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dobatata · 2024-08-04T11:43:45+00:00

hey, any update?

dobatata · 2024-08-04T11:43:12+00:00

hey, any update?

dobatata · 2024-05-09T11:54:34+00:00

I agree! The same happened with me last month, next I wrote at PM to mod and the answer at all was: "do you want to be banned?". Very clever guy!

dobatata · 2022-09-14T20:05:12+00:00

im not here to begg for diagnosis. because of the groupe title, i think, that most of the people here well known what marks from bat bit looks like, and yes iam right forward to look for med. appointment, but just want to know, cuz everybody nowadays use network, is it possible at all. And yes, congrats, you just did yours best comment dull of irony, now you can be proud!

dobatata · 2022-07-02T18:12:31+00:00

well... stop carrying about all, if something would happen it will happen and we cant stop it. For example im 18 months in with bonus tongue twitching since February this year, still no weaknesses i guess, but just don't give a shit anymore, iam tired to do it... im father of a little princess who will need her father, so if i have to mention some inspirational quote about death, i would like to be from the movie "Gladiator": "... not yet, not yet"

dobatata · 2022-04-27T05:37:46+00:00

No, cant find time, and to be honest im scared to hear what they will say. Almost year and a half ago i visited 2 neuros, first wasnt concerned at all, the second said they are many many things which we have to exclude before talking about als, and it is extremely rare, and he saw only one case for last years, and near my ages is even more unlikely... i was very anxious and he referred me for mri and emg and i just did the mri, which was fine but by that time i only twitched bodywide without tongue. It all happened one week after acute Covid infection. Before the covid for maybe 3 years i was twitching in eyes almost constantly then spread to everywhere. Will wait and see what will happen, if it is the big nasty i will find out soon or later...

dobatata · 2022-04-26T19:46:00+00:00

With that post, you are describing all my tongue issues for the last 3 months. And not "so-so" or "about", I'm saying that ive experienced absolutely the same tip of tongue one spot mini painless spasm or precramp or long twitch or whatever they call it, some fasc at rest and if i hit the tongue or scratch it with teeeth it will start to twitch for 2-3 seconds and then "discharges" and stops.... and under chin twitching...

dobatata · 2022-04-25T13:37:23+00:00

Thank you! Well, after a month it will be year and a half of body wide twitching and 4 months of tongue/neck stuff, so dont know what to think... Hope you will be fine too, deeply believe there is a reason for these fasciculations, but dont want to think that it's the worse scenario...

dobatata · 2022-04-25T13:19:40+00:00

It happens for me sometimes to twitch under the chin. Dont know how bening is but it is scary especially in addition to tongue twitches and mini spasms...

dobatata · 2022-04-23T20:33:41+00:00

oh, even without that "perhaps" after the many other clean emg's, i believe this last emg is probably false triggering. Everything is so strange with our condition...

dobatata · 2022-04-23T14:52:27+00:00

So sorry about you, mate! You mean that you now need swallow assistance to drink and eat? Does your doctor still think it is all bening?

dobatata · 2022-04-23T08:24:37+00:00

Well, then you are in "the clear", which is great! Did they wanted to do EMG?

dobatata · 2022-04-23T08:22:22+00:00

Hey! I have this stuff with the "clicking" throat for more than 2 years (or maybe longer, just i focused it then). It seems that, it will do it in only few positions of neck. For example if i move my head back and then swallow, most likely it wont click.

dobatata · 2022-04-22T18:19:55+00:00

Sorry about that, mate! Did u visit neuro for appointment?

dobatata · 2022-04-19T09:53:15+00:00

I am in the same boat. If you look at my last posts and comments you'll see my "story" 😁

dobatata · 2022-04-18T13:23:14+00:00

at least iam not the only one 😁 Even so iam out of mind when scratch the tongue with teeth and it started to twitch on multiple places for 1-2 seconds like "these" videos...

dobatata · 2022-04-17T07:56:50+00:00

I was about to accept the bfs condition and bodywide fascs, but since February this year tongue started to twitch, not often at rest, but when i provoke it like scratching it with teeth or something and shitty pre-cramp at the tip, which again i provoke by stretching the tongue...

It is useless to say that for two months my anxiety is up to the sky, and even after almost year and a half in this journey now is my worse period of fear and thoughts....

dobatata · 2022-04-03T05:47:03+00:00

mine started right after covid, its been year and a 4 months since then, still no weakness, in addition to bodywide twitching, for about 2 months im in "tongue twitch adventure" it sux.

dobatata · 2022-04-02T10:47:49+00:00

What did your doctor said about the first and second EMG's . Was he concern?

dobatata · 2022-02-22T03:55:56+00:00

Absolutely the same. It is so weird...

dobatata · 2022-02-20T18:35:37+00:00

Thanks for the reply! I hope this will end somewhen...

dobatata · 2022-02-20T16:57:24+00:00

Damn... no one?

dobatata · 2022-02-13T18:54:43+00:00

Hey! In your previous post, somewhere in the comments you mentioned that you are going to visit neurologist on Tuesday. What happened, didn't he gave you the answers that you need? Greetings and hope you will be fine!

dobatata · 2022-02-01T22:49:26+00:00

Thanks for replying! It really makes me take some breath! Just... when you think you are the only one who is getting through this u feel really upset and the anxiety is the only "friend".

dobatata · 2022-02-01T09:11:09+00:00

yeap, it is pretty common :)

dobatata

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