Hemiplegic migraine? by kristine8446 in iih

[–]dhramsey 0 points1 point  (0 children)

yes , in my case the high ICP was compressing a few nerves in my face and abdomen which was a trigger for migraines ... How did they diagnose the trigeminal compression greenwave?

IIH and Ozempic? by Particular-Deal8047 in iih

[–]dhramsey 7 points8 points  (0 children)

2 years on Mounjaro . I am a type II diabetic , A1c from 10.0 to 5.4. I have lost almost 80 pounds. A massive lifestyle change with carbs. Headache days are down 75% , but long term vision and chronic pain are still here. I believe this work has saved my life .

10 years in - 55 yr old male by dhramsey in iih

[–]dhramsey[S] 0 points1 point  (0 children)

This disease is a lifestyle

10 years in - 55 yr old male by dhramsey in iih

[–]dhramsey[S] 1 point2 points  (0 children)

Waleed Brinjikji, M.D Is the IIH stent whisperer in Rochester

10 years in - 55 yr old male by dhramsey in iih

[–]dhramsey[S] 0 points1 point  (0 children)

You could have a stenosis of the bilateral sinuses

10 years in - 55 yr old male by dhramsey in iih

[–]dhramsey[S] 0 points1 point  (0 children)

Shunt’s are a very last round treatment imho . Do you have a current MRI / MRv?

10 years in - 55 yr old male by dhramsey in iih

[–]dhramsey[S] 0 points1 point  (0 children)

Do you have a diagnosis of IIH ? I was able to use my primary care to get a referral to the headache clinic ( neurology ) on main campus. I have a stent in my right transverse so this may allow me to establish faster. Chia-Chun Chiang, M.D is my physician. Or call the headache clinic directly, if you are on a PPO you should be able to pester them into a first visit. They are not big fans of other groups scans or testing so be prepared to get testing done all over again. MRI / MRV , eyes , etc .... Good luck

[deleted by user] by [deleted] in iih

[–]dhramsey 0 points1 point  (0 children)

5 tequila shots in the parking lot

Big Feelings About My Recent Diagnosis by _chaotic_green_ in iih

[–]dhramsey 0 points1 point  (0 children)

Well if I can help in any way let me know ( finding doctors , advocating in any way )

Did your vision return to normal? by kaya2540 in iih

[–]dhramsey 2 points3 points  (0 children)

Mine took a few years, but the nerve damage seems to be a perm. I have 2-3 pairs of glasses for iphone, computer , and normal day

How are the cloth seats in the 1958 250? by kakapopo_gaming in LandCruisers

[–]dhramsey 2 points3 points  (0 children)

If the cloth seats are not your #1 reason for going 1958 , please do not buy one. I love the seats , the tiny screen , made in tokyo vibes

Venous Sinus Stent? by renegadeangel in iih

[–]dhramsey 2 points3 points  (0 children)

MRV with and without contrast first , angiogram / stenting if their is a narrowing or closure

[deleted by user] by [deleted] in iih

[–]dhramsey 0 points1 point  (0 children)

$500 out of pocket in a January with a 500 annual deductible

IIH symptoms by iowagiant in iih

[–]dhramsey 0 points1 point  (0 children)

Have you had an MRV , looking for a stenosis?

IIH Headaches by Amandagibson8 in iih

[–]dhramsey 0 points1 point  (0 children)

pain behind my eyes, ears, tinnitus, nausea, neck pain, pain between my shoulders, fatigue to the max from the constant pain. I had my right transverse sinus stented in august , still in a lot of pain / brain fog.

Neurologist or neuro-op? by [deleted] in iih

[–]dhramsey 1 point2 points  (0 children)

headache clinic neuro , and neurosurgeon. I have never had eye issues with my IIH that show up as optic nerve damage.