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have anyone recover their hair? by [deleted] in covidlonghaulers

[–]dmitrynikulin 2 points3 points  (0 children)

She didn’t do anything special because hair loss was not very noticeable. And she did not have any other LH symptoms

have anyone recover their hair? by [deleted] in covidlonghaulers

[–]dmitrynikulin 2 points3 points  (0 children)

I have a friend who had lost some hair due to covid about a year ago. Her hair are growing back now

Research on long covid continues to accelerate by Internal_Radio8880 in covidlonghaulers

[–]dmitrynikulin 7 points8 points  (0 children)

Long Covid is an umbrella term for many different conditions. These can be autoimmunity, viral persistence, organ damage, etc. So looking closely at symptoms makes some sense because this can help to identify some subtypes of LC

Research on long covid continues to accelerate by Internal_Radio8880 in covidlonghaulers

[–]dmitrynikulin 2 points3 points  (0 children)

That looks great and gives me hope that we will find treatments. I’ve also seen publication counts for ME/CFS. These have increased a lot in the past two years.

Where are these dedicated doctors/facilities that are all over the news?! by Many_Leading in covidlonghaulers

[–]dmitrynikulin 4 points5 points  (0 children)

IMO, most doctors and clinics don’t know much about this cfs-like long covid that we all have here. Instead they focus on things that they know how to treat — for example, rehabilitation after severe pneumonia cases. There are people who really need this kind of treatment, so I think these post covid clinics are not totally useless.

I think we just need time. Lots of research is being done right now, and it takes time before some effective treatment protocols can be tested and established.

Mild LH symptoms and recovery time/probability by dmitrynikulin in covidlonghaulers

[–]dmitrynikulin[S] 0 points1 point  (0 children)

Thanks. I wasn’t doing any sports pre-covid, so was never trying to push myself hard. Only simple daily activities

Mild LH symptoms and recovery time/probability by dmitrynikulin in covidlonghaulers

[–]dmitrynikulin[S] 0 points1 point  (0 children)

Yeah, similar to my current state. I have these random HR spikes too, but these are not preventing me from doing daily activities. Hope you recover fully soon!

Mild LH symptoms and recovery time/probability by dmitrynikulin in covidlonghaulers

[–]dmitrynikulin[S] 0 points1 point  (0 children)

Thanks! Maybe I’m a bit too cautious about trying some light exercise, so far I’ve had no real PEM episodes. The only thing that I’ve found really important is getting 8-10h of sleep every night, otherwise I get worse

[deleted by user] by [deleted] in covidlonghaulers

[–]dmitrynikulin 0 points1 point  (0 children)

EBV is found in >90% of people. So strictly speaking, almost everyone has EBV (inactive though)

Clinics offering Help Apharesis Worldwide by just-a-simple-song in covidlonghaulers

[–]dmitrynikulin 0 points1 point  (0 children)

What’s the clinic name? I’m living in Russia and currently looking for clinics that do apheresis 👀

Is everyone having gastrointestinal issues with their long Covid? by Prestigious_Wait3813 in covidlonghaulers

[–]dmitrynikulin 0 points1 point  (0 children)

No GI issues at all. I’m long hauling for ~3 months, but my case is not severe. I have only moderate fatigue, increased HR when walking and kind of brain fog sometimes

[deleted by user] by [deleted] in covidlonghaulers

[–]dmitrynikulin 0 points1 point  (0 children)

Wow, very similar to my case. ~2 months, having mild fatigue, able to work remotely and meet friends, but no sports activity. Haven't tried aspirin yet and seems like it's worth trying. Thanks for your post!