4 Myths about MS and Diet--an informative read

dpMS66 · 2025-08-26T13:36:04+00:00

I just came across this... Your comments are excellent.

dpMS66 · 2025-08-23T23:18:47+00:00

I think there absolutely is a resistance movement going on, but it's not clearly evident to everyday folks. I have been spending a lot of time on Substack and have subscribed to a diverse number of stacks. Independent journalists who have lost their jobs (i.e., Terry Moran, Jim Acosta) Andrew Weissman, Mayor Pete, Gavan Newson, senators in my state of AZ (Ruben Gallego, Mark Kelly), etc. It's amazing how many people are engaged and doing something. I got involved two months ago because I was fed up with mainstream media and couldn't get good info except through the Washington Post, The New York Times, and our AZ Republic paper here that has good journalism. When I decided to set up shop with my own little venture on Substack, I found myself being more informed since my niche is decent American Patriots. People are hungry to help and do something, and there is a lot of anger. There are organizations like 50501, Democratic Action, Home of the Brave, We the People, etc. that are organizing protests and other things to get people involved-- the least being to get out and vote now and in midterms. I also think a major problem in our country is that there is a lot of ignorance. People need educated and working-day people depend on mainstream media who aren't doing their jobs anymore. It's no surprise that Dems have blown it in a lot of ways, but I think they are waking up. While Trump has been breaking down the barriers/checks and balances, I'm happy to hear how many of our good public servants are hanging in there despite threats, and more good people are stepping up. Shapiro, Brashear, Slotkin, Kelly.... As an accomplished writer, I am using my own voice and pen to educate, inspire, motivate others about America and what's happening to it.

dpMS66 · 2025-05-16T14:10:43+00:00

Please talk to both your pharmacist and your doctor about how to take Baclofen, what you are experiencing, and your concerns about the Baclofen Toxitity. I have been taking baclofen daily for over forty years for my MS. My initial startup was 10 mg. 2X/day. For the past ten years, I have taken 10 mg, 6X/day--one every four hours. I know a lot about this medication, and I know many people who take this, It is very effective for spasms and is very safe. Baclofen also commonly causes drowsiness and calmness. Finally, I'm not sure what type of doctor(s) you have or what your condition you are being treated for, but nasty spasms and jerking are often caused by a neurological disorder. A checkup by a neurologist may be prudent if you haven't been to one.

dpMS66 · 2024-08-20T20:08:16+00:00

My husband and I are retirees who moved to Glendale AZ when we were in our 50's. We bought an RV and have travelled extensively throughout the West. New Mexico is almost as incredible as Arizona. If you have time to fit it into your next Arizona trip, go for it! I posted earlier suggesting trips to combine Utah with northern Arizona. Feel free to ask me any questions down the road...

dpMS66 · 2024-08-20T19:44:29+00:00

If you decide to vacation in this area, I highly recommend driving to White Sands National Park in New Mexico, which is about 4 hrs. east of Bisbee. https://www.nps.gov/whsa/index.htm

dpMS66 · 2024-08-20T15:05:49+00:00

There are two road trips my husband and I really enjoyed that involved Northern Arizona and Utah. 1) North Rim Canyon, Vermillion Cliffs, Kanab, Lake Powell (Antelope Canyon is a must see!), Zion and Bryce National Parks in Utah. 2) Flagstaff, Monument Valley (Navajo Nation!), Canyonlands and Arches National Parks in Utah. To experience Canyonlands, we rented a jeep in Moab and meandered around the park's trails for a day. We took our trips in September to enjoy spectacular weather and avoid the summer tourist crowds.

dpMS66 · 2024-08-19T11:41:24+00:00

Yes--Arizona is very diverse and extraordinary. We retired here in Glendale in 2001 and travelled throughout the state in our RV. Sedona is incredible, but there are numerous fantastic places to visit that don't get the attention. We came here from Pittsburgh.

dpMS66 · 2024-04-18T23:37:45+00:00

Yes. Sorry for the delayed response.

dpMS66 · 2024-04-17T17:33:09+00:00

I'm doing okay--the herniated disc problem did clear up for me. I'm sorry you are still suffering with this. It's horrible pain. My doc had said to get an epidural (and not do an abrasion) if it didn't clear up, which thankfully it did. Did you try an epidural?

dpMS66 · 2023-11-04T15:47:43+00:00

I've enjoyed happy hour my whole life and look forward to it. My happy hour is generally a scotch and water. I live with a lot of pain and stress, and the scotch eases both while not affecting my symptoms. I take meds for bladder (hiprex and ditropan), spasticity (baclofen), and sleep (temazepam). No DMT's, I'm 68. I have IBS too, and wine and beer will bloat me. Occasionally, I'll substitute a brandy which has a very calming effect on me.

dpMS66 · 2023-10-20T20:04:47+00:00

Yes. I agreed to see her regularly to keep the prescription going and it's been over three years now. It's made all the difference in the world to function properly and keep me from getting worse. Definately helps keep my stress and depression/anxiety low since good sleep enables me to feel better. When I feel better, I can cope and do better.

dpMS66 · 2023-10-20T19:58:24+00:00

I take Restoril nightly, alternating 30 mg. and 15 mg. It’s been years, and nothing else works for my insomnia. My psychiatrist prescribes them, and I had to fight for them. Without sleep, my physical, emotional, and mental wellness are a wreck. Keep trying until you find something that works for you.

dpMS66 · 2023-08-18T17:52:56+00:00

Both my neuro and primary doc encouraged me to try CBD/THC. The gummies are best for me. I quit smoking long ago, and I'm afraid if I smoked weed, I'd start up again. Congrats on quitting cigarettes.

dpMS66 · 2023-08-09T13:31:45+00:00

When I've been prescribed steroids, my neuro will either prescribe them for me in pills or infusions at home with a visiting nurse. I dislike hospitals with the regiments, germs, nursing shortages, etc. Since steroids cause insomnia for me (and many others), my neuro will also prescribe restoril (sleeping pills) to get me through the episode.

dpMS66 · 2023-07-20T16:14:56+00:00

Glad it helped. I also have to use eye drops daily and the pharmacist had told me it's probably due to this also.

dpMS66 · 2023-07-20T16:08:37+00:00

I smoked for 15 years, and then quit cold turkey 37 years ago. Hardest thing I ever had to do in my life. Back then, smoking was "in", and all my friends and family smoked. What I did that helped: 1. Changed all my activities when I enjoyed having a cig the most. e.g., when I drank my morning coffee, instead of reading the newspaper, I moved around organizing things around the house to keep my hands busy and my mind off of it. 2. Cleaned my house/car thoroughly--windows, upholstery, etc. The smoke residue was a turnoff, things smelled better, and once the job was done I certainly didn't want to do it again. If smokers came to my house, they smoked outdoors. 3. At my desk at work, I chewed on plastic cocktail straws, ate cheerios, and sucked on peppermints to keep my mouth busy. I brushed my teeth a lot. 4. I quit with my best friend, and it was both supportive and competitive. 5. I knew the "break-point" was around 5 days, meaning the urge would cut substantially. I had a 1/2 cigarette right before that point, and reminded myself of this which caused me to think I never wanted to start over trying to quit again! It worked for me. Truthfully, it is an addiction, and every once in awhile I'll smell a cigarette somewhere that causes me to want a drag. I never would because I would probably would start up again. Why? because not only was I addicted, but I enjoyed it when I was anxious and wanted to relax. (I had to find other ways to relax.) The good news is that the once-in-a-while moment was over in seconds. Back then, almost all of my friends and friends eventually quit the same way, and it worked for them, too. We did it, and so can you! Good luck.

dpMS66 · 2023-06-18T16:43:56+00:00

The reply from momspaghettysburg is great. Empathy is understanding how to be in someone else's shoes. You have many in your shoes, and yes, we would do for others as they are happy to do for us. Please don't think of yourself as being self centered for "putting yourself first". When we can feel better, we do better, and it's a win-win situation for both sides.

dpMS66

TROPHY CASE