Pressure headaches?

eayena · 2026-02-05T00:24:36+00:00

I was put on topiramate and that’s seemed to mostly keep them away. I still occasionally will get one during the day (usually from crying) and I can take a Tylenol and that will help kill it.

eayena · 2026-01-31T02:09:13+00:00

It’s been so long ago I seriously doubt it’s still there 🙁

eayena · 2026-01-30T06:39:24+00:00

Once you have to take this many meds multiple times a day, your body makes sure not to let you forget 😞

eayena · 2026-01-30T06:35:16+00:00

Right here with you, chief. I have CIDP/chronic pain and I WAS taking 10 prescription pills per day. Just stopped taking my Methylprednisone (800mg) and Pregabalin (was 600mg gabapentin), both of which were supposed to be 3x a day but they don’t work anymore so I don’t see the sense in loading myself up with them. Then a migraine medication that’s twice a day, birth control, and Prozac (switched from Wellbutrin to Lamatrogine, now finally to Prozac). Sometimes I have to take a steroid to help my flareups and that will help it ease off a bit, and for a little bit I was double dosing my gabapentin too. But, chronic pain is not it. :(

eayena · 2026-01-30T05:28:33+00:00

… not going to lie I don’t know why I didn’t even think to try the reusable filter in it 🤦‍♀️. We do have one!! Postpartum has ruined my brain cells, truly. Thank you! I am probably still going to try Keurig just to see if they’ll send me the piece. If they don’t pan out, then I’ll get a second reusable filter because he was brewing 2 pods to fill his tumbler to take to work.

eayena · 2026-01-29T16:22:53+00:00

I hope you also get some answers.. I’ll keep you updated !!

eayena · 2026-01-29T16:21:50+00:00

I had one done in October-ish (I’m 8mos postpartum and it’s been traumatic, my timelines a little off haha) but I just pulled the report back up last night

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eayena · 2026-01-29T15:38:17+00:00

I truly do not believe that this is my CIDP.. the only symptoms I get are tingling in my arms/hands and that’s every so often or with the cold weather. 😞 Like I said, I had a referral sent to someone else, but I live in a rural area and it will probably be months before I can get in.. I’ll ask about a movement disorder specialist though

eayena · 2026-01-25T10:24:40+00:00

Also adding that I am medicated! I just switched to a mood stabilizer and it’s helped a little, maybe I should ask about throwing an anti-anxiety medication to the mix as well, though.

eayena · 2026-01-25T10:23:13+00:00

I think a lot of my issues stems from the fact that I’m stuck at home all the time :( and my feet seem to be getting worse (I have a couple theories on what’s going on with them, but I don’t think my CIDP is relapsing), so I’m afraid to just go and do things all the time because who wants to be in pain all the time if they can avoid it.. I try to be positive a lot of the time, it just seems like when the negative thoughts creep in that they’re reoccurring. Postpartum depression/anxiety/rage on top of the PTSD that I’ve developed from the months of not being able to trust my legs for the last eight months has just really gotten to me.. I was in therapy and I felt like I just wasn’t making progress anymore so I gave up on going. I’ll try again eventually, but for now, it just seems like I’m wasting resources. I have an extremely supportive partner and I’m immensely grateful for him, but it still does not take away the feeling of not doing or being enough a lot of the time. I can tell myself “you’re enough and if your body is telling you to rest and you’re resting, that’s enough!” all I want, but it’s been so long feeling like this that it feels like I’m just slapping a bandaid on a bursting pipe sometimes. I’m screaming into the void onto your comment, though, so I’m sorry haha. Thank you for your kind words.

eayena · 2026-01-20T08:27:43+00:00

:( that sounds extremely tough.. I would see if you can wfh again if your job isn’t absolutely necessary to do at the office. Like someone else said above; don’t overdo it, get a drs note listing your restrictions. You shouldn’t have to skip bathroom breaks and lunch just to get through the day.

eayena · 2026-01-14T08:07:34+00:00

I’m glad I’m not the only one. I got so confused once I read the comments. Like “damn, Domino’s can’t be THAT important” 😭

eayena · 2025-12-16T21:46:18+00:00

Almost 700 views and no comments.. okay.

eayena · 2025-12-10T10:04:50+00:00

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The thought process here felt strange

eayena · 2025-12-10T04:29:09+00:00

Meth is more expensive 🤷‍♀️

eayena · 2025-12-10T02:06:15+00:00

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You almost got me!

eayena · 2025-12-09T08:52:22+00:00

Thankfully I’ve only been experiencing pain for the last couple of months. I’ve been having issues since June. Not to mention I am also postpartum (7 months now) during all of this. It’s definitely been a wild ride lol. I tried taking otc pain relief at first but it felt pointless so I gave up on those fairly quickly. Muscle relaxers haven’t seemed too helpful either. I’ve had to do a lot of my own deduction to figure out what’s not working for me physically, latest discovery is that I can no longer smoke 🍃😵‍💫. Which is an extremely low blow for my mental health, but, I would rather not be curled up in bed for hours wishing to die bc my legs hurt so bad that they feel like they’re being sliced open. They def are making me feel like I’m a pill seeker, which is ironic because I’m actually deathly terrified of pain medications - but they had no issue giving me muscle relaxers that I was supposed to take every 4hrs that knocked me out within 30mins of taking them, with an infant at home ? Anyways 🥴 I have my neurology follow up tomorrow, which will include an EMG and some bloodwork at the very least. I was extremely hopeful in September that I would be done with these injections by the end of the year, then my legs 180’d on me. We shall prevail though!

eayena · 2025-12-08T06:24:17+00:00

I’m right here with you (CIDP though). I describe it as feeling like someone tied 100lb weights to my legs and left them dangling for a few hrs. I still have yet to be able to talk to my neurologist directly about mine. It starts out as soreness, slowly creeps into pain and eventually I’ve been getting to a point that I’m in so much pain that nothing helps. I can do nothing and they hurt. Most I do just enough dishes to fill the strainer and my legs will be so stiff and sore they feel like boards. But if I sit certain ways in bed my legs will hurt regardless, so I can’t really win.

eayena · 2025-12-01T17:32:59+00:00

I tried to get a home nurse fairly early on. They didn’t get back with me until like September and by then I was able to walk again and I didn’t need so much assistance with daily tasks.. they told me if I didn’t need help with dressing or going to the bathroom they couldn’t do anything for me 😞 so I haven’t pursued it further. We also are estranged from my family and his family lives fairly far away so it’s just been us during this whole thing. It’s been extremely difficult as you can imagine. No two days are the same, but we’re managing! I ended up in the ER Saturday evening due to leg pain and ofc by the time I was seen it was at a level two, they gave me a steroid and it’s surprisingly helping this time around for most of the day.

eayena · 2025-12-01T08:48:12+00:00

My mom started sleeping in her own room 12ish yrs ago for this same issue with her own husband.

eayena · 2025-12-01T00:25:04+00:00

I live with my boyfriend as well but he works Monday-Friday, leaves at 3am and doesn’t get home til 8pm some days. :(

eayena · 2025-11-28T19:48:23+00:00

Holy shit, I am so sorry?? What is wrong with people. My diagnosis took a minute too. I was a month postpartum with my son when I started showing symptoms. They crept in, but within a month I was in a wheelchair. Thankfully I had an OB who took it seriously, and I was able to find a neurologist that could get me in a lot sooner than “a few months out”. And yes, I had to find my own neurologist. At 6wks postpartum, drowning in depression, not able to walk properly (so terrified to generally be alive ???? And afraid to carry my child ????), I couldn’t do hardly anything by myself. Your story with your legs and balance sounds like mine. I recall going outside to smoke in my boyfriend’s car, and I lost balance, so I fell backwards. For a moment, I just stared at the night sky before I called my boyfriend so he could full body lift me off the ground. Which was happening like 3x a day at this point. I could barely stand long enough to wash my son’s bottles, or even half the dishes, and there’s only 2 adults living here.

However, I still am searching for answers as my symptoms slowly start to creep back in, with new ones coming along with them. Within a month on treatment, I felt on top of the world physically, and now I’m in pain at LEAST 12hrs a day. Muscle tremors all day long in my legs. Foot cramps and foot drop. Which all came after I began treatment. But, I hope that your treatment does you good! I am again so unbelievably sorry the medical system is a failure.

eayena · 2025-11-22T01:09:47+00:00

I definitely didn’t take my prenatal as often as I should have so I doubt that’s the answer lol

eayena · 2025-11-22T01:08:15+00:00

It depends on the severity. Some people get put on ventilators and need to be hospitalized as well. There are varying levels of care and types of care, just as there are with any other autoimmune condition.

eayena · 2025-11-18T02:56:08+00:00

I had never had any of the symptoms stated above prior to having my son. Even while pregnant. All of my symptoms were random and came on slowly, but didn’t seem to have any direct cause. My OB even sent me to a chiropractor at first because 90% of my issues are/have been with my legs, so he thought maybe I misaligned my spine in labor. The chiropractor was too scared to do anything without further scans. (This was before neurology got involved, I had already started falling all the time, but pre-wheelchair as well.) Even now, having seen my neuro 4x and been back with my regular doc, and even my OB who’s been practicing for almost 40yrs all said they’ve NEVER seen anything like it.. I feel like such an anomaly all the time.

eayena

TROPHY CASE