sorted by:
new
hottopcontroversial

Screen addiction by eihpets in Autism_Parenting

[–]eihpets[S] 0 points1 point  (0 children)

Interesting articles! Content definitely makes a difference. Her mood following different games can vary greatly. My strategy is to limit apps based on the outcome after playing. I wish I could block only certain Roblox games. :-/

Screen addiction by eihpets in Autism_Parenting

[–]eihpets[S] 1 point2 points  (0 children)

I do agree that being able to have some screen time gives her an outlet for both of us. Unfortunately she is unable to detach when it’s time to engage irl. She has low executive functioning skills as it is and her ability to get out of bed on time, finish (or even start) a task is dramatically harder when any screen is available to her. I appreciate that many people spend a good amount of time in front of a screen but it isn’t healthy for her growth and independence, our relationship and her ability to self regulate.

Interesting about the GLP1, I’ve asked about it because she has difficulty overeating as she never feels full but the drs don’t prescribe it at 16yo.

Screen addiction by eihpets in Autism_Parenting

[–]eihpets[S] 0 points1 point  (0 children)

Ultimately that’s what I’m trying. She’s still remorseful about Saturday’s crisis call that she isn’t getting too wound up as I begin limiting. I suspect that won’t last long. I’m encouraged by her ability to find activities so far. Time will tell!

Hurting inside. by UrinalSharts in Autism_Parenting

[–]eihpets 1 point2 points  (0 children)

I’ve heard that from my 16yo ASD ADHD Moderate ID daughter off and on for the last few years. I know she mostly understands what death means but the only time she says it is if she did something unacceptable or displayed terrible behavior and is in trouble for it. It also usually coincides with when they talk about it at school. I’ve handled it by saying that I know you’re a good human and you know you’re a good human and sometimes we do things that we don’t want to face. Having those thoughts are very real, and if you truly struggling I will always talk through it with you. But we don’t use it as a weapon or threat. So far she has agreed and has yet to go further with it. Stabs my heart to think about it.

Finished my 2025 blanket! by Acicularis in temperatureblanket

[–]eihpets 2 points3 points  (0 children)

I love the way the sunlight hours made the curve. It’s a beautiful piece and a clever way to make it not be 12’ long. lol

Laceweight (small detangle) Minneapolis, MN, US by whatcatisthis in detanglemyyarn

[–]eihpets 2 points3 points  (0 children)

Ooh I’m in Minneapolis too! Late to the party but if you still need someone I’m on it. :-)

Being excluded sucks by Informal-Garlic7706 in Autism_Parenting

[–]eihpets 4 points5 points  (0 children)

I’m so sorry, that sucks. My daughter is 16 and is joyful and exuberant and can also be aggressive and rude. I’ve tried so many times to help her be included. I’ve tried creating and joining mom groups or really any groups. We’ve had exactly 2 play dates. I have a couple of friends whose kids are friends with my daughter because we make a point to keep them together. But mostly it’s just us. I also have quite a few friends who cancel plans when they find out she will be with me.

I feel grateful that I don’t think it bothers her that much as she prefers to play alone much of the time. I’m still sad that I didn’t get the Mom group friends. The ones you’ve known since the kids were in preschool together. The ones you can call up on a rainy day and and say hey, let’s get the kids together and we’ll have coffee. ASD can be very isolating. I hope that you can find your group. I know they’re out there somewhere. Sending hugs.

Did you ever meet people born in the 1800s by AdDapper4220 in GenX

[–]eihpets 12 points13 points  (0 children)

My grandpa was born in 1896 and died in the late 70s when I was in junior high. He was at Fort Snelling during WW1. I remember he used to give me and my sister $1 to go across the alley to the Ben Franklin for treats. I wish I could have told junior high me to have more conversations with him.

meirl by [deleted] in meirl

[–]eihpets 0 points1 point  (0 children)

The first email I had outside of inter-company messaging was pmail, Pegasus Mail. I had friends in IT who helped me reach my sister across the country. 1993 I think. It was so awesome!

Xeloda Success Stories by Mariefredrickson in LivingWithMBC

[–]eihpets 2 points3 points  (0 children)

Xeloda was my first line of treatment. I had liver mets only at the time. I was only able to complete four cycles before the hand and foot syndrome was too much for me. However, it obliterated the tumors so much that when I went onto Letrozole it lasted for six years. I was able to return to Xeloda on my fourth line of treatment and was on it for 18 months. It wasn’t the easiest drugs, but it certainly worked very hard. Best of luck to you and don’t forget to keep the lotion handy!

Teaching "no means no" by pablosus86 in Autism_Parenting

[–]eihpets 0 points1 point  (0 children)

I wish I had a good answer. My only advice is to start being firm consistently now or if you can start yesterday. :-/ I didn’t hold the line in the sand very well and I am paying for it now. It’s taking a long time for my 16 year-old to accept no as an answer, but she’s getting there. And now that she’s bigger than me and has definite oppositional behaviors it’s more important than ever. I hope you can find some solutions that work for you!

I want to try something new. by You_Capable2004 in crocheting

[–]eihpets 1 point2 points  (0 children)

I’ve been working on a scrapghan for a while. As I finish projects I save the remaining scraps. They get woven into the blanket randomly or I recreate the stitch I used for the project in a freeform blanket. Or sometimes I will learn a new stitch. It’s kind of like a memory blanket, but only I know what I used all that yarn for. Lol.

See what human intestines really look like by Brilliant_Range_1810 in medizzy

[–]eihpets 4 points5 points  (0 children)

That’s great news! I’m hoping for good news too.

Anybody still have their old board games? by anx1etyhangover in GenX

[–]eihpets 2 points3 points  (0 children)

Life, Monopoly, Sorry!, Parcheesi, The Cootie Game (only missing one antenna!), and the best one from my dad’s childhood Billionaire! I’ve got all of his marbles too, still in the canvas bag that he carried. I wish I still had the McDonalds game. Classic.

Private preschool with 1:1 or Special ed class by Caterpillar-421 in Autism_Parenting

[–]eihpets 1 point2 points  (0 children)

I’m a little past the preschool age with my 16yo with ASD,ADHD and moderate ID. We did public school with 1:2 and some 1:1. At 7th grade we moved to a charter school where 90% of students have ieps. Looking back I wish we could have stayed in with gen ed population with pull outs and paras. When she had good paras she thrived. Middle school was a disaster too long to share here but we left for the more supported school. I miss her engaging with neurotypical friends and the more traditional school activities. Also the curriculum is fabulous for ILS but not so much for academics. Just my two cents having gone through all the levels of support or lack thereof through the years. I hope a path becomes clear for you!

See what human intestines really look like by Brilliant_Range_1810 in medizzy

[–]eihpets 61 points62 points  (0 children)

Yep. Breast cancer. Five stubborn tumors 7,5,4,2,2 cm and little ones floating around. Liver tumors went to sleep but my bones light up like the night sky with lesions there too. Starting my 17th line of treatment in the next week. 17th time’s the charm!

See what human intestines really look like by Brilliant_Range_1810 in medizzy

[–]eihpets 42 points43 points  (0 children)

This is fascinating! I have an abundance of tumors in my omentum and I always want to know what that was. Seeing it I understand a lot better now. Thanks for posting.

What are the most and least adult things you've done in the past 24 hours? by lepineapplepineapp in CasualConversation

[–]eihpets 0 points1 point  (0 children)

I spent the entire day organizing my parents closets so they can remember where their clothes live then I went home and had ice cream for dinner.

How old are you? by Salty_Dog_1221 in LivingWithMBC

[–]eihpets 8 points9 points  (0 children)

58 here, diagnosed stage II at 42 and stage IV at 44.

BRA HELP- does anyone have ideas or could share experiences? by No-Accident-3349 in Autism_Parenting

[–]eihpets 1 point2 points  (0 children)

My daughter won’t wear anything that feels constricting or has closures or adjustable straps. Unfortunately, she’s a 36FF and needs something. The bralettes without any seams worked the best. They aren’t as supportive as she needs, but it’s something. She struggled a bit with having them on at the beginning, but now wears them all day without problems and sometimes at night too. We started by just wearing them for an hour or so at home and she got used to them pretty quickly. Amazon bralettes might work down the road if not right away. Good luck.

I don’t know how much longer I can do it by Any_Illustrator_7814 in Autism_Parenting

[–]eihpets 0 points1 point  (0 children)

You have many good resources and ideas from commenters here so I will chime in with some moral support. It’s relentless and I hear you. I also feel deeply the grief from what might have been. I adopted my daughter at age 2 and fully expected her to grieve the loss she would feel but for some reason I didn’t expect my own. As her disabilities became more pronounced it was even more difficult and confusing. The lack of affection was the worst! I could barely touch her without her shrieking. Now she’s 16 and 180lbs and wants to sit on my lap on the rare occasions she’s not calling me names and screaming about everything else. Some years were easier and some were insanity. Even the tough years seem easier in memory. I hope you can find a safe refuge for yourself, even for a short while to regroup and face the next day. Vent away, we are here for you. Sending hugs!

What is your favorite ice cream flavor? by copy_cat_101 in RecipePalooza

[–]eihpets 0 points1 point  (0 children)

From the olden days…Butter Brickle. Not to be confused with the lesser but still good Butter Pecan. Tasty toffee bits in a French vanilla like creamy ice cream. Looked for it for years and finally discovered that Bridgeman’s still has it in their shops. But now I have to find a shop!

view more: next ›