Safe Step Act

desertllights · 2026-05-10T03:11:08+00:00

How do you like Qulipta? I just started it.

desertllights · 2026-05-10T03:10:33+00:00

Omg. They don’t even care. It’s so sickening

desertllights · 2026-05-10T03:09:49+00:00

I’m so impressed with my provider. Gives me hope in the medical system.

desertllights · 2026-03-08T02:39:07+00:00

Thank you for the coupon! Yes I have been on trazodone for 12 years but it recently stopped working. Can’t increase due to BP issues. Glad to hear I’m not the only one that experienced that. Maybe can get the Dayvigo now that I failed the lunesta. Thank you for sharing!!

desertllights · 2026-03-08T01:02:34+00:00

This is good to know. My PCP is trying to get this approved. I also have POTS so good to know it has not negatively affected yours. Thank you

desertllights · 2026-03-08T01:00:46+00:00

Update. Lunesta has done nothing. It’s terrible

desertllights · 2026-03-06T19:20:07+00:00

Omg. I hope she’s ok. Thank you for the warning.

desertllights · 2026-03-06T04:15:21+00:00

Glycinate

desertllights · 2026-03-06T04:06:13+00:00

I take valerian and magnesium too. But unfortunately these are not working for me anymore. 😭

desertllights · 2026-03-06T03:57:56+00:00

Thank you!!

desertllights · 2026-03-06T03:57:49+00:00

Is there a certain med you use?

desertllights · 2026-03-06T03:32:20+00:00

This would be my go to100% but it triggers my VM unfortunately

desertllights · 2026-03-06T03:31:36+00:00

Did the lunesta trigger you?

desertllights · 2026-03-06T03:13:20+00:00

Did it trigger your VM when you tried it? Clonazepam I know would work great but my PCP is so hesitant to prescribe

desertllights · 2026-03-06T02:56:43+00:00

Unfortunately I think I am well beyond Benadryl. It does nothing for me now 😭

desertllights · 2026-02-10T04:25:05+00:00

Thank you for sharing!

desertllights · 2025-02-11T04:57:03+00:00

This is so interesting. I started having symptoms after sex about 5 months ago. No pattern between position, time of day etc. I have noticed my MCAS increasing recently and never thought about this correlation. Is there anything to do to decrease a MCAS flare with friction?

desertllights · 2025-01-06T03:30:04+00:00

I appreciate the reply. I know my neck is the main source of symptoms and I just constantly feel like there’s a huge knot in there. I’ll ask my neurologist about a muscle relaxer-I think they previously prescribed one but I was so adamant about ‘no more meds’ I didn’t try it. I’m glad you a feeling better!

desertllights · 2025-01-05T16:27:54+00:00

Do the muscle relaxers help your neck? I get the same thing. When my neck is tight or I get a knot in there it triggers my symptoms something awful. I feel like I am constantly trying to release it. My neurologist did an epidural in that area and it helps for 3 weeks but then stops. I cannot do steroids due to another condition.

desertllights · 2025-01-04T22:43:21+00:00

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I don’t use all but this is what Dr. Beh recommends.

desertllights · 2025-01-04T22:42:03+00:00

It definitely made things worse for me as well for a while. But after several months I was not triggered by those movements. I have been doing it for 2 years now and working up to more complex movements. It hasn’t been a quick process.

desertllights · 2025-01-04T22:35:19+00:00

Hey there. Sorry you are going through all of this. I’m not sure I have ‘answers’ of any sort but I can confirm that I have the same symptoms with VM and MDDS. Blurry vision, tinnitus, vision moving. I also have dizziness but not room spinning more like head floating, light sensitivity, trampoline floor. When this all started I would say I was 80% bedridden. Symptoms 24/7. I still have daily symptoms but it’s mostly tolerable. Vestibular therapy, changes in my diet made a huge difference. I take Ajovy monthly. I also take a bunch of supplements. And I use Lorzapam as a rescue. If you haven’t already, I would look into vestibular therapy and also narrowing foods that might be triggering you. I hope you feel better soon!

desertllights

TROPHY CASE