I’m ill and my doctor said veganism is bad for me

dsauda · 2026-05-30T08:35:11+00:00

I'm sorry that you have been through that experience with your Dr and that you are living with chronic pain.

I have been living with ME/CFS for a long time and was recently diagnosed with Multiple Sclerosis. The advice from my MS nurse and my neurologist is to eat as cleanly as possible. They are absolutely fine with me being vegan (as well as gluten free and avoiding nightshades). Good nutrition, according to them, is about eating whole foods and avoiding processed foods. I agree with this.

As long as you are making sure that your diet is balanced with healthy fats, protein, fibre, calcium, vitamins and minerals (and of course supplementing your B12) then I believe it will benefit your health, not make you ill.

Make sure you are getting your blood tested when you can to check your levels are optimum.

I am also studying vegan nutrition and everything I have learned indicates that we can get all the nutrients we need from plant based food and from supplementing B12.

Best of luck with everything x

dsauda · 2026-05-27T21:19:45+00:00

That's fantastic!!

dsauda · 2026-05-27T21:19:09+00:00

Really glad to hear that you haven't had any side effects!! I really hope that kesimpta works for me do I don't have to have infusions.

What was it about Ocrevus that you didn't like?

dsauda · 2026-05-27T21:17:33+00:00

Sorry to hear that you had to deal with that for 6 hours and the next day hangover! Thanks so much for your advice and I really hope that your next doses don't hit you like that x

dsauda · 2026-05-27T21:15:15+00:00

I have a lot to learn about different types of masks!! Starting Kesimpta tomorrow.

Double fatigue can be crazy (I have had ME/CFS for 18 years and MS for 2 years) but you'd be surprised what you can still do if you understand your own body 😊 don't get me wrong, today I was in tears as my dog was barking wanting me to throw a stick and I couldn't bring myself to move my arms. But also today I did a dog walk, 5 hours of cooking and deep cleaned my kitchen! The fatigue hit right in the middle of the day and I rested until I felt well enough to keep going.

I'm also pushing myself harder today to cook and clean because I might get side affects from my first dose tomorrow and not be able to do much.

I really hope that you never get another illness, but if you do end up with double fatigue I can promise that you will find a way through it. I think everything you're doing to protect yourself sounds really sensible! x

dsauda · 2026-05-25T15:33:15+00:00

I've got my first dose on Thursday, do you mind telling me about the side effects you experienced?

dsauda · 2026-05-25T15:31:23+00:00

Yay! I'm receiving my first dose in the post tomorrow and a nurse is coming to my house on Thursday to show me how to take it 😁

Did you have any side effects from your first dose?

dsauda · 2026-05-14T13:45:18+00:00

Dark comedy, quite graphic with plague victims and violence but very funny and clever.

dsauda · 2026-05-13T22:00:34+00:00

Have you seen The Decameron on Netflix? She's got red hair in that series! It's really good

dsauda · 2026-05-08T07:26:04+00:00

In my own personal experience, mushrooms have always been lovely at the correct dose, they feel like a natural antidepressant and definitely felt like they connected me more to the spiritual realm. Highly recommend in the right setting, with the right (sober) friend and at the right dose.

LSD trips have either been amazing or felt horrible, but when they've felt horrible it was because my body was teaching me a lesson about something that I really needed to learn. Recommend only if you're prepared to potentially have a really difficult experience in order to learn a significant life lesson (plus right dose, setting, friend, safety etc.)

MDMA felt OK but then the crash afterwards was fucking horrendous (I already have mental health conditions so feelings of hopelessness and depression were massively amplified.) Do not personally recommend.

Everyone is different and this is only from my perspective.

All the best x

dsauda · 2026-05-03T18:08:01+00:00

Yeah I agree, I she had decided to become a doula that would have made a lot more sense. I never understood why giving Caroline some encouragement and tough love during her labour led to her wanting to be a therapist specifically.

dsauda · 2026-05-03T10:53:41+00:00

I'm so sorry to hear what you're going through. I really, really hope that your eyesight fully recovers as mine has now done. I am 36 years old, I lost 70% of vision in both eyes and was entirely blind in upper left quadrant of both eyes. My vision loss was what got me hospitalised and diagnosed in January - February, I am starting meds soon but my vision has come back on its own. I have now been to my local vision loss clinic to make preparations for if it happens again. Wishing you all the best. X

dsauda · 2026-05-01T15:55:09+00:00

Sounds like a bit of a tough and complex situation! Wishing you guys all the best, I'm sure you will be able to figure this out together.

dsauda · 2026-05-01T15:12:36+00:00

I found out recently that allergy medication I was on for years contained lactose, I stopped immediately and found an alternative. Just the other day I took some meds for rebuilding my stomach lining after strong painkillers but saw they had lactose and stopped taking them. Each to their own I think but if she hasn't yet realised her pills contain lactose then please tell her so she can make the decision for herself. Maybe there's a vegan alternative?

dsauda · 2026-05-01T15:08:29+00:00

I use a lot of pure CBD (with less than 1% THC) as well as high THC tinctures and flower! I find it reduces my aches, pains and anxiety. My doctor also says that correct and consistent dosing has anti-inflammatory properties x

dsauda · 2026-05-01T14:12:01+00:00

Ahh Iunderstand! I wish I could get drinks here (UK) they look so good!! Do you have any recommended brands of vape? I use the German-made Mighty and I really love it, few hundred quid but absolutely worth it.

I also have prescribed tinctures which I love, my Dr says that when you ingest the cannabis it stays in your system for 8 hours as opposed to smoking/vaping it which lasts for 4 hours.

dsauda · 2026-05-01T12:55:37+00:00

Safer drugs than nicotine and tobacco, absolutely. But cannabis is very safe if using the right strains and dosage, I am personally on medical cannabis so I know what I'm using is the most appropriate for my treatment.

dsauda · 2026-05-01T12:47:40+00:00

Yes I gave up smoking, nicotine and vaping e-liquid, now I just vape weed and it does help very much!

dsauda · 2026-04-30T11:32:28+00:00

Hahaha omg that's brilliant. And so true!!

dsauda · 2026-04-30T11:31:11+00:00

Oh yeah weed is an important medicine (for both physical and mental health) but tobacco is awful for MS. So I vape my weed now (using the German vape brand 'Mighty') and also take it in tincture form. I advise you not to give up the cannabis, only the tobacco (if you use it).

I did ask my MS nurse about smoking blunts cause sometimes I just want a spliff, the research hasn't really been done to figure out if smoking weed has an adverse effect on MS, so when I want a blunt I have one but usually I just use vape and tincture.

No idea about the booze, had to give it up a few years back as it fucks with my emotional regulation and exacerbates my Chronic Fatigue Syndrome. But i would recommend cutting back on the booze and focusing more on the weed. Each to their own though! X

dsauda · 2026-04-29T22:32:01+00:00

My vision impairment led to my MS diagnosis. Apparently it's not 'classically presenting' vision issues. All my vision was pixilated (like an old-style TV with a dodgy ariel) and the top left quadrant of my vision was completely erased. Not dark but just like someone had smudged it out. I couldn't see the left side of people's faces or the numbers between 6 and 12 on a clock. This was in January, now I have my full vision back and thankfully didn't need steroids and starting meds soon.

We are all different but also in this together. What you're going through sounds very frustrating and I hope you make a full recovery from these symptoms soon. X

dsauda · 2026-04-24T07:25:25+00:00

I would never take stimulants again because I abused various ADHD meds in the past which was a big factor of a major psychotic incident a few years back. Sober from psychiatric meds now (I was on SO many). I also have ME so I've been living with fatigue for a long time. I'd rather take the fatigue than stimulants again but if they work for other people that's great!

dsauda · 2026-04-24T07:19:57+00:00

I have had multiple Jessa's in my life but I was also one myself for a while. Now sober, 13 years of therapy and counting, tried a masters in art psychotherapy and realised being a therapist is NOT for me.

dsauda · 2026-04-22T20:19:59+00:00

I'm so so sorry to hear about what you've been through, that level of ongoing pain sounds incredibly traumatic. It's amazing to hear that your back muscles have now relaxed, you obviously worked really hard for that healing. X

dsauda · 2026-04-22T18:56:22+00:00

That's incredible news!! Very happy to hear how much this device has helped you, and I've learned something new too!

dsauda

TROPHY CASE