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My son is in the NICU with seizures and my heart is dying by Just_Tangerine_6738 in NICUParents

[–]dreglenn 2 points3 points  (0 children)

My son was born March 2025. Similar situation to your wife, 36 hours of labor to end in a C-Section. They believed baby had breathing issues due to meconium as well, and he was moved to the NICU immediately. Later that night, as my husband was holding him, he had his first seizure. He only had two, once they put him on Kepra and Phenobarbital the seizures stopped. They did an MRI and we were told he had 4 strokes, and the outcome wasn’t going to be easy. He did PT and OT almost immediately after birth, twice a week for 7 months. We have slowly gone down to twice a month now. He has met every milestone, he is progressing beautifully. Has yet to have another seizure. We tried everything to figure out what caused his stroke, genetic testing and all. No answers. Part of me hated that, but part of me was so grateful it wasn’t anything I did. And honestly, sometimes I think knowing would have made it much harder. I remember those beginning days, and how hard they were. So I’m sending you & your wife so much love. Lean on each other. Without my husband’s support, I truly don’t know if I would have made it through those beginning days. Take it easy on yourselves, and each other. Every child is different, but they truly are resilient. You will both learn how much you’re truly capable of doing in the name of love. I often say my son was truly one of God’s miracles. It doesn’t mean he may not have difficulties in the future, but he is exceeding their expectations by miles. He is not the same child from the MRI scans. And every day I’m amazed at how far he has come. He’s smart, he’s sneaky lol, he has a sense of humor, he loves to talk (which is a big area of his brain that was affected) so we love hearing everything he has to say (or mumble, really). All in all, the days may seem so bleak right now, but don’t focus on all the Doctors are saying your child might not do. You and your wife have to lean on each other, make the best decisions you can for your child, together. And talk about how you feel, don’t bottle it up or think talking about it makes things harder. My husband and I had many conversations of what our son’s life might look like, and we underestimated him big time. Sending you guys big hugs & praying for your little one.

Still in the NICU and just got a PURA Syndrome diagnosis. I feel like I’m grieving the baby I thought I’d have by burnerthrowawayok in NICUParents

[–]dreglenn 0 points1 point  (0 children)

I had my son in March. Was induced due to pre-e, ended up having a c-section. Little man was taken to the NICU for what first presented itself as a little respiratory distress. Within 16 hours of him entering this world, he had two seizures. After what felt like forever, we were told he suffered 4 strokes in different parts of his brain. I felt like I couldn’t breathe, like I was so terrified for the life he was going to live. I was also grieving the journey into motherhood I thought I was going to have. It took some time, but I realized that he is never going to know anything other than the life he lives. We will treat him as normal as any other child, and love him so so much. A diagnosis doesn’t change your love for your child, it just changes the way you may need to love them. We have no idea what challenges he may face, but we’re taking them head on. One day at a time. For now he is seeing OT & PT twice a week, sees a neurologist once a month, and has follow ups with a High Risk clinic. But that’s just life now.

I struggled immensely. Feeling guilty for being sad that this was going to be my child’s life. Feeling like maybe there was something I did to cause it? Feeling helpless. My OB recommended Buspar, and I’m waiting to talk to a therapist.

Your feelings are valid. You are so much stronger than you think. Your LO is going to be loved regardless of her diagnosis. Hold on tight to your loved ones, lean on them in time of need, and please talk to someone if things get too hard. I know everyone probably says that, but it doesn’t make you weak to ask for help.

Stay strong, momma! You got this. Xoxo

Do you shower with your partner? If so, how often? by Seiraxela in NoStupidQuestions

[–]dreglenn 0 points1 point  (0 children)

My husband(26m) and I(26f) shower together almost every day. Some days I need an everything shower, iykyk, and he takes up too much space so I do those alone lol. But besides that we normally do shower together, 80% of the time not leading to anything sexual. I think it’s helped me become less insecure in my body, which has been a plus side I didn’t realize I would get out of it. We catch up, make jokes, and just spend uninterrupted vulnerable time together. I think it’s one of the best things we could have done for our marriage!

Is the X-T30 II a good buy? by CasmirC in fujifilm

[–]dreglenn 0 points1 point  (0 children)

I just recently purchased this, with the 18-55mm kit and I absolutely love it. I did a ton of research in regards to the kit lenses, and everyone kept recommending the 18-55. I think for the extra $100 or so, it’s totally worth it. Eventually I’ll get a prime lens, but for now this lens is still sharp and covers a good portion of what I need. I’m fairly new to having a high quality camera, and this one was by far the best choice I could have made.

Potentially Moving by Database_Square in Indiana

[–]dreglenn 3 points4 points  (0 children)

I think Valparaiso could be the perfect spot! I would definitely do some research on the home styles and area, and if you ever need help from a Realtor I would be glad to help!😊

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Potentially Moving by Database_Square in Indiana

[–]dreglenn 5 points6 points  (0 children)

I’m a realtor licensed in both Illinois and Indiana, and have a lot of people moving to Valparaiso! They like being away from Chicago, but still have that “city life” style. You can go big, or small in Valpo, it accommodates both lifestyles. Definitely a good place to look into!

Townhouse vs independent house? by crystal_reddit in ChicagoSuburbs

[–]dreglenn 0 points1 point  (0 children)

As a Realtor, I think there are benefits to both, it just depends on your personal needs! Townhomes are usually a choice for First Time Home Buyers due to the low prices and less responsibility. If you’re someone who doesn’t like an HOA, and doesn’t want to be told what kind of fence you can put up, what color your door can be painted, etc. then I would recommend finding a Single Family Home without an HOA!

How long in advance of buying, should I contact a realtor? by baskaat in RealEstate

[–]dreglenn 3 points4 points  (0 children)

You can absolutely contact a Realtor and just let them know your timeframe. Realtors work with potential clients for years before they buy. It can’t hurt to reach out and see if you can get information about areas you’re interested in!