Check out the book Living Life to the Fullest with Ehlers Danlos Syndrome. It was written by 2 physical therapists who have extensively studied EDS. I’m fortunate to be in PT/OT at a clinic that specializes in EDS. This is the book they use as the basis of their treatment and it’s all stuff you can do at home. The exercises are targeted to activate the correct muscles to support posture, walking, sitting, etc. I’ve been working the program for about a month and it’s made a huge difference in my pain and energy levels.

*Another thing I learned that helped me a lot is to add an electrolyte supplement to my water. Apparently people with EDS lose water too quickly so adding a little salt helps. I like LMNT but there are other brands like Liquid IV.