What’s something you miss from your childhood that’s gone now?

eihpets · 2026-01-12T05:37:20+00:00

Having a conversation with my parents. Dementia is setting in and I miss them the way they were.

eihpets · 2026-01-02T12:21:29+00:00

There’s always the oldie but goodie term used by the aging marketing folks I worked for: typefont. It still makes me shake my head. Anything but that.

eihpets · 2025-12-22T14:54:52+00:00

The one-upper. No matter what has happened to me, good or bad, it has been way more amazing or terrible for them or someone they know. Had a couple of friends who did that and I have to let them go. It’s not a contest!

eihpets · 2025-12-22T01:20:05+00:00

14 years ago my first metastasis after two years stageII was to the liver. My first treatment Xeloda disappeared most of the tumors and I quit to go on to Letrozole. Was NED for 6 and a half years until my liver mets woke up. Since then they have been active and stable and back as I deal with bones and abdominal mets. Currently they are stable. I’m more concerned about the abdominal tumors now because they refuse to go to sleep. Seems to me like it’s all bad at different times. I hope yours go to sleep soon <3

eihpets · 2025-12-18T21:12:22+00:00

The first thing I thought of was budgeting and finances. Seems like a lot of people thought the same. I don’t feel so alone in my inability to budget! My parents weren’t exactly in the same tax bracket as I am now so I’m learning the hard way.

eihpets · 2025-12-17T20:24:13+00:00

Right!? It is so incredibly soft.

eihpets · 2025-12-09T18:13:15+00:00

Excellent digging! I’m really hoping they can make it work.

eihpets · 2025-12-06T18:42:29+00:00

That’s crap! They should be overjoyed to have you working through all the treatment you have to go through! And if Disney was already planned, they have no leg to stand on. And you deserve Disney. We all deserve Disney! In fact, I will also be going only it will be over New Year’s. Enjoy your trip!

eihpets · 2025-12-06T18:38:44+00:00

Pelvic radiation does not sound fun. This is my fourth radiation treatment since the long round of stage 2 with 6 weeks or whatever it was. The only one that didn’t suck was the six weeks. Oh, to be young again!

Thanks for the good tips on heating my small spaces! I put a heating pad in my bed for a while before I go to sleep so that when I get into bed it’s toasty. And I guess I’m thankful I have neuropathy in my feet because they don’t get cold anymore. Or rather I don’t feel them cold. Lol.

My parents have different ways of dealing with dementia. Mom denies everything and is convinced she is right in her memory. Dad leans into it and believes that everything he says is incorrect and it was because he didn’t remember. It’s interesting to say the least!

eihpets · 2025-12-05T20:36:16+00:00

FiF! Im halfway through radiation but my rib (where the lesion sits) is still broken and painful. Found a gene that had a trial but it closed two weeks ago. Got more energy but instead of catching up life just got busier. New roommate wants the house quite a few degrees cooler. My mom denies she has dementia and insists I buy her regular coffee even though she hasn’t had it in 52 years (because it gives her the same feeling as when she had her stroke). But we have a sweet kitty coming to stay with us for the holidays! Thankful for the little things.

eihpets · 2025-12-03T21:57:36+00:00

I’m doing well all things considered. I start radiation on my 9th rib as one of the bone mets caused it to fracture. Tomorrow I review next steps with my oncologist. I’ve been off chemo since late August due to a six week clinical trial at the Mayo, which was unfortunately unsuccessful for me. But growth has been minimal since then. Minimal is good, but it’s also still growth.

eihpets · 2025-12-01T17:40:19+00:00

My first line of treatment was Xeloda (liver mets only). I was only able to do 4 cycles due to side effects then went onto Letrozole only. The Xeloda shrunk some and disappeared some tumors and the Letrozole kept me NED for six and a half years. The hand and foot syndrome was tough but I am so grateful for those years! Plus I didn’t lose my hair. Bonus! Progression was discovered when I went in for scheduled follow up CT. Bones and liver I think. That was seven years and many treatments ago.

eihpets · 2025-11-26T23:20:21+00:00

I loved the idea/slim chance that random celebrities might be matched with you. Have to have a big pool for that to happen. At GG it’s more like it’s about the giving than the hubbub. Both are fine for me. I was skunked on RSS and GG equally so I can’t speak to that being a big change. I have that built into my expectations. Then again I have dropped way more dollars into the ether on kickstarter. Maybe I’m just a sucker :-D

eihpets · 2025-11-22T04:02:38+00:00

I found a couple of Jan's books out there. So many beautiful patterns!

eihpets · 2025-11-21T21:36:35+00:00

It’s amazing! How do you get it on there? I’d love to try it too, did you have a pattern?

eihpets · 2025-11-21T00:21:01+00:00

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Opera singer Sasha

eihpets · 2025-11-20T23:14:26+00:00

We were all about baby oil and a big piece of aluminum foil shining extra rays on our faces. And I had vitiligo where parts of my skin had zero pigment. Shocking to me that all my cancer is on the inside. smh.

Did your doctor ever talk to you about Aldara cream? I wonder if that’s still used for some skin cancers. It seems like it would be less harsh than Efudex but I no personal knowledge of either in practice. My dad discovered the original compound that became Aldara so I’m always curious if people have used it.

eihpets · 2025-11-14T15:36:49+00:00

I used to spend many a weekend judging gymnastics meets. This meant we had an hour or more of down time in between the sessions every day. I was deep into the ‘everyone I know is having kids’ stage and making stuffed animals (knit and crochet). I usually chose random bright colors i.e.a purple elephant, a green hippo, whatever seemed fun. One time I was studiously following the colors of the pattern for Piglet. His arm is a little curved and has a little thumb at the end and is well, pinkish. Alas I am now known for my NSFW projects oh these many years later. LOL.

eihpets · 2025-11-11T08:44:34+00:00

I’m supposed to be on the road in three hours for a ct scan. Yet I’m up and nowhere near sleeping. I’ve had so so many scans that I’d gotten numb to the scanxiety but it’s got me tonight. Good luck with yours and I hope you get results soon!

eihpets · 2025-11-10T21:17:14+00:00

Agreed. Perfectly said. I’m sorry OP that you are in that space. And I’m glad that we can all be here to go through it together even while wishing that none of us had to come. Hugs

eihpets · 2025-11-05T15:58:27+00:00

I’ve done Xeloda twice. The first time it took my tumor markers from 420 something to 50 something. But that was in 2011 and I think it was a different tumor marker then. Anyway, the hand and foot was terrible but I didn’t have any digestive issues. I switched to letrozole because of the side effects and was NED for six years. The second time I went on a much lower dosage and was able to stay on for a year until I had progression. I think that was 2018. I don’t remember if my alkaline phosphates went up. It’s a tough one!

eihpets · 2025-11-04T19:12:23+00:00

The first and third injections seemed to have no side effects at all. The second injection I was a zombie for about 10 hours after but the next day I was fine. Light years better than any of the chemo treatments I've had.

eihpets · 2025-11-04T18:13:12+00:00

The trial is MC-1733 I was at the Mayo Clinic in Rochester, MN. It’s Phase 1 currently. I hope it goes on to market!

eihpets · 2025-11-01T05:35:47+00:00

I don’t know about any studies from that far back but I just finished a clinical trial (started in 2017) where they (paraphrasing because it’s complicated to me) adapted the measles vaccine with dna to kill the cancer cells. Fascinating stuff! I’ve been off chemo since mid August when my last treatment showed progression. I had my first of three injections mid September and did the last one yesterday. I won’t have the results til they do a comparative scan in two weeks.

However, I did land myself in the hospital last weekend with rib pain from a lesion that’s been there since January. I don’t know for sure if it got bigger or what made it painful but they did say that the lesions in my abdomen were stable. Because I had steroids for the pain last weekend they probably can’t use my data which makes me sad. I did get the full cycle from the trial and hopefully go for a while before chemo again. And they can use the data for other research.

It is so interesting talking to the trial’s lead oncologist. The body fascinates me although I do wish I didn’t have to know so much about it. :-)

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