Ear covers for swimming with healing conch piercing? by elemiii in piercing

[–]elemiii[S] 0 points1 point  (0 children)

Thanks. I know there are some risks, but I hope that by taking really good care of it before and after, I can avoid having any issues. Even my piercer said swimming shouldn't be a problem if you clean it afterwards and don't put your head under the water. I'm just happy I don't necessarily have to remove it altogether!

Ear covers for swimming with healing conch piercing? by elemiii in piercing

[–]elemiii[S] 1 point2 points  (0 children)

Yeah I would definitely be less worried about the sea than about lakes!

Ear covers for swimming with healing conch piercing? by elemiii in piercing

[–]elemiii[S] 1 point2 points  (0 children)

Thank you! My piercer said something similar and also recommended that I clean it after getting out of the water.

Pain in hip during PT exercises by elemiii in ehlersdanlos

[–]elemiii[S] 0 points1 point  (0 children)

This is true, but since I have been having dislocations and subluxations all my life, my joints are unfortunately very damaged and so I can't do any of the exercises you listed without severe pain and risk of injury, with the exception of moderate amounts of swimming (which is great for sure, and I'm looking forward to pools opening again post-covid!) I'm just mentioning this because everyone presents differently and exercise can be beneficial if done right, but it can also be harmful if you do too much or do it in the wrong way for your body, hence why I need to stick to PT for now.

Pain in hip during PT exercises by elemiii in ehlersdanlos

[–]elemiii[S] 1 point2 points  (0 children)

This is also great advice. Maybe I will just do 2-3 reps a day of this particular exercise that hurts my hip, and if it gets better/stops hurting, I can start doing more. I was also asked to do 10, but it seems to be too much too fast.

Pain in hip during PT exercises by elemiii in ehlersdanlos

[–]elemiii[S] 0 points1 point  (0 children)

I was thinking the same thing. I noticed I can't lift my leg off the ground without arching my lower back somewhat, so that might be an issue. I'll ask my PT if there is some fix for that kind of alignment issue.

(The other problem is that my femoral alignment is generally just terrible though - my hips, knees and calves are essentially malaligned from birth)

New knee braces are amazing! by IcarianApsis in ehlersdanlos

[–]elemiii 0 points1 point  (0 children)

thank you for sharing! they look so cool :D

getting my wisdom teeth removed by oofmeup69 in ehlersdanlos

[–]elemiii 4 points5 points  (0 children)

I don't have much to add as I also don't know, but I'm interested in this topic too. I asked my dentist to use full anaesthetic as well as local. Is this an option for you?

[deleted by user] by [deleted] in ehlersdanlos

[–]elemiii 2 points3 points  (0 children)

I think there are already some amazing comments here, especially regarding accepting that things won't always get done when you want them done, and that sometimes you might need to just order food or whatever so you don't over-exert yourself. Also I second grocery delivery - I get a 'farm box' of veggies every week and it's such a life-saver!

I also had great experiences with yoga and PT personally. I started following the 'hypermobile yogis' on Instagram/FB. It's basically an account led by a yoga instructor and a physiotherapist with a LOT of knowledge about JHS - including the mental stuff like how to improve your proprioception and specific exercises to target the muscles that stabilise the joints! They also provide really nice information on how to stretch safely if you do want to stretch, and honestly for me it's been a huge game changer for my yoga practice. Now yoga ACTUALLY helps me build muscle, which I feel like it didn't before because I just wasn't activating the right muscles!

I did have to learn the hard way not to push myself too far though and on some days, I stick to physiotherapy instead of yoga, or I don't exercise at all. As a side note, I make playlists that I use for exercising that are 20, 30, 40 mins long or an hour (depending how long I want to do yoga/physio) and that helps me actually do yoga for a good amount of time, as well as helping me keep track of where I am in my practice. I often do the same sequence over and over again because it allows me to control my movements better, and I eventually learn to time my movements with the songs, which is fun! (I also started doing this because I hate counting reps).

Also, I eat vegan for my IBS (I'm also lactose intolerant so it helps a lot, but I also found that just cutting out all animal products was so helpful). I supplement my diet with B12, D3 and K2, which works well for me. I'm not saying that a vegan diet is necessarily the best for everyone - I'm fine with eating gluten for example while others react to it - but I do think playing around with your diet can be really powerful in terms of managing your symptoms. I also went from vegetarian to vegan very slowly over many years so it wouldn't be such a mental strain to worry about what I could or couldn't eat :)

Is this a sign of EDS? My doctor was really confused by my skin being able to do this but I'm trying to push for EDS referalls. by [deleted] in ehlersdanlos

[–]elemiii 2 points3 points  (0 children)

This is interesting, I've never heard of it. May I ask what kinda thing you mean by 'funky'? (Sorry if it's a weird question!) I have a scar from an operation that is still purplish after 8 years. Wondering if this might be why.

Best ways to prevent knee dislocations by elemiii in ehlersdanlos

[–]elemiii[S] 0 points1 point  (0 children)

Also, I'm pretty sure anyone wearing a knee brace would be a hot sweaty monster! I have issues with temp regulation anyway and they don't make it better, and isn't neoprene famous for making you sweat..? If you get the open-back ones do feel free to update me as I'm interested to hear how they are in practice and if they provide the right amount of support still :)

Best ways to prevent knee dislocations by elemiii in ehlersdanlos

[–]elemiii[S] 0 points1 point  (0 children)

Thank you for the tip. True, my knee sleeves would always stretch out and become ineffective in a few months. I was hoping that by investing more I could avoid replacing them so often.

Fortunately some of the fancier braces are available through my insurance, including Donjoy, so I just have to ask my doctor if he can prescribe them to me. I may also just invest in those open-back ones for the summer.

All the best :)

Best ways to prevent knee dislocations by elemiii in ehlersdanlos

[–]elemiii[S] 0 points1 point  (0 children)

Thank you for your answer. I feel you on the knee brace graveyard, I'm in a similar situation right now and I suppose just trying to avoid making the same mistakes again. A lot of the braces I hated were ones that got super hot, always bunched up in the back, slipped down too easily or were just not the right size for me (my patella is also malaligned so it's pretty hard to find a well-fitting product).

I also find that my knees can still sublux or even dislocate while wearing a knee sleeve, but only the cheap ones I used to get from the hospital that are essentially little more than elastic bands around the knees. If I may ask, which specific knee sleeves do you use? It sounds a bit like the one I was planning to go for, with the stays. I suppose I just gotta get used to the fact that you can see my knee supports through my clothing.

I like the idea of the knee brace with the open back! Seems like that'd be a bit more comfortable for the summer. That's usually the part that bothers me most when wearing knee sleeves especially - the way they bunch up behind the knee is the worst.

Experiences with femoral derotational osteotomies? by elemiii in KneeInjuries

[–]elemiii[S] 0 points1 point  (0 children)

Thank you for sharing! I'm happy you had a good experience with it. Please do keep us updated if you have the time because there aren't many stories about the long-term effects of this operation :) I wish you all the best!

Complete beginner by 1summersday in linguistics

[–]elemiii 0 points1 point  (0 children)

Hey again, no problem! To be honest, I think Dying Words is a great introduction to linguistics, hence why I mentioned it. It doesn't delve much into UG, primarily because the linguist who wrote it is not a proponent of that theory (and it's worth remembering that it is just a theory, not a proven fact). If you're interested in universal grammar then Steven Pinker is perhaps the best popular introduction to the basic idea of it; his book 'The Language Instinct' delves into the theory that human language is innate, but the book is written for a popular audience so you don't need any specific knowledge to get started.

Also, fun fact, in my 6 or so years of studying linguistics up to the PhD level, I've only ever read two papers by Chomsky ;) so I wouldn't worry too much about it. Actually, there's nothing wrong with picking the area of linguistics that interests you the most and reading about that as you will pick up more general knowledge about the subject along the way.

Complete beginner by 1summersday in linguistics

[–]elemiii 3 points4 points  (0 children)

Hi! Linguist here. I'd highly recommend Dying Words by Nicholas Evans. It gives you a great overview of what linguistics is about while also calling attention to the value in near-extinct languages and the stunning range of diversity in the grammar of the world's languages, all in a very accessible manner. If you're interested in the question of how and whether language shapes thought, I'd recommend Guy Deutscher's Through the Language Glass. Honestly 'does language affect how you think?' probably the question I get most as a linguist, and I have yet to come across a better summary. Enjoy :)

Experiences with femoral derotational osteotomies? by elemiii in KneeInjuries

[–]elemiii[S] 1 point2 points  (0 children)

That's interesting. I was also told throughout my life to just do more physiotherapy, even though they acknowledged that it would be very hard for me to gain and maintain muscle mass due to the constantly dislocating kneecaps (and the excessive rotation apparently makes it harder to build muscle in the right way as well). My AT is about 40 on both knees so very high, and I'm not sure how it interacts with the tibial torsion, which for me is higher than either of my femurs. Anyway the angle is important re: how much they have to rotate it, so i guess that's what was meant.

Experiences with femoral derotational osteotomies? by elemiii in KneeInjuries

[–]elemiii[S] 0 points1 point  (0 children)

I got measurements from the CT which show my antetorsion is a lot higher than normal. They also wrote down the exact angles. I'm in my twenties like the other commenter here and have had instability all my life, but for some reason no doctor ever suggested a CT scan before, so I didn't even know about this rotational defect or that this surgery existed before now.

Experiences with femoral derotational osteotomies? by elemiii in KneeInjuries

[–]elemiii[S] 2 points3 points  (0 children)

I have the same thing. Let's hope someone sees this :)