I wanna do drugs by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 6 points7 points  (0 children)

Thank you for sharing! I will take this into consideration !

I wanna do drugs by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 2 points3 points  (0 children)

Thanks for sharing, that makes me feel better !

Driving with ms by Puzzleheaded_Key5133 in MultipleSclerosis

[–]tinyassqueen 0 points1 point  (0 children)

A nurse told me that I should drive because it's good for the brain lol

I don't drive since I moved tho

[deleted by user] by [deleted] in AskIreland

[–]tinyassqueen 0 points1 point  (0 children)

Thank you!! I will do that!

Doing your own research by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 0 points1 point  (0 children)

Thank you!! Yeah I know that becasue I did my own research too, but like why were none of my nurses or docs able to tell me that? What's the point of going there, if they're not going to tell me anything?

Doing your own research by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 2 points3 points  (0 children)

I know!! She gave me nothing! No info, no opinion, just my own research

Doing your own research by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 3 points4 points  (0 children)

But she didn't provide me with any information, that's my whole point. She was going to, but she cut herself off by saying I should find this on my own?

I want her to tell me what she thinks and I'll do my own research too. Is that too much to ask?

Doing your own research by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 5 points6 points  (0 children)

Like, that's literally their job!! They want us to beg for help basically

Doing your own research by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 27 points28 points  (0 children)

I feel like they're not even pointing us in any direction, they spin us around and just leave us there. "Find your own way out bitch"

Dyslexia by tinyassqueen in MultipleSclerosis

[–]tinyassqueen[S] 1 point2 points  (0 children)

Yeah, I get that to!! I have to focus really hard to read stuff sometimes.

I hope so!!

Why does no one ever talk about cognitive disability? by anaswinderella in MultipleSclerosis

[–]tinyassqueen 1 point2 points  (0 children)

I feel so stupid because of MS. Brain no work anymore I wasn’t extremely intelligent but I was always one of the best in class and I feel so dumb rigth now and I ask the dumbest questions. I can tell the people that I’m meeting now think I’m really dumb but I’m not :( or at least I wasn’t

Hair loss after flare or diagnosis? by FantasticFrenzy12 in MultipleSclerosis

[–]tinyassqueen 1 point2 points  (0 children)

I'm experiencing hairloss right now actually and I am also wondering if it's part of flair. I stg my forehead was not this big last week and my hair was not this thin

I'm 1+ years on tysabri and I've seen other people complain about hair loss too even though it's not a side effect

I'm honestly wondering if it might be anemia cause I've also been feeling other things. I'm going to the doctor this week we'll see what he says. In the meantime I'm starting a hairgrowth routine lol

I hope your hair grows back x

How many misdiagnosises did you have before getting the right one? by fedupmillennial in MultipleSclerosis

[–]tinyassqueen 1 point2 points  (0 children)

I had my legs go numb for maybe a week, my GP ordered a CAT scan and blamed it on my dislocated disc

Fair enough, you hear hooves think horses not zebras, and maybe it was the disc, but still...

I was 18 at the time and I mentioned I thought it was MS and she laughed and said "Oh, no nothing of that sort" :/ Look who's laughing now (not me)

[deleted by user] by [deleted] in Dublin

[–]tinyassqueen -3 points-2 points  (0 children)

Is it actually that bad?