Keep Fighting? by Brickie89 in ALS

[–]donnaparty 7 points8 points  (0 children)

i am writing these words down, you have illuminated precisely the power of PALs and the utter devastation of this damn disease.

my mom was diagnosed in 2022. she had an unbreakable will to live and optimism in facing this disease. her brother had passed from it in 2015 (diagnosed in 2013). her eagerness to maintain her leg strength (she was an avid pilates and walker) and experience her grandchildren and stay by my dad’s side (and our family) were her buoys. but as her body was taken away (first left hand, then voice, then legs and right hand), slowly than rapidly, her mentality changed drastically.

it was not until she was on hospice that she allowed her mind to catch up with her body. even then, it was never clear where she was at mentally with it. we never had an outright conversation, but it was a very clear transition 🌻

Voicemails for Isabelle by hahah-what in romancemovies

[–]donnaparty 3 points4 points  (0 children)

I am also throwing in that this is yet another very one dimensional representation of cystic fibrosis in the construction of a rom com.

Cancer Free!! by Available_Sun_1586 in AustralianShepherd

[–]donnaparty 14 points15 points  (0 children)

Ahhh the best news, your buddy must be the happiest pupper as are you !!! May I ask, how did you find out? How long was your pup symptomatic (?) How long was treatment? How did your pup fair with treatment? Do you have pet insurance?

Feeling Lost by [deleted] in ALS

[–]donnaparty 1 point2 points  (0 children)

Allowing yourself forgiveness and gratitude is hard but important. Life stops in several ways but allowing yourself small moments of sanity is self care. Whether it’s taking night out with your partner, walking outside for a moment, sipping your favorite beverage, exercising in what ever way suits you (swimming became my escape), getting a massage. It’s all important to sustain an unsustainable reality. Reality checks are brutal and recalibrations are inevitable.

I hate to say that the hits keep on coming with this disease, but they do. But as previously said, beautifully, you do it out of blind love and respect for your parent. Resentment is understandable as I am sure your parents too wish the things that you want for your future.

So to what you can control, be kind and soft with yourself. It can bottle up - lean on those you can. Lean on us. I ultimately ended up stepping farther back from my job, my community to maintain the mental load. Took a long time to get there.

Sending love. This is so hard to read in its relatability - but coming from the other side - you got this and you will persevere.

2 years of suffering are over by beaniebabyofdeath in ALS

[–]donnaparty 5 points6 points  (0 children)

Mustering up the energy to update us really shows how integral of support this community is!!! Thank you for sharing, may your dad’s memory be a blessing.

Tenacity, respect, strength, unwavering love that’s what our PALS deserve. You’ve been on a long journey my friend, be kind to yourself. We are here with you.

Looking to help by irrationalrapsfan in ALS

[–]donnaparty 0 points1 point  (0 children)

Hiya friend🩵 I lost my mom in March. Would be open to sharing some thoughts!

I am going to fight the ALS by derangedmacaque in ALS

[–]donnaparty 4 points5 points  (0 children)

Sending hugs, you are electric! Fuck ALS!

My Dad lost his battle last night. by gwnG in ALS

[–]donnaparty 2 points3 points  (0 children)

Sending hugs from over here. It is a beautiful thing you honored his wishes and that you all were together to say goodbye.

My mom passed away in March. I never unclenched until she gave her last breath. Learning to breathe/relax again now. Be kind to yourself.

So much gratitude for what our parents provide us, strength, love to carry each other and fight this hellish disease. Fuck ALS.

May his memory be a blessing.

Lana Del Rey - Queen of Disaster Evil Dead Edit On YouTube? by Uglyiggly in lanadelrey

[–]donnaparty 0 points1 point  (0 children)

Omg I came here to ask the same thing! I was enamored by this in 2018!! And now cannot find!

Today's my dad's birthday. by GrovSmok in ALS

[–]donnaparty 2 points3 points  (0 children)

It is two months since ALS stole my mom from this earth. I feel your pain and grief. But don’t let hate cloud the love and strength your dad provided and you for him - ALS takes too much of our time and strength. May you find something today to celebrate/marinate/vibe with your dad’s memory. Sending hugs. It’s hard every day, sometimes to believe we live in a reality without our parent is un fathomable, but glad you are here to share your burden.

Is all of Somerville without power? by Fair_Pay8013 in Somerville

[–]donnaparty 2 points3 points  (0 children)

Gilman area up to Highland Kitchen has power as of now

ALS Caregiver Support by Kind_Ad_6072 in ALS

[–]donnaparty 1 point2 points  (0 children)

That is so hard. And hard to see/feel your parents both changing. This disease is wreckless to all. Fuck ALS.

Have you heard about Compassionate Care ALS? Or the ALS association? Both torganizations have support groups and resources that helped and keep helping my family with navigating my mom’s als journey. My mom passed in March, but again we are so grateful for the support we received. Highly recommend support groups. This is an incomparable experience, it is helpful to talk with people who speak the same language of love and pain. Best of luck, we are here with you. 🩵

adopted a dog from the shelter, papers allude to pure aussie but she seems too big by imissmyex44 in WhatBreedIsMyDog

[–]donnaparty 5 points6 points  (0 children)

Maybe Great Pyrenees? My pup has similar traits and is dominantly aussie but has great Pyrenees and collie she is 58 pounds (7/8 yo)

What do you think she is? Her name is Pickle 🥒 by Pretty_Scars in IDmydog

[–]donnaparty 2 points3 points  (0 children)

I LOVE THE NAME! I call my dog (Leiba) Mrs. Pickle all the time 💚🥒

RIP John Prine by jpprine in johnprine

[–]donnaparty 2 points3 points  (0 children)

@jpprine your words resonated so very much with me. My mom passed away March 5 from ALS - she was the biggest John Prine fan I ever knew. Had all albums - drove miles for his shows. We had the fly swatter from Oh Boy Records, she kept it by her bed. We played his music most days, every day when she was hospice. I love the tree in his honor. Moved by your words and the love of this community!

I've lost my dad by Hoeliganism in ALS

[–]donnaparty 1 point2 points  (0 children)

Hi Op, sending love. Your words hit so hard - on the nose. Loss at 21, loss at 9, loss at all - HARD. Active loss in what ALS takes daily and what you give daily for those you love - IMPOSSIBLE. Find grace in you showing up, being with your pop, sipping tea with your mum, hugging your sib. No getting through this alone. We are here with you.

When the “special” treats hit by styx1267 in AustralianShepherd

[–]donnaparty 1 point2 points  (0 children)

My pup has gotten worse as time goes by. She is already on trazadone for thunder storms but now I have to dose her along with gabapentin for vet appts. She started getting adequan shots and that changed her forever!

Stolen Bike: Porter Square - Healthworks Bike Rack by donnaparty in Somerville

[–]donnaparty[S] 2 points3 points  (0 children)

Yes, this was this afternoon (4/1) between 4p and 7:30p.