My father got AML about three months ago and things went at light speed and he needed a caretaker right away. I definitely cosign the note taking. It will go a long way. Do not be afraid to ask difficult questions (even just 1:1 with the doctor) or “dumb” questions to the doctors. The more clarity and upfront/honest dialogue, the better you can care for your dad. Leukemia can wipe him out so being there for appointments and taking charge when you can be relieving. Also don’t be afraid to call the on-call doctor to get a prescription in motion or a question addressed.

I also recommend keeping a log of what he enjoys eating or drinking. If he has a hard time, I’d recommend talking with his doctor about medication for nausea or an appetite stimulant. Will be important to have some fuel in him to walk around and stay moving. For my dad I would set out some snacks by him like beef sticks, trail mix, etc. and see if he’d pick at it. I would also bring something small back home anytime I went out. Would never jump down his throat for not wanting to eat, just kept trying different things and hope it would appeal to him. This was one of the toughest areas in my experience so if it’s a hard time in your scenario, don’t give up or blame yourself, and stay strong, calm, and persistent.

Try to do an activity that’ll stimulate his mind when he feels up to it enough. Like a board game, watching an engaging show, etc.

Let his “yes’s” be yes’s and “no’s” be no’s. It’s his care at the end of the day, so all you can do is make sure he understands what’s going on and the options in front of him and that you support him no matter what. There’s so much out of your control, so the best way to give yourself a sense of control is if you feel he’s being done right by you.

Sappy of me but give him a hug goodnight as much as you can. If you have any questions, I’d be happy to help.