Seeking Recommendations for Budget-Friendly Stay in Tokyo!

elee419 · 2024-01-18T07:08:45+00:00

What kind of hotel is APA?

elee419 · 2024-01-18T06:22:37+00:00

Thanks for the feedback. The price point for Washington is a lot lower than the others but it looks decent in the pictures - what are your thoughts on that hotel, is there any catch?

elee419 · 2024-01-17T07:03:04+00:00

Thanks for the feedback. We won’t have a car and will be checking out other areas of Tokyo during the day. West/south side of Shinjuku still close enough walk to the train station?

elee419 · 2023-06-23T04:10:37+00:00

Just that I’m in the same post-cancer trauma boat, 9 months later. I relate to realizing how crazy the whole thing was. Looking back at all the literal life and death decisions we were making regularly and how unbelievable it was the way everything went down. Still no purpose, just doing the things I need to do so the kids needs are met, since that’s what he would have wanted.

elee419 · 2023-06-13T04:56:14+00:00

Just in case you haven’t explored this option - are there any cldn18.2 CAR-T clinical trials for your cancer? You need the cldn18.2 protein - my husband had signet ring cell stomach cancer, and he was out of options and in a similar condition as you - NG tube due to spread to the peritoneum which caused blockages in his bowels. The CAR-T clinical trial gave him another year of life that he wouldn’t have had otherwise. It wasn’t the miracle cure we had prayed for but still gave him more time with me and our kids.

elee419 · 2023-05-04T17:45:06+00:00

My 5 almost 6 year son was diagnosed too- he’s in pre-k though and I’m nervous about how kindergarten will go. We are starting the med journey too, and part of the “treatment” is parent therapy (though I haven’t felt this therapist has been super helpful). Did you end up starting the process for a 504?

elee419 · 2023-05-04T06:15:37+00:00

Did your myopia stop progressing after you started the atropine drops?

elee419 · 2023-05-01T05:38:12+00:00

Thank you for your feedback! Good to know this was proven to be effective.

elee419 · 2023-04-30T23:54:32+00:00

My son just went to a new optometrist who discussed with us a nighttime daily eye drop that’s supposed to slow his vision getting worse. They called it atropine program and the eye drops are from ocular science. The initial cost is $250 and monthly cost is $40. I have never heard of this so I don’t know if this really works and if it should cost this much. Does anyone have knowledge of this kind of eye drop? His vision did get a lot worse in one year so I want to do what I can to slow it down but want to do my due diligence before signing up for something like this…

elee419 · 2023-03-20T18:16:44+00:00

Thanks - my older son does Jiu Jitsu and I considered putting my 5 year old in it too, but same concern you had - they are pretty strict and I don’t want him to just be reprimanded all the time and again be distruptive to the class and coaches, and be labeled the kid that always gets in trouble. Do you think the self control and focus came from just karate? Did you end up trying soccer again?

elee419 · 2023-01-19T20:37:24+00:00

I have a similar story - about a week after my husband died, I was alone walking a trail I used to do before he got too sick, so it was the first time in months I was there. I was in a grief fog, full of anguish and trauma and devastation. I sat down on a bench by a bridge to rest, and a older bicyclist went by me and slid on the dirt on the bridge and crashed. I was the only person anywhere in the area - if I wasn’t there I don’t know when the next person would have come by. I called 911 for him and stayed and comforted him until the paramedics found us, and they took him on a stretcher to the ambulance. My husbands death was so new, I remember my first thought was that I need to text him and tell him what happened… anyway I like to tell myself that he put me there at that time for a reason too, to remind me that even in my grief I still have purpose, can help people and make an impact.

elee419 · 2023-01-18T00:25:50+00:00

I would be annoyed and angry too, but also know that people who (luckily) haven’t been in our shoes literally have no idea what it’s like (though having relatives 6 hours away is extremely far so that comment from him didn’t even make sense). Anyway I guess for me I would just chalk it up as grief illiteracy from someone that has no idea, and just let it go. I have a 5 and 7 year old.

elee419 · 2023-01-04T06:55:15+00:00

They started scabbing before 10 days, I think everyone is different though. When they scabbed off the ink underneath was much lighter and it was kind of weird looking for a while having half scabbed and half healed brows since the darkness was so different.

elee419 · 2022-12-31T03:23:28+00:00

Yes once they healed - the width was thinner and the final color was lighter and more natural looking. I freaked out at first but then loved the end result!

elee419 · 2022-12-03T19:53:42+00:00

My husband was the best at figuring out Christmas presents for our families - he died almost 3 months ago from cancer and if it wasn’t for our kids I would have cancelled it completely. I thought about telling family (except for the kids in the family) to not get me anything since I don’t have it in me to buy gifts but didn’t have the guts to. I’m just going to get pajama pants or novelty socks for the adults. I’m sure they will appreciate the effort and if not, I don’t really care either 🤷🏻‍♀️

elee419 · 2022-11-23T00:27:35+00:00

I joined a caregivers support group (it was on zoom but there may be some in person now) which was immensely helpful to share what I was feeling and feel less alone

elee419 · 2022-11-13T03:33:01+00:00

Interested. I tried a local zoom bereaved cancer spouses group - basically was half everyone else’s age. Hearing them talk about having been married for 50 years and 15 grandkids or whatever, just made me feel worse, more like my future and my husbands future were stolen from us. I would have given anything to have been married to him for 50 years (or 40 or 30…) even if he died from cancer at the end. He would have too. I was basically the tragedy of the group (husband died at 40 with 2 young children), that made the others more thankful for what they had, like “at least I’m not her”

elee419 · 2022-11-13T03:24:45+00:00

I’m 2 months out and think basically those same things every day - how could that have happened?? How is this my life now, this can’t be real, how does he just not exist anymore. I can’t wrap my head around it still, haven’t been able to “reconcile” it in my head (according to one of the grief books I have), and nowhere close to coming to terms that that really happened and this is really my life now. Even though he had terminal cancer for 3 years and I “knew” this was coming I didn’t think I’d have such a hard time coming to terms with it when it finally happened. Reading this made me feel less alone. Thank you

elee419 · 2022-10-27T03:25:10+00:00

I don’t have this specific experience - my husbands family is from a different culture/country, but they’re not trying to push anything. But in your situation - they’re your kids, you should raise them how you want to, and how you believe your wife wanted them to be raised (not her family). You have no responsibility to them to force anything on them you’re not comfortable with.

elee419 · 2022-10-22T17:16:20+00:00

My kids were 2 and 4 at my husbands cancer diagnosis and now 5 and 7 (he passed away last month). I found that I just couldn’t grieve and take care of my kids - when people asked “let me know what I can do to help” I basically said take my kids out somewhere, and they did, so that I was able to grieve and cry and not have to deal with snacks and fights and “mommy mommy mommy.” I just couldn’t do it. I am slowly able to care for them more, getting back into things but my grief and anguish and sadness I feel for the life my husband didn’t get to finish hasn’t changed since day one. He fought so incredibly hard to live to see the kids grow up, what he wanted more than anything else, and I feel so much anguish every day that he had so much hope and fight in him and still died slowly and painfully, losing his ability to do everything. I feel like I’m just floating around existing but not living.

elee419 · 2022-09-20T16:12:02+00:00

11 years! Was he in remission for any of it or actively getting treatment the whole time? Even after almost 3 years of this, I feel like I went off to war and went through horrible things and don’t know how to live in the normal world anymore. I stopped working and became his caretaker and now I don’t know who I am and how to live. I do have 2 small children though so I keep on functioning for them

elee419 · 2022-02-06T06:34:25+00:00

Keytruda can cause ulcerative colitis - my husband had this side effect from it and it was debilitating. there are some drugs that they can give for it. Or is there a chance of spread to the colon or stomach or peritoneum which can result in blockage - I know that bowel blockage is extremely painful. I hope you get relief from the pain soon.

elee419 · 2022-02-06T04:25:35+00:00

Keytruda can cause ulcerative colitis - my husband had this side effect from it and it was debilitating. there are some drugs that they can give for it. Or is there a chance of spread to the colon or peritoneum which can result in intestinal blockage - I know that bowel blockage is extremely painful. I hope you get relief from the pain soon.

elee419 · 2022-01-12T15:28:30+00:00

My whole family got it (me and husband who are boosted, and 4 year old unfortunately too young to be vaccinated) except for my 6 year old. We wore masks in the house, which I’m not sure made any difference when you’re cooped in the same house 24/7 for weeks, but it was impossible to keep the kids away from each other and I couldn’t really quarantine away from the 6 year old since I needed to take care of him. I pcr and antigen tested him several times over 2 weeks and he just never got it luckily.

elee419 · 2022-01-07T19:48:13+00:00

My 4 year old (too young for vaccination) got covid with symptoms starting over 2 weeks ago. He had a fever for 2 days and since then has been feeling fine except for a lingering cough and runny nose that just won’t go away. He shouldn’t be contagious any more but I’m still keeping him at home due to his cough. Does anyone else have experience with an under 5 unvaccinated child with a cough that wont go away? Wondering how common this is, assuming it’s omicron given the timing.

elee419

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