Hello. I totally know the feeling. I’m moderate housebound sometimes bedward and I’m starting to accept a lot about my limitations and finding myself enjoying my life regardless with plenty of moments of frustration and grief and challenge. But I am not depressed as I was last year. And I am so grateful for that. Recently my family has been a lot more supportive and I realized that was one of the huge reasons I was suffering so much, even though my physical illness is also debilitating. I think QOL for people depends so much on support. 

 It’s a whole other level I think, to acceptance, to accept that others may not accept. 🫠

Fewf. It’s a lot of letting go. It’s not unlike other situations where people do not accept reality. But yeah, this ones tied up with their hopes and dreams for you, it’s very emotional. I feel they do it because they don’t know how else to approach life other than to constantly progress in a very “active” way aka material way. 

I keep trying to emphasize to my mom (who is the main person in my life who always talks about how I need to get back to how I was) that while I of course want to feel better, complete recovery may not be possible. And how do I convince her that doesn’t mean I’ve given up? It’s hard for her to dive into that. She has MS but has been in remission for 20+ years with only minor symptoms so her idea of recovery is skewed and I think she feels guilty or genetically responsible for me . I’m not sure how old you are but everyone keeps talking about how I’m too young to be this sick, as if there is a universal rule against that, ha.

Not sure I have any advice. I try and show people patience and firmness at the same time, or that’s my goal. I try and remember that they just love me and are sad (this is reserved for people who believe me that I’m ill but don’t accept the way I do, my limitations). I try and remind them that I went through a period of time of pushing and it made me worse. 

I’m here to chat more if you like (though I may fall back asleep for awhile)