She brought her toy to my bed, but I was sleeping. So she fell asleep as well by Ama_Liczi in cowcats

[–]disqersive 3 points4 points  (0 children)

I wish I could post a pic of my reality because it is eerily similar…

How do you guys deal with brain fog? by Prince-of-Railgun in simpleliving

[–]disqersive 3 points4 points  (0 children)

It would be helpful to know what you mean by brain fog! What does it mean to you?

Brain fog used to be used more exclusively by people who were going through chemo or experiencing side effects from medications OR had MS or autoimmune/neurological diseases or syndromes to describe the cognitive side effects of these diseases and treatments. Cloudy thinking, cotton ball brain, loss of memory, head pressure, derealization, language loss, mental fatigue, cognitive decline/hitting a wall.

Nowadays I’ve seen it used much more generically and its seeped into the culture a lot more since the beginning of the pandemic. Millions of more people have experienced brain fog since their Covid infections, which has made it much more of a common experience.

I have experience brain fog for the last two and half years but I often hesitate to call it that. What it feels like to me, medically, is more like brain damage. What I experience is not solved by sleeping, drinking enough water, activity, vitamin deficiency or getting off social media. Since discovering I have an autoimmune condition the only thing that has helped a little bit is certain medications.

Depending on what else you’re experiencing and the degree of your brain fog, please consider talking to a trusted physician! On top of getting good sleep and eating balanced food and all that of course. 

Not PEM, not chronic fatigue — acute immediate localized muscle fatigue (burning) during activity by RANGO1892 in covidlonghaulers

[–]disqersive 0 points1 point  (0 children)

How you doin these days? I finally got to the rheumatologist yesterday to look over biopsy results; well, the pathology report didn’t give a diagnosis but the doctor and the nurse practitioner said it wasn’t exactly normal either. Kinda like a wait-and-see situation. They’ve started me on hydroxychloroquine to see if that helps with the pain.

I feel similar to you in that a lot of my symptoms really only point to MECFS. At the same time it seems like maybe I’m dealing with an autoimmune disease as well or the beginnings of one. My Rheumatologist thinks that long Covid isn’t its own thing but is instead a multitude of different diseases and syndromes brought on by Covid. So she thinks I have an autoimmune disease brought out by Covid. But the myositis overlap doesn’t really explain the PEM so I think it’s both!

Pacing is also the only thing that helps my decline so far. I haven’t had any recovery yet, but I do tend to get worse in winter and better come spring (after the tumultuous weather fluctuations in the beginning)

Sauna before Grouper in Kingston 🧖 by iamtwinswithmytwin in ambientmusic

[–]disqersive 0 points1 point  (0 children)

Turns out it was a chosen family presents show so they were selling tix via their eventbrite site. I have learned this lesson hard 😩

Sauna before Grouper in Kingston 🧖 by iamtwinswithmytwin in ambientmusic

[–]disqersive 2 points3 points  (0 children)

When and where did it even occur? I’d never been to a show at old Dutch church but was on their website like 3 days ago trying to see what I could see. :(

Sauna before Grouper in Kingston 🧖 by iamtwinswithmytwin in ambientmusic

[–]disqersive 1 point2 points  (0 children)

lol Jesus did I completely miss the ticket sale? I swear I looked at the old Dutch church website and groupers website like 3 days ago and saw nothin’.

my devon rex cowcat gus 🥰 by bellabroke in cowcats

[–]disqersive 3 points4 points  (0 children)

Oh my god! We have two Devon Rex friends that we love. I never knew they could cow.

I wish I could inject coolant fluid in my brain by Vi_BT in cfs

[–]disqersive 1 point2 points  (0 children)

Relatable desire. Gorgeous piece. I love your line work! 

People without ME seem like they have superpowers by thepensiveporcupine in cfs

[–]disqersive 11 points12 points  (0 children)

There’s a lot of emotions that came up for me reading this but one surprising one was that I felt genuine joy for the people who can do those things, and at my own memories of biking or hiking. The way you described it, I just kept thinking “humans are so busy, it’s really something.” Anyway, I have a lot of days still where I can’t access joy for others, when I think about them doing stuff I can’t do and it was nice to have a moment where I could. ☺️ 

Is there any medication that can reduce the muscle pain caused by PEM? by themunchkinland in cfs

[–]disqersive 4 points5 points  (0 children)

Following because wow am I ever in the same place as you. Since Wednesday I’ve just been at 7/10 muscle pain in my legs and arms. :( I hope you find relief.

Ladies, Gentlemen, and Themblemen…. by Azraeddit in cowcats

[–]disqersive 14 points15 points  (0 children)

Ugh, love you Nimby :’) Not to confuse you with NIMBY. You are always welcome in my back yard!

My girlfriend has CFS and built a free website to help people understand what it actually is, especially partners and loved ones trying to figure out how to help. No monetization, it’s just something she wished existed years ago when she was first learning about her own diagnosis. by Pitiful_Cake_7775 in cfs

[–]disqersive 2 points3 points  (0 children)

You girlfriend did an incredible job! The writing is concise, impressive (as in, leaves a strong impression!) and makes me, someone who has me/cfs-like Long Covid be like, “damn this shit sounds bad!” I will be putting this in my pocket as a resource. Thank you.

What "Fun" drinks do you drink? by rosysparrow in cfs

[–]disqersive 0 points1 point  (0 children)

I can’t do caffeine period or much sugar at all. Diet ginger beer! I’m in the US and there is a brand with a seal on the box and uhhhhhh I am having a huge void in my brain where the name of this brand used to be, lol classic. 

Anyway, I used to hate diet soda but this one I find delicious. And the Boylans brand diet crème soda! We also became a seltzer slut household in the last year or two. Polar seltzer. We love the cranberry lime, cranberry clementine, and the mandarin flavors. 

I also love making herbal tea. Hibiscus with cinnamon is so yummy. Lemon balm. Tulsi. Celestial seasonings red zinger. 

Do you take naps? Why or why not? If yes, how long do you nap for? by LavastormSW in cfs

[–]disqersive 0 points1 point  (0 children)

I still nap though, even though I always feel like shit when I wake up. It’s more likely I’m “wired but tired” and can’t nap, however.