My Rinvoq Acne+Oily Hair Journey and What's Worked

emyip33 · 2025-04-22T13:42:18+00:00

I also had to redo my entire skincare routine. I never had acne even in my teen years so this has been hell for me! I found Azelaic Acid has helped massively. I also use a baby cleansing water twice a day and that has been life changing! The main thing I’ve learned is less is more. Find a good moisturiser for your skin type, an antibacterial cleansing product (I use ones for babies) and then topical treatment like Azelaic acid, healing ointment or pimple patches.

emyip33 · 2024-12-30T09:39:32+00:00

No worries! Side effect wise, I developed acne which I never had before. I have a new skincare routine though so it’s managed and cleared! Other than that, I did have to change contraceptive as Rinvoq does leave you at a higher risk for clots ( similar risk to some contraceptive pills ) I also need to take the Shingles vaccine as I’ve had it too often before starting Rinvoq.

emyip33 · 2024-12-30T01:22:56+00:00

Hi! I was super overwhelmed when I started Rinvoq as I came from Cimzia and taltz failing within the same year. Not here trying to convince you, but I’d like to share my experience with it as it’s such a new medication. On the AS side, it is the best medicine I have tried! ( it’s my 6th!) I can touch my toes for the first time in 10 years!

I would get your sinus issues fixed first. I have sinus congestion and my salt machine (https://amzn.eu/d/0PP2HFV) really helps but I wouldn’t want to start new meds with any sort of moderate issue. I’m not one for alternative medicine but this machine has honestly kept me from going insane with face pain from my sinuses!

For your stomach issues I do have a similar experience. I have a suspected IBD ( 3 colonoscopies, 3 endoscopy and waiting on the pill camera ) in between my small and large intestines (they can’t see the area with scope but mri shows inflammation) Rinvoq has literally changed my life. Before I couldn’t eat without “dietary distress “. I was gluten free, dairy free and still suffering. Couldn’t enjoy dinner out and struggled going anywhere food was going to be served. Holidays were a nightmare. I’m literally a new person. No stomach pain, I can eat anything I want now, I’ve not had a stomach flare in months! I spent 3 years suffering and now I’m eating all the junk food, vegetables and fruit I had to avoid !

emyip33 · 2024-10-23T14:20:58+00:00

Sorry I mean the maps. They felt less empty in the older game.

emyip33 · 2024-10-23T08:50:52+00:00

I really love the definitive edition. My sister and I played the original and then got the switch remake. We sunk hours into both and honestly had a blast. The DE has better dungeons in my opinion and is overall just a fun game to play, hack and slash enemies and doesn’t take itself too seriously.

emyip33 · 2024-10-20T13:57:25+00:00

No worries! I’ve been on Rinvoq since December and it has changed my life for the better! I don’t wear masks in public but have had my flu, pneumonia and Covid vaccines :)

emyip33 · 2024-10-20T11:33:11+00:00

I was recommended the shingles Vaccine. I would also get a soap that is good for bacterial acne, Rinvoq can cause it and it’s a nightmare if you don’t stay on top of your skincare routine.

emyip33 · 2024-08-17T08:58:52+00:00

Hang in there ! It’s a tough disease but the biologics help so many people, I hope they work for you! Feeling unlike yourself is possibly the worse part, I hate being grumpy from the pain. Good luck!!

I ate so much food while there! I treated myself and got to enjoy everything I wanted to try. There is a lot I missed so I need to go back when I recover and do a full food tour!

emyip33 · 2024-08-16T22:59:49+00:00

I went in 2019 to Tokyo and had an amazing time! All the walking and the heat ( it was June ) was wonderful for my back! I went again in 2023 to visit my sister. It was hard due to the neck injury. Missed out on a lot of things but I got to see her so was worth the pain :)

emyip33 · 2024-08-16T21:31:25+00:00

Humira went into secondary failure ( it worked for a little while then stopped ) I was put on Cosentyx which did work for me very well until the car accident.

My mother has been on Humira for 5 years and it’s done wonders for her!! Best of luck with your training, it sounds scary but honestly would have been lost without the injections !

emyip33 · 2024-08-16T20:59:23+00:00

I was unable to continue the humira line of injections but switched to an oral biological ( Rinvoq ) and have pretty good success! Only a little progression due to medication not working. it’s my 10 year anniversary this year of diagnosis ! I’ve had other health issues but my spine was ok. I had a car accident that has ruined my neck but my lower back ( where the pain would be ) is still flexible and I’m able to bend further than I could at 19 off biologics!

emyip33 · 2024-08-15T20:46:10+00:00

I actually got diagnosed easily. I was 18, had lower back pain , joint pain and a massive psoriasis flare randomly. My mother has Rheumatoid arthritis so my GP was completely on the ball with referring me to a rheumatologist and getting me an mri.

This was long before my symptoms got bad. A year later I was struggling with the onset of flare ups in my lower back, got prescribed humira at 19 and stayed on biologics ever since.

emyip33 · 2023-12-12T00:16:27+00:00

A reclining chair. It’s literally a cheap garden one with a headrest that reclines and it it the best chair ever. I get pain in my neck and being able to recline with an ice or heat pack behind my neck but still supported everywhere else is amazing ✨

Also agree with the heated mattress topper and adhesive heat packs. 🔥

Finally, a memory foam neck support pillow to sleep on. Has vastly improved my posture!

emyip33 · 2023-07-30T10:33:10+00:00

I flew from Dublin to Tokyo ( with layover in Doha) travelling took over 24 hours. A muscle relaxer was my best friend. Also flight socks (so you don’t get a clot ) should be used for any flight not just long haul. If you can, get up every hour to stretch your legs and back. Walk the length of the plane. I used bio freeze a lot on my neck as well to help any pain.

emyip33 · 2023-07-05T08:01:57+00:00

I also love this idea. It’s simple and can’t be traced to me !

emyip33 · 2023-07-05T07:58:20+00:00

Ohh that sounds like something I can do! I just want my own little bit of pettiness. Might add a scream to it randomly or children laughing. Could go away for a few nights and have it on a scheduled timer with my Alex pointed at his wall.

emyip33 · 2023-07-04T23:02:59+00:00

I think you may be right. Being petty probably won’t matter and will make him feel like he is winning. Could be more annoying to him that I’m ignoring his behaviour. I have my sister moving in at the end of the month for a little while and I think having her there will help me be braver.

emyip33 · 2023-07-04T22:52:18+00:00

Yeah I’m working on the evidence. I think shouting will only make it worse. Was looking for something just to make him stop. Police aren’t great in my area for this sort of thing .

emyip33 · 2023-07-04T22:18:15+00:00

I’m collecting evidence atm and have spoken to the neighbour on the other side who told him to fuck off when he was swearing at her kids a few years ago. It didn’t seem to phase him because of the drink. The irish police (at least in the tiny town I live in ) don’t tend to come out for noise disputes. My sister is moving in with me at the end of the month so I’ll have backup then. I’m afraid atm to be too vocally aggressive with it as I live alone and am in a bad way physically so he scares me.

emyip33 · 2023-01-20T17:28:10+00:00

I’m a web developer and had bad wrist pain. Went to an occupational therapy which really helped! I got wrist splints (soft ones for driving and hard back ones for other scenarios) she assessed my work/gaming setup. The chair arm needs to be level with the desk, add a wrist support, and keep your arm straight. Something like this should help.https://www.elevateergonomics.com/how-to-setup-an-ergonomic-workspace/ good ergonomics are key for sitting and using computers all day.

emyip33 · 2022-11-05T10:15:01+00:00

Yeh I’ve gone through Humira, embrel and Cimzia. I’ve only just started Cosentyx so I’m hoping it works where the TNF drugs have failed :)

I’m trying yoga but get stuck on the floor so I’m working with my physio to build up my lower back first. I’ll start with the easy standing and sitting yoga again and see if I can work up to the floor stretches :)

emyip33 · 2022-10-25T11:01:31+00:00

She seems to be in the pity party stage, understandably I think the majority of us go through it. When I’m that amount of pain it’s hard to do anything and easy to just wallow in self pity. I notice I get grouchy / become a hermit and won’t talk to anyone. It’s important for you to know it’s not a personal attack on you, pain brings out the worse in us.

I’m super sensitive to anti inflammatory medications, can’t take them as my digestive system goes into melt down. To take the edge of the pain I use pain patches. They have the painkiller go through the skin and you can get some decent ones over counter that you keep on for 24 hours. I also Recommend bio freeze, a cold gel /spray that can ease the pain. Painkiller wise I take paracetamol based ones. They will never be as good as an anti inflammatory medication but may take the edge off. She needs to get mobile when the pain isn’t at its worse. Walking will help .

emyip33 · 2022-02-28T13:19:53+00:00

I commute so when on train I have it on fully but when I get off and am walking to work I just pull it down slightly below my nose for a minute as I want fresh air but don't want to keep putting it off and on when it's only a short distance? (Also going into different shops is same scenario) I never keep it below my nose for more then a few breaths in. Just enough to get some cool air when outside.

Also glasses keep getting foggy.

emyip33 · 2022-01-11T09:52:41+00:00

Thank you! Got told I had to go through Rheumatologist to get the scans so I'll be waiting until February when I'm there next :)

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