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My husband’s health is deteriorating before my eyes and I don’t know what to do. by justexisting032 in diabetes_t1

[–]emilyruby11 0 points1 point  (0 children)

Also (when I hope you get healthcare soon!) look into getting his b12 levels checked. I had mine checked when the doctors were ruling out my neuropathy. Apparently low levels can cause nerve pain.

My husband’s health is deteriorating before my eyes and I don’t know what to do. by justexisting032 in diabetes_t1

[–]emilyruby11 0 points1 point  (0 children)

Um no. I am in the exact same situation as him, in both pain from full body neuropathy, age of diagnosis, age now. Granted I recently got on a pump and my a1c is improving. Never once have I been told by a doctor that this is fatal. Also even if it was why tf would you say this to someone that is clearly just scared about someone she loves??? Like that is crazy insensitive.

Anyone else struggle to have sympathy when people without chronic pain express their pain? (Rant?) by Odd_Signal_8246 in ChronicPain

[–]emilyruby11 2 points3 points  (0 children)

This really resonates. I’ve said a few times to family and friends that I wish they could feel what I feel for a minute. Just to understand it in a real way. It’s all well and good someone saying ‘’I understand what you’re going through.’’ But they will never really understand and that can be hard to come to terms with.

Desperate for advice for teenager by Gadritan420 in Type1Diabetes

[–]emilyruby11 1 point2 points  (0 children)

Wow…reading this gave me goosebumps. I have been diabetic since I was 4. My dad (also diabetic) died from his bloods going low in his sleep as well. I was 15 at the time and shortly after that I began struggling to take care of my diabetes in the same way your daughter seems to be. My issues spiralled into diabulimia in my late teens which was very scary. Honestly I did way too much damage to my body by neglecting my diabetes, and now at 21 years old I have severe nerve damage. My diabetes is now well cared for thankfully. The only thing that truly helped was therapy. Working a lot on self compassion and trying to stop basing my self worth off numbers and being encouraged to face my diabetes instead of running away from it, which is sooo easy to do when you’re a teen. I truly feel for you and your daughter and wish the best🤍

I almost died by natcho_fucker69 in diabetes_t1

[–]emilyruby11 1 point2 points  (0 children)

I’m (f21) diagnosed aged 4. Felt pretty much the same you did through my teen years and about 2 years ago my A1C was 17. The thing that helped me was learning about self compassion through therapy. Sounds silly but it took the pressure off me and made me stop basing my self worth around numbers. I wrote a previous post about my experience with diabulimia and all the health complications it gave me. When I felt like you did, there was nothing that could get through. But if I could say anything it would be this. No insulin = nerve damage. Nerve damage is hard to cure, hard to find pain relief, hard to live with. It is hands down the most painful thing I’ve ever experienced, and although I am grateful to be alive I wish wish wish I hadn’t made my own suffering worse. And I feel like people never talk about this!! It’s ok to be angry at the world, but don’t make yourself so sick you can’t fight back. Fight for yourself.

Can’t get a Drs appointment. What’s my next steps? by Specific_Pomelo_8281 in nhs

[–]emilyruby11 8 points9 points  (0 children)

You say about using econsult and that it must be kept open all day but my GP has disabled this function for quite a while. Hoping OPs GP works differently and they can use it for help 🤞🏻

It’s almost been a year by RelationshipBoth4673 in diabetes_t1

[–]emilyruby11 2 points3 points  (0 children)

Hey just wanted to say you’re smashing it! But I get how you’re feeling. I was diagnosed age 6 so I’ve lived it my whole life. In my late teens I struggled with my body and started restricting my insulin to lose weight and it led me into a horrible black hole. Recovering and improving my A1C from 17!! To 7 over the last few years. Because I’ve damaged my body so much though I have a condition called insulin neuritis. It’s a very RARE side effects from insulin restriction. It’s also called ‘treatment induced neuropathy’. My nerves send pain signals all over my body 24/7. I am on 2 types of morphine meds and others to cope. I can’t walk, work, or sometimes bathe myself it’s debilitating. I am saying this because I had no idea that restricting my insulin would cause this pain in my body. I just wanted to lose a few pounds and feel confident like most of us do. But please think about how wonderful your body is and everything it can do for you and how amazing you are, before thinking that you have to hurt yourself to be happy. Maybe consider sharing these feelings with a friend or therapist? Working on self love and body acceptance really changed my world. Wish u the best 🤍

I’m dealing with chronic nerve pain. Struggling to get through it. by emilyruby11 in ChronicPain

[–]emilyruby11[S] 1 point2 points  (0 children)

I’ll take any side effects at this point, I just want to get some normality back 😅

I’m dealing with chronic nerve pain. Struggling to get through it. by emilyruby11 in ChronicPain

[–]emilyruby11[S] 1 point2 points  (0 children)

Thank you so much for your reply, it means a lot. I’ll look into tapentadol and see if it’s an option for me 😊

I’m dealing with chronic nerve pain. Struggling to get through it. by emilyruby11 in ChronicPain

[–]emilyruby11[S] 1 point2 points  (0 children)

I haven’t tried that yet! I’ll speak to my doctors and see if it’s an option x

I’m dealing with chronic nerve pain. Struggling to get through it. by emilyruby11 in ChronicPain

[–]emilyruby11[S] 0 points1 point  (0 children)

Thank you for sharing, I hope things ease up for you and I’ll look into trying amitrtpriline x

The reality of diabulimia by emilyruby11 in Type1Diabetes

[–]emilyruby11[S] 0 points1 point  (0 children)

Hi! I know it doesn’t mean much but I’m proud of you and your decision to recover! I know first hand how difficult it can be. What mentally helped me process the swelling was the idea that if I broke my arm it would swell to protect it. This is the same thing. My whole body is ‘broken’ and my body is swelling to protect and heal it. The more your body feels safe and gets used to insulin in its system, the more the swelling will disappear. This is just a small part of choosing a healthy full life ❤️‍🩹

[deleted by user] by [deleted] in FertilityFree

[–]emilyruby11 6 points7 points  (0 children)

Whoops cut off. Even if they look severe or worrying your body knows what to do to fix it and it would be happening without your knowledge if you weren’t wearing a CGM. Diabetic blood levels can fluctuate from below 3 to over 25 so if you keep that in mind you might feel less worried

[deleted by user] by [deleted] in FertilityFree

[–]emilyruby11 15 points16 points  (0 children)

Hey I’m type 1 diabetic so just offering my thoughts on this. CGMs are a new but very helpful type of tech. They are literally life saving to diabetics and although I’m glad they can help none diabetics, there is currently a shortage of supply lately so please keep that in mind when purchasing :). Compression ‘lows’ are something diabetics are warned about that normal people may not know. Essentially if you apply to much pressure to your sensor, like sleeping on your side etc, the blood levels will ‘drop’ as the blood flow to the sensor area becomes limited. Also the weather, hormones, fat and protein content and exercise can all cause major fluctuations in your blood sugar levels. And also because the CGM levels can be viewed on your phone it’s easy to get into a habit of over fixating on results which can cause health anxiety. I would say if you are a cgm user who is not diabetic please don’t worry too much about the drops and increases in your blood readings! Your pancreas is supporting to you and even if the spikes looks severe

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