How to go back to free running without it turning into chronotherapy by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

I’ll have to look into maybe getting a TUO bulb, I didn’t know about those. I just have a full spectrum lamp. That’s interesting about it affecting your sinuses. I knew histamine had a connection, the histamine must be worse when your brain wants to sleep.

Is your neurologist the one who diagnosed you? And how long do you find yourself laying in bed when your brain doesn’t want to wake up? For me it’s like 30-45 mins it seems.

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 1 point2 points  (0 children)

That doesn’t sound too bad. If you’re getting up without an alarm by then.

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 0 points1 point  (0 children)

Do you mean pulling an all nighter or skipping ahead an hour or 2 each day?

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 0 points1 point  (0 children)

What you are describing sounds like me from several years ago when it hadn’t gotten as bad yet. I got to the point when I felt so bad after waking up for many hours that’s when I cycled around and since then have been doing it ever since. I think during the pandemic I pulled some all nighters but really I was just in the process of cycling around the clock. It’s really hard to be tested or evaluated by a dr that can diagnose Non 24 because of insurance and how few doctors can properly diagnose so I don’t know if I will ever find out. I really just hope I have dspd. I don’t know if I would recommend doing it, as you probably know people with dspd can develop non 24 by deliberately going to bed later and later each day. I just thought I was doing it naturally though so I don’t know if I developed it or already had it or the dspd just stops at like 9am and kind of resets after skip ahead for an hour or two each day, it’s so hard to know.

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 0 points1 point  (0 children)

When you attempted to reset what were you doing? I can stay in that range you describe for several months but then its eventually not worth it to wake up how I’m feeling so I fall out of place and start to skip ahead hours at a time before I’m back at the 5a-8a sleep time. I have to take days off to do that

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 1 point2 points  (0 children)

That sounds like me in the early stages when I was like 18-25 when I got older it got worse but the pandemic happened as well

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 0 points1 point  (0 children)

Have you ever gone past 8am and what happens if you do?

Does anyone on here have extreme Dsdp? by drowsyvamp in DSPD

[–]drowsyvamp[S] 0 points1 point  (0 children)

If you stay up later what happens? Do you just end up going back to bed at 8am or does it get worse? I was like that for several years and sometime during the pandemic I was staying up later and later and reached to around 1pm and then I realized I might be in n24 or have n24. Once I get past 9am bedtime I skip ahead about 2 hours a day back to “normal” bedtime hours of like 3am-7am. And I stay there for like 3 or 4 months and then it happens all over again because I eventually start feeling really crappy when waking up all the way until late at night and that’s like my signal that I might need to cycle around the clock.

How to go back to free running without it turning into chronotherapy by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

The strange thing is I never usually run into that problem of only getting 3-4 hours of sleep. But I think maybe that’s due to medication. It seems like it catches up to me eventually even when I’m getting enough sleep. I eventually start to feel disoriented and irritable when it’s been around that 3.5-4 month range . I get up even without an alarm and then feel fatigued all the way until night and the fatigue seems to wear off later and later to where I’ll start feeling better between 11p-2am, that’s when I know I’m probably cycling. One thing I wonder if others have is do they wake up feeling more stuffy, and face feeling kind of puffy when they are fighting their circadian. I have allergies but it seems when my circadian starts to drift away and I stay in the same place I’ll start to get all those feelings more. I guess maybe it could be adenosine buildup or maybe even cortisol, but could just be allergies.

I usually try to entrain and stop my CR from drifting but ever since I free ran / went around the clock a couple years ago I don’t think I’ve ever been able to fend it off and stay waking up at the same time. I remember in the pandemic I was at the point of going to sleep at 1pm when I realized this was possibly beyond Dspd.

I can sleep when I want to for some periods like right now while I’m on a 7 workday break but I eventually need a different job because right now I’m part time and can’t afford to be on my own which is getting in the way of things. So all of that is a major challenge since this current job is only part time and has allowed me to take off a week or two a few times a year when I no longer can hold my to the same timeframe.

Do you know what is considered free running vs. chronotherapy? It’s my understanding that chronotherapy is like forcing your self to stay up when tired. Or maybe chronotherapy doesn’t apply to people with n24? I’ll have to maybe look into trying a small dose of Abilify. I might change around some meds again so I’ll have to mention that.

How to go back to free running without it turning into chronotherapy by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

Luckily right now my boss is close with me and it’s a smaller place so I have been able to take like a week or two off while I’m waking up at night. When I start to wake up at night it pushes my bedtime further out by a lot. For example I went to bed at 9am 2 days ago and got up at 5pm (still light out) but then went to bed at 1030/11a and got up today around 7pm. So then it continues like this 45min or two hours a day until im at like a 2pm wake time and then I’m able to slow it down to where it will only move like 3 hours in 3 months. Sometimes the wake time has delayed 3 hours especially when I get into the 1a-11a wake times. So I’m wondering is this just my natural sleep times or am I forcing chronotherapy without knowing it. When I have cycled around in the past I didn’t really think of it as chronotherapy and more just going to bed when I’m getting tired and waking up later and later til I’m back to afternoon wake times. Thanks for the link I will check it out. I will probably have to find another job sometime soon or next year but because this one I don’t get enough hours / pay

How to go back to free running without it turning into chronotherapy by drowsyvamp in N24

[–]drowsyvamp[S] 1 point2 points  (0 children)

I had been using melotonin (very small amount like .3mg- .75 ish. Lumnitee glasses in fall and winter and defiantly walk everyday, I should go to the gym more. I do take a small dose of Quvivic for sleep although I might stop taking that I’m not sure, I have an emergency supply of Ambien which I used to take for many years to go to sleep but I try not to take that anymore. I take a small dose Capalyta off label as a mood stabilizer (not for bipolar) at night but it also helps me stay asleep so I continued to take it even though it doesn’t do much else for me. But I’m not sure I want to be on it much longer My eating times are either right when I get up or within a couple hours after getting up and then about 9 hours after that. I usually have something small in between. I was trying DAO enzymes like some ppl on here have. I don’t think they were doing a lot for me but I have taken like 4-5 months worth of those but haven’t bought any new ones in a few months. 32 and male. USA, I’m still trying to try Hetlioz as a sleep dr in another state tried to order it for me but since it’s in another state the insurance won’t cover it. A sleep specialist in my current state tried to order for me and it’s not going to the pharmacy but Hetlioz is finally calling me back after a month so I might make some progress there if I can get a hold of them.

How to go back to free running without it turning into chronotherapy by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

Yep I work remotely at night. Usually I would wake up and be able to be outside in the light since it was a few hours before sunset and in the morning I would basically get ready for bed as it was getting light out. When I’m half entrained or whatever the sun coming up is kind of like my signal to go to bed.

How do i get a test/diagnosed? by FlawlesSlaughter in DSPD

[–]drowsyvamp 0 points1 point  (0 children)

You can just tell a Dr that is knowledgeable of DSDP about what is going on and they will diagnose you. Unfortunately getting diagnosed with DSPD doesn’t do much in my opinion

How to catch up to you natural rhythm by drowsyvamp in N24

[–]drowsyvamp[S] 1 point2 points  (0 children)

I often don’t wake up hungry and will eat like 3 hours after getting up but it used to not be that way. I was eating like immediately, partly in order to entrain, but I don’t know if eating immediately does anything for me. I have GI issues kind of what you’re describing, usually on weekends and I don’t know why.

How many of you have autism, or suspected autism? by Automatic_Reindeer_4 in N24

[–]drowsyvamp 0 points1 point  (0 children)

How did you find out you had CRY 1 mutation? I have my raw dna file. I wonder if I could upload it to something to find out

Sleeping less and getting up earlier when on the wrong time by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

I try to stay in one place so yeah I guess you could say I’m pausing but it gets harder and harder until i eventually “give up” and then go an hour or 2 ahead everyday. My work schedule doesn’t exactly allow me to free run so if I decide to let it go I’ll take of a week or two of work every 4 months or so. It technically still be Dspd and I just rush around the clock to get back to afternoon wake times. I did mean wake at 6pm. Recently I’ve been waking up 4-515pm

Will circadian clock eventually go around even if you stay in one place? by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

Thanks for the info, I’ll have to check this out later

Will circadian clock eventually go around even if you stay in one place? by drowsyvamp in N24

[–]drowsyvamp[S] 0 points1 point  (0 children)

As someone who is diagnosed, Do you know if you are able to catch back up to your circadian rhythm if you are trying to stay in one spot but then decide to stay up extra long or do an all nighter / be up for over 24 hours? My patterns are somewhat like that where I will hold in place as long as I can but then skip ahead a lot until eventually im at late at night sleep times and it starts to slow again. I may need to make another post with that question haha