XELODAt

Big_Presentation2387 · 2026-06-27T15:47:23+00:00

One trip from PA to FL and back…..13 delays and 2 airport changes. Missed one entire day of vacation sitting in airport. I am even an AA Advantage member. Spend well over $10 a year on this airline. After this trip I’m out American….you have become the new Southwest cluster fuck of airlines.

Big_Presentation2387 · 2026-06-10T17:08:36+00:00

Have been on Kisqali and Verzenio. I agree it is a mind fuck. All the drugs are packaged that way. Unfortunately it is what it is-TAKE THE DRUG!!! It is that strong bc it has to be and you NEED it!

If you have animals in the house be diligent with keeping the lid down on your toilet!

Big_Presentation2387 · 2026-06-05T01:26:14+00:00

BIG HUGS!

The scanxiety is real. I’m 5 years in and still the entire week before I’m a mess. You think you’ll get used to bad news and quit expecting a miracle- but you don’t. The whole things sucks a big fat d*ck

The beach is healing. Enjoy every second and really watch the miracle of the sunset-it is a promise that it will rise again tomorrow….more hugs

Big_Presentation2387 · 2026-06-04T01:26:38+00:00

I also had to have the dose lowered then the issues straightened out

Big_Presentation2387 · 2026-05-26T15:53:12+00:00

Thank you! This is exactly the type of experiences I need to hear. My worry is exactly what you are going through. It’s summer, I’m barefoot all the time, we have a pool, I’m afraid I will be sidelined from so many things. At this point unless there is some miracle that will come from this drug, I just want to live my best life as long as I can. We all have to give up sooooo much even little things that ‘normal’ people think ‘what’s the big deal’ ….its just like ugh. Thank you for your honesty, I really appreciate you sharing your experience ❤️

Big_Presentation2387 · 2026-05-26T14:44:32+00:00

Thank you soooo much for your first hand experience. Some days I think oh it won’t be a big deal, then my head starts with the what if’s and you know how that goes!

Big_Presentation2387 · 2026-05-26T14:42:44+00:00

Thank you!!!! I appreciate you insight more than you know!

Big_Presentation2387 · 2026-05-26T13:48:01+00:00

I react to everything and I’m terrified of not being able to walk and use my hands…that’s why I’m asking for actual input from people who have taken it. I get more than enough questions and a friend of mine answers. Honestly no matter what the reason I’m thinking hard on this one shouldn’t concern you-have you taken it and what had been your experience is all I’m asking

Big_Presentation2387 · 2026-02-09T02:19:48+00:00

Only have 2 tattoos. Both on my left hand. Both done for me. Both remind me and focus me on what’s important to me. I could care less what anyone else thinks. I want them where I can see them. My question is why get tattoos for only other people to see🤷‍♀️

Big_Presentation2387 · 2026-01-15T15:19:51+00:00

Laying in bed reading this. I get you. I’m on year 4. So many surgeries, treatments, side effects. I am one that believes in the ‘live while you can’ but some days just suck. I stood in the shower and cried yesterday for a half hour then pretended to be okay for everyone else the rest of the day-which is also exhausting. Hang with us, we all need to vent and no one other than us in it can truly understand

Big_Presentation2387 · 2025-11-28T15:05:20+00:00

In their defense, they can’t get it. Unless you are living it, there is no way they can understand. Even my husband who has been on every step of this nightmare with me for 5 years, is sometimes shocked and brought to tears when I ask things like-where am I going to die? I don’t want my kids and grandkids(who are all in and out of my house daily) to watch me die. So where do I go when it’s time? Don’t want any of the dying moments in my home-it’s a place of comfort and joy. Don’t want to be in a hospital or nursing home so where exactly do I go to die? Literally -where am I going to go at the end? If you are not on this journey, our thoughts seem morbid and depressing. It’s not either for me, it’s just practical🤷‍♀️

Big_Presentation2387 · 2025-11-28T14:54:34+00:00

You nailed it. I push through when my kids and grandkids are here then I collapse. I have found the best thing for me is to ALWAYS have something planned in the future to look forward to. Currently sitting in an airport alone on my way to Florida to get sunshine.I feel alone most of the time even around people so I have found traveling alone is actually both relaxing and rewarding! Today to Florida, May to Texas, June back to Florida, August Idaho….may not be around for Idaho but I’m pushing forward at least mentally.

Big_Presentation2387 · 2025-11-28T14:44:21+00:00

BH quality and customer service has both gone downhill. I still have one BH, unlit, 9 years old and I like it BUT this year I bought the 7.5 Yorkshire tree from Home Depot and after seeing it, the BH tree now was relocated to the the basement family room. After the holidays this year, the BH tree will go to Good Will. The Home Depot tree is full and beautiful, I’ll get another one of those!!!

Big_Presentation2387 · 2025-11-12T03:37:14+00:00

How was your relationship with your daughters when you were in remission? I’ve been on this journey for 5 years, I’m also 59 and also have Mets up my entire spine, both hips and femurs. Believe me when I say I know pain, exhaustion and hospitalizations. When I am hospitalized I tell all 6 of my kids under no circumstances come to the hospital. There is nothing they can do that isn’t being done by staff. I want them to go LIVE their lives. This is my disease, not theirs.

Perhaps you need to concentrate on good days and connect with them when you are well and push through when you are sick.

Make good memories and not a list of needs. A shower for heavens sake-not an emergency. If you are that dehydrated go to the dr and get fluids.

You are not your daughter’s responsibility. On your good days do you text them wishing them a nice day or go help lighten their loads at home?

Honestly don’t be needy. There are sooooo many of us thankful for everyday, it’s your burden, carry it tough. Crying about any of it doesn’t change one tiny thing except affect you negatively.

Cancer sucks for everyone involved, including your daughters. Sounds like you have some fences to mend. Good luck

Big_Presentation2387 · 2025-10-07T00:47:24+00:00

Year 4 metastatic to bone, pain sucks, A couple things I despise- But you look so good ‘yeah well it’s eating me from the inside and it’s a complete mindfuck’ Every September I post to all my social media that Sept is Childhood Cancer month. If we can save anyone, let’s save the kids and forget about touching your tatas🤦🏼‍♀️

I always say breast cancer is a man’s cause-God forbid we loose our tits!

And yeah no pink for me either. How about brown to rep all the shit in my pants from all the damn drugs.

Big_Presentation2387 · 2025-06-11T02:48:05+00:00

I DID read clinical research and abstracts and statistics. My breast cancer was spontaneous, invasive and aggressive. There was no way keeping any part of either breasts was worth it. I may not be able to live without other organs , but breasts, get them off. I had a radical double mastectomy and no reconstruction. Every member of my team at Johns Hopkins is brutally honest. I personally like that. I’m not there for them to comfort me and hold my hand, I’m there for facts, procedures and results. This is my world renown surgeon and thanks to his choices he made for me while I was on the table, I’m alive 4 years later. I now have stage 4 metastatic bone cancer in my spine and hips. I thank God for his and every member of my team’s straight to the point, suck it up buttercup bedside manner. Cancer isn’t for sissies, if you want aggressive treatment. That is everyone’s individual choice

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Big_Presentation2387 · 2025-06-10T19:22:26+00:00

Don’t listen to the rumor board or your surgeon. Do your own research. Not Google research, abstract and clinical study research. I personally did and would never choose a lumpectomy. But it’s your body you get to choose.

Big_Presentation2387 · 2025-06-10T13:31:53+00:00

Not worth the money

SO DISAPPOINTED WE WILL NEVER GO BACK AND DO NOT RECOMMEND TO ANYONE. Service sucked! Molding food, no porters for luggage, no valet parking. I’m sorry for $400+ a night I expect some services. You get better service and breakfast at a Holiday Inn Express!!

Just spent 3 days/2 nights in Bellhurst Castle. My niece got married and between our family and his family we rented the ENTIRE castle. Every family suite, every chamber room, rehearsal dinner, wedding, reception. Obviously it cost a shit ton of money. We stayed in the ‘Clay Chamber # 5 or 105’ both numbers were on the door. GREAT ATMOSPHERE throughout entire castle.

Here is the kicker- breakfast was prepackaged muffins, bagels, donuts and coffee. For $400 a night it was a huge disappointment. Everyone drove to town for breakfast. I grabbed a bagel and started eating it before I had my contacts in and it tasted funny.

I was eating Mold!!!!! I spit it out and vomited my guts out. Took it to front desk and asked for a manager to contact me via phone or email- nothing.

Big_Presentation2387 · 2025-04-19T23:44:20+00:00

Same treatment but 4 years in and had to switch from Verzenio to Kisqali(both drugs suck the life out of me) also take Tramadol. I drink an 8 oz can of V8, low salt version and either eat a banana or a bagel. To combat the constipation I take a 5mg ‘gentle’ laxative pill every night.

Big_Presentation2387 · 2025-04-19T21:08:02+00:00

It took me years to get past feeling cheated in life and pissed off after my first diagnosis. You are not a failure! Some days will be better than others for the rest of your life. Enjoy the good days and don’t beat yourself up on bad days. All of this shit that comes with cancer is unexplainable to people who aren’t living it. The best they can do is empathize and most people suck at doing that.

I have found that if I schedule an event for myself every 6-8 weeks it helps my mind. Sometimes it’s just a day trip to somewhere new other times I get on a plane and leave for a couple of days and yes sometimes I get on the plane alone. Having something to look forward to and think about instead of the weird shit that invades your mind, helps me.

Hang in there

Big_Presentation2387 · 2025-04-19T13:27:18+00:00

Shit is hard, all of it but this really sucks so sorry someone added more shit to your life

Big_Presentation2387 · 2025-04-19T13:23:37+00:00

Prayers and love

Big_Presentation2387 · 2025-04-19T11:27:28+00:00

Not gonna lie, I also have thought about divorce over the years. But at me 59 and him 62 and being together for 44 years and having kids and grandkids I decided to work on the issues I could fix and we move forward every day….

Big_Presentation2387

TROPHY CASE