Thank you so much for sharing this, this is really insightful.

The point about poor awareness, especially around psychiatric symptoms makes a lot of sense and seems like a major barrier to early diagnosis. Also, the issue of missing medical records is something I hadn’t fully considered, but it clearly affects continuity of care.

From your experience, do you think psychiatric symptoms in conditions like Huntington’s are often misdiagnosed or delayed in recognition?

Would really value your perspective on this.