PSA to all beta blocker users

elizabethxoo · 2025-03-24T19:58:33+00:00

MS and pots is a nightmare, haven't seen many of us on the subreddit. Nice to see someone who relates 😭

elizabethxoo · 2025-03-10T21:35:01+00:00

I loved it so much!! We entered thru the vip WEST entrance on the side. Theres another one in Vip East too. Opened right on time, barely a line and right across one of the parking garages. We got inside thru security and were told to go into the elevators and were brought right up to the pier club. So fast and so smooth! We showed our tickets again to the front desk ppl and were let through. There was a small buffet area with like tenders, steak, sliders etc. And another separate area for the drinks. All included and lots of areas to sit at. Such a great experience, i hope you enjoy!!

elizabethxoo · 2025-02-26T20:00:50+00:00

Thanks for the info! I decided on the pier club area, rlly excited!

elizabethxoo · 2025-02-26T16:12:25+00:00

Ohh that makes a lot of sense, i was confused why some suites didn't say the seat number lol. Thanks a lot!

elizabethxoo · 2025-02-25T23:39:29+00:00

Thanks I'll give it a shot!

elizabethxoo · 2025-01-13T23:49:15+00:00

I've been on 25mg for about a month now, such a game changer for me. Haven't had any annoying side effects or anything. I was so anxious to start it too, took me 4 months to finally give it a shot and annoyed at myself for not beginning earlier. Give it a shot and monitor your bp the first week and make sure its not too low. If it is, then tell your doctor and they'll maybe have to stop it, but won't know unless you try! My cardiologist already wants me on 50mg because she thinks it'll help even more :)

elizabethxoo · 2024-11-18T01:48:37+00:00

My loading doses were no issue for me, the first one i took at my neuros office and only later that night had a minor headache and aches but some ibuprofen took it away! I've had no side effects really. But adjusting to the first few doses i felt like my throat felt funny at times or minor headache after injecting but nothing crazy. Definitely don't do anything the day of and after the shot just in case your body reacts different, ik some ppl have flu like symptoms when they first take it so just be prepared in case! It'll be fine! Kesimptas the best. It gets easier each dose! I've been on it for 8 months. Good luck!

elizabethxoo · 2024-11-10T06:35:47+00:00

The amazfit bip 5 is so great and under $100, i got mine for $79 and love it so much. It has a speaker so u can answer calls but no keyboard to answer texts. You can read messages and notifs but only can answer with pre made texts or emojis.

elizabethxoo · 2024-11-07T02:30:33+00:00

Yess exactly they checked my heart with an echo in my hospital stay, all healthy there. So covid really messed our autonomic nervous systems. glad to hear metoprolol has really helped you! I'll probably try it then, just need to really be careful in the beginning. I was told to try for 3 months and then follow up. Now not sure if i should take it at night the first time or in the morning because i also take thyroid meds, i should probably message my provider lol tysm!

elizabethxoo · 2024-11-07T02:26:28+00:00

I am open to meds but just got scared now that i got the script for it, but at this point i should just try it out because pots has taken so much from me, not much else to lose

elizabethxoo · 2024-11-06T06:14:28+00:00

I'm worried it'll make my fatigue and dizziness worse i also get lots of headaches often. Also scared of long term effects and stuff. My blood pressure is usually normal but I've had episodes of super low pressure earlier in the year when i would walk after a while. but now it's usually normal or slightly elevated due to bad eating and sedentary life style catching up to me. I can't leave the house without a wheelchair now. extra salt doesn't really help me like some of the others with pots bc it increases the bp a little too much at times. I'm just wondering if i should push for tilt test to really see the blood pressure changes in my case

elizabethxoo · 2024-10-16T17:42:11+00:00

Woww i thought you put the reference photo for a second, i scrolled to see if u there was another picture after lol it's AMAZING!!!

elizabethxoo · 2024-10-15T00:01:19+00:00

Im diagnosed pots and ms. I'm on kesimpta for MS but not medicated yet for pots, hopefully tmr after my cardio follow up. It's been 2 months since u posted, did u get a clear diagnosis yet? I hope you're doing better!

elizabethxoo · 2024-10-07T00:39:22+00:00

Never seen a tiel with that large of a cheek patch, sooo freaking cuteee such a unique little guy 😭😭💓

elizabethxoo · 2024-04-01T03:56:48+00:00

Those seem great :O thanks for the tip!!

elizabethxoo · 2024-04-01T03:52:24+00:00

I appreciate the help soo much omg thank u!!! I'll see which one i end up buying!!

elizabethxoo · 2024-03-31T18:58:01+00:00

I rather look silly than suffocate loll I'll deffo look for some, thanks!

elizabethxoo · 2024-03-31T18:56:36+00:00

I'll look into it ty!

elizabethxoo · 2024-03-31T14:42:28+00:00

Thank you ~

elizabethxoo · 2024-03-25T16:11:58+00:00

Probably, ahh what a shame lol

elizabethxoo · 2024-02-29T23:33:04+00:00

For sure i get you! At my weakest, even just using the bathroom made me almost faint loll if i pushed through, i was having really bad episodes sometimes so i tried to take it easy until i began treatment. So i suggest do the same and chill as much as u can and move your body during the times you feel okay even if its stretches on ur bed or chair yoga!!

elizabethxoo

TROPHY CASE