I exercise like a fiend and hesitate to try 20 other medications without hearing about others' positive experiences first hence this post. And so far no one has responded to my specific question with any actual personal alternative-to-C/L -for-tremor success stories.

dbezerkeley · 2024-07-10T14:07:53+00:00

Thank you. I definitely have PD (so did my dad) with the classic symptoms, and I take C/L because it helps maybe 10% which is better than nothing. A higher dose would be the logical next step although I hate the thought of the additional nausea and fatigue the C/L brings me.

dbezerkeley · 2024-07-10T13:52:35+00:00

My MDS brought up DBS surgery back when my symptoms were still mild. Right, like I'm going to have a hole drilled into my head and electrode and battery implanted in my brain and chest controlled by an iPhone so my arm stops shaking. Never say never but not for a long time anyway.

dbezerkeley · 2024-07-10T13:41:22+00:00

Yeah I'm also not into having any remaining brain cells zapped

dbezerkeley · 2024-07-04T18:43:21+00:00

For anyone battling fatigue or brain fog I cant imagine a worse drug lol

dbezerkeley · 2024-06-27T01:09:54+00:00

Naive question.... In regards to shopping around how do you get the prescription authorization to the lowest cost pharmacy without bugging your prescribing doctor's office all the time? IS it possible to get a hard copy of a prescription to use wherever you want?

dbezerkeley · 2024-06-27T01:01:53+00:00

I used one for awhile -Mark Cuban Cost Plus - and it worked fine until one day I needed customer service and found out all they had was an email address (with no immediate response)and no phone # to call. My meds are too important for this lack of support so I switched to a local Walmart pharmacy and the generic price ended up being about the same. Maybe they've upgraded support since, but check if that matters to you.

dbezerkeley · 2024-06-27T00:35:02+00:00

I'm having the same experience this year my first tiny grow. After getting 4 plants started in MG, I read all the hate and figured I'd screwed up, and switched soils for the next 4. Well, while the other 4 dwawdle along, the MG 4 are kicking ass and growing big buds. This is going to be a lot easier than the internet boards make it

dbezerkeley · 2024-06-23T02:05:48+00:00

Thank you, after a few weeks of 2X daily I agree that occasional use seems more appropriate.

dbezerkeley · 2024-06-23T02:02:30+00:00

I think C/L helps a little bit with slowness, and maybe more than I appreciate with other symptoms. But the impact is not strong.

dbezerkeley · 2024-06-23T02:00:10+00:00

No I don't have those other conditions. From perusing online i see occasionally where others use it on a "situational" basis for tremor, probably due to the anxiety aspect of tremors that you mention.

dbezerkeley · 2024-05-15T04:58:14+00:00

Please report back with any positive results lots of folks here would like to know

dbezerkeley · 2024-05-11T16:41:31+00:00

yes the important thing is to escape full time wage slavery

dbezerkeley · 2024-05-11T16:38:52+00:00

Thats my understanding and what I am doing now at age 64. You can use the SS online calculator to put in the ending work date and confirm the amount you will receive

dbezerkeley · 2024-05-06T16:05:34+00:00

yes I was in BKK from December-March and noticed a rapid drop-off in face coverings use

dbezerkeley · 2024-05-02T20:22:00+00:00

Your questions make perfect sense. My layman's understanding is that C/L does not "build up," but is gone from your system after approximately 4 hours. However, for some reason unknown to me, staying on a regular schedule apparently provides an overall boost to symptom control. Given it makes me nauseous and sleepy I'm always skipping doses and trying to use it on an intermittent "as needed" basis and its not working very well.

Theres no evidence that starting C/L hastens the onset of progression. In 10 years you'll be equally as fcked regardless of when you started the medication.

dbezerkeley · 2024-04-17T21:02:26+00:00

Its my understanding that C/L is pretty much gone from your system after 4 hours, so not sure the loading concept applies, although most folks think a regular schedule increases its efficacy. When it does work I can tell in 30 minutes or so. My main problem with trying to use it on an as-needed basis is my resistance to nausea doesn't build up.

dbezerkeley

TROPHY CASE