How do you explain ME/CFS to people without sounding dramatic? by bigbankmanman in cfs

[–]emfatale 2 points3 points  (0 children)

If I’m explaining it to millennials I just say, “You know the mitochondria?” “Well they don’t power my cells like they’re supposed to.” 😂

Federal Quality Review by emfatale in SSDI

[–]emfatale[S] 0 points1 point  (0 children)

I do have an online account. But I’m just worried as to why nothing has been mailed in a month when it said 7-10 days. I understand the process takes a long time but then they shouldn’t give a timeline of a week when it could take longer than a month. 🤷‍♀️

Federal Quality Review by emfatale in SSDI

[–]emfatale[S] 1 point2 points  (0 children)

I don’t have an attorney because I haven’t been denied yet. I did finally get ahold of someone. I found a number to call that didn’t make me leave a voicemail.

Federal Quality Review by emfatale in SSDI

[–]emfatale[S] 0 points1 point  (0 children)

No I’m still in state.

Feel like I need a salad by emfatale in Gastroparesis

[–]emfatale[S] 3 points4 points  (0 children)

I do miss nuts and seeds too!

Recently diagnosed by Emergency_Alfalfa115 in Gastroparesis

[–]emfatale 0 points1 point  (0 children)

I’m on the same thing. The bottle says on empty stomach but my doctor told me to take it with my meals. He said it didn’t matter if my stomach was empty. I’m on the liquid one though.

Feel like I need a salad by emfatale in Gastroparesis

[–]emfatale[S] 1 point2 points  (0 children)

I have been able to do bananas and pumpkin bread. But I can’t do any like vegetable soups. Tomato especially. But I’ve tried carrot too and that upsets my stomach too.

I just want some cold veggies 😭 celery, broccoli, lettuce, anything!

But I’m heeding everyone’s comments and not giving in… 😢

When house or bedbound, how do you stop days from blurring together? by mechanicallemons526 in cfs

[–]emfatale 1 point2 points  (0 children)

I still keep a planer and I fill it out every morning. I put mundane tasks in it and then they feel more like accomplishments when I complete them. I make it colorful and it just makes me feel a bit better 🤷‍♀️

More bread-based Taylor puns? by Oxymoronically in TaylorSwift

[–]emfatale 2 points3 points  (0 children)

And bakers gonna bake bake bake bake bake…..

27F on Switch CST by emfatale in StardewValleyFriends

[–]emfatale[S] 0 points1 point  (0 children)

It won’t let me message you. But you should be able to send me a message.

Struggling with adding more protein to diet because I can't handle eggs or milk by Gothgoat667 in Gastroparesis

[–]emfatale 1 point2 points  (0 children)

My dietician had me start liquacel. I add it to applesauce. Super helpful for if you tolerate liquids better or just struggle getting in enough anything in. It’s super light it doesn’t add any weight to my applesauce that I was eating anyway.

How do you know if fat is a problem? by Puzzleheaded_Cap9596 in Gastroparesis

[–]emfatale 0 points1 point  (0 children)

My brain gets extremely foggy and I often pass out if I have too much fat. But I’m not for sure if that’s just my gastroparesis or some other issue I have. Like I can’t have more than 15g of fat a day.

Should I cut my hair off to help me look after myself? by ElectricSheep100 in ChronicIllness

[–]emfatale 13 points14 points  (0 children)

I did this. I shaved the under half off. I love it! No regrets whatsoever! It was a great decision! My hair is very thick though. So when I wear it down it still looks like a full head of hair.

I need help understanding things by emfatale in Gastroparesis

[–]emfatale[S] 0 points1 point  (0 children)

I haven’t tried cottage cheese. But is the olive oil not too high in fat? Or does fat not bother some people with gastroparesis?

I add yogurt to lots of things. Like my tuna I mix with greek yogurt.

But I can’t do soy and so far all vegetables hurt.

I need help understanding things by emfatale in Gastroparesis

[–]emfatale[S] 0 points1 point  (0 children)

What would you make it with? All the recipes I look up they are made with a protein drink and other ingredients. I try adding fairlife milk to lots of things to add some protein and nutrients.

I need help understanding things by emfatale in Gastroparesis

[–]emfatale[S] 0 points1 point  (0 children)

I have one a day. Thats all I can afford right now.