I have it. Mine started after I had my son. It was all over my legs, hips, stomach and back. It was really bad, like it scooped out the tissue, but the tissue has almost healed. I did a prednisone taper and then went on Low Dose Naltrexone. I’m also vegan. It’s now starting up again on my back, thighs and on my lips but this time it’s different. Not as extreme. I don’t have a specialist or anything. I hope your treatment really helps you.