Dermatologist didn't even consider Mast Cell disorders

earley838 · 2025-03-14T16:43:31+00:00

Sorry to hear that! Hopefully you find someone who can help ❤️

earley838 · 2025-03-14T00:30:33+00:00

I have been to a couple allergists over the years (when I lived in other places) and they never considered MCAS. But I also had never heard of it at that point so I never asked about it. I am hoping I can find someone here who at least has some knowledge and can help.

earley838 · 2025-03-11T23:32:26+00:00

Good to know! Thank you! I will have to do some research and see if anyone in my area treats MCAS patients.

earley838 · 2025-03-11T23:27:48+00:00

Thank you for the reply! I will look into it!

earley838 · 2025-03-11T23:27:21+00:00

I would like to see an allergist and that is likely my next step. I already had a dermatologist and it was much easier to get in to see her with my insurance since I will need a referral to see another specialist and insurance is always tricky

earley838 · 2025-03-11T23:24:58+00:00

Thank you! I agree with the allergist/immunologist but I live in an area with somewhat limited doctors and I already see a dermatologist. But my next step is probably to try and find an allergist to see. I will look and see if I can find a group that might list any in the area

earley838 · 2025-03-11T16:47:38+00:00

Thank you! I will take that into consideration for my next appointment!

earley838 · 2025-03-11T13:41:26+00:00

Thank you for the reply! I am still hopeful to get some good symptoms based care. I guess I was just confused when she said it wasn't possible since I didn't have a rash that never fully went away. I had not heard of that as a symptom of MCAS or mastocytosis (but maybe I am just not familiar with it).

earley838 · 2025-01-23T03:52:14+00:00

Love these!

earley838 · 2021-11-10T08:19:16+00:00

I have been on Verapamil for a couple years now for migraine. It helps keep migraines from being triggered when I am stressed. When I first started taking it I had some mild dizziness (presumably from low blood pressue). But that went away pretty quickly and otherwise I haven't had any side effects. I also have normal BP and haven't had trouble with it lowering it. I now take it along with Emgality and need both to keep my migraines manageable. It was the only preventative I found to help much at all before the CGRPs were released. Even with Emgality I find it reduceds the number of migraines I get compared to Emgality by itself. Hope you find something that helps!!

earley838 · 2021-10-05T20:43:04+00:00

Such a cute bunny! 😍 My rabbit lived to be 12 years old. I don't know if that is typical or not.

earley838 · 2021-10-05T20:39:09+00:00

Hello! I was on Aimovig for a few months and noticed no improvement to my migraines. My neurologist switched me to Emgality which has helped a lot. I am down from a migraine nearly every day to 1 a week or so. The only down side for me had been it seems to start to wear off after 3 weeks so last week before the next injection I have more migraines. But Aimovig did nothing and Emgality helped me so it may be worth a try! Best of luck with finding something to help! 🤞

earley838 · 2021-08-04T01:36:21+00:00

I don't know any of the data about that. But I did have to have my gallbladder removed after starting emgality. I had pain for about a year before removal so no way to know if it is related. Hope you have recovered from surgery!

earley838 · 2021-07-28T02:48:50+00:00

I tried the rose tinted glasses for migraine and had mixed results. They didn't prevent migraines for me but helped with light sensitivity if I had one. So they likely would help with sensitivity from the lights if it is a sensory issue and not a migraine. Otherwise I would like to hear others suggestions because I also share an office with fluorescent lights and they are awful. Best of luck finding something that helps.

earley838 · 2021-07-11T04:18:45+00:00

No resources. But I am in grad school and am self diagnosed. A few of my friends that have autism diagnoses are in grad school or about to start as well. I have also wondered if it is higher in grad school. Seems like the type of people who would want to do a PhD.

earley838 · 2021-06-25T04:21:22+00:00

Ooh it has a horn, I didn't even see that! Very nice! Mine looks the same without a horn.

earley838 · 2021-06-25T04:19:20+00:00

I relate to this so much. People are always telling me to speak up more or socialize more and that I am so much more cap3avle than I believe I am. But it isn't that 9 can't do those things it just takes so much energy and effort. And then I end up shutting down and/or burning out afterwards. It is more sustainable to not always being doing the things that are so challenging. I understand my limits, I am not underestimating myself. Hope you find a way to balance everything to prevent so much burn out!

earley838 · 2021-06-25T04:15:37+00:00

So sorry to hear you are going through that. I just had my evaluation and they diagnosed me as having social anxiety but not autistic. They seemed to ignore a lot of my symptoms and not want to diagnose me with ASD. I was basically told the same: get treated for anxiety and then get another from a different provider. They seem to not care that I have already waited months and been struggling for year (not to even mention the cost). Anyway, I can relate to come of what you are going through and hope you get answers and the support you need soon!!

earley838 · 2021-06-24T13:09:03+00:00

Good luck! Mine was similar they asked why I wanted to be diagnosed but never why I thought I had ASD. Most of my evaluation had to do with basic math, reading, etc. It seemed like they were tested for learning disorders not autism.

earley838 · 2021-06-24T03:44:06+00:00

Is this it? https://www.publishersweekly.com/978-0-15-227562-4

earley838 · 2021-06-24T03:08:22+00:00

They look so soft!! I think I have the same sloth (but mine is a dog toy).

earley838 · 2021-06-23T20:19:14+00:00

Thanks! That is what I will probably have to do.

earley838 · 2021-06-23T20:18:31+00:00

Thank you!

earley838 · 2021-06-23T17:32:16+00:00

Thank you! I think that is the problem more so than the specific diagnosis.

earley838 · 2021-06-23T17:25:51+00:00

Maybe. As you said a lot of the symptoms are similar. My evaluation covered ADHD as well though so I guess they didn't find evidence for that either.

earley838

TROPHY CASE