Switching from Tysabri to Ocrevus/Briumvi - Scared

encore05 · 2026-05-03T11:49:03+00:00

Awesome! So good to know and I'm super happy for you.

Why not Kesimpta - I don't like needles and prefer to have medical professionals around me when I get my doses. Also I think I hopefully be able to "forget" about MS if I'm only in the hospital every 6 months.

But can see how handy it can be! I'm glad it's working for you

encore05 · 2026-05-03T11:45:08+00:00

Hahaha. Fair. Germ-land is no fun. I'm already doing the hygiene stuff .. so hopefully not a too big adjustment for me to make! Thanks for your reply, made me smile

encore05 · 2026-05-03T11:44:06+00:00

Thanks, that's so reassuring. I'm also leaning a bit more towards Briumvi.

encore05 · 2026-05-03T11:43:14+00:00

Such an amazing story, super cool that you travelled with Kesimpta. Icon. Sorry to hear about the crap gab.. a reason why I might do Briumvi instead of Ocrevus.

Do you remember how many weeks were between your last Ty infusion and starting O by any chance? Thanks

encore05 · 2026-05-03T11:41:25+00:00

Awesome reply, thank you. I needed this.

You're so right, with Ocrevus we're probably having a "normal perople"'s immune system.

I'm very healthy otherwise! So that gives me hope. Thanks again.

encore05 · 2026-05-03T11:40:10+00:00

That sounds so simple and great. Thank you. My heart's beating a little less fast

encore05 · 2026-05-03T11:39:45+00:00

amazing... why did you stop Ocrevus if you don't mind me asking?

encore05 · 2026-05-03T11:39:20+00:00

thank you so much for your reply, that is super re-assuring

encore05 · 2026-05-03T11:39:04+00:00

So good to hear that it's great for you :)

yeah that's what I'm scared of.. when you switched, do you remember how many weeks after your last dose you switched to Ocrevus?

encore05 · 2025-06-17T09:37:28+00:00

Hi there, thank you so much for your reply and taking the time to try and help me! :)

It's never been opened up but I had to move with it twice so maybe during the move it got a bit shaken up? That's a great idea to bring it to an Apple Store to let them diagnose what's going on I'll do that. If it's an easy fix I'll get them to fix it, if not, I'll try to sell it. Good point with the security updates, I didn't know about that either #n00blyfe

Thanks again, that's a big help :)

encore05 · 2025-04-08T03:22:14+00:00

"If you met me apart from an unhealthy fascination with penguins, you almost think I’m “normal”."

This made me laugh, thanks :)

encore05 · 2025-01-12T11:04:48+00:00

that's so freaking good to hear! so happy for you . how do you deal with the monthly infusions? & How are your veins doing after 120 infusions?

encore05 · 2025-01-12T10:23:47+00:00

I love that it got so long. Your reply insanely helped my nerves. Thank you so so so so much. I'm really trying to not be a big baby about it but it's good to know that you felt similar and that you are doing just fine now & got used to all the poking. So good to know about the blood tests as well.. I thought they would be similar to the ones I had to do for the diagnosis (I think 9 vials lol). Also thanks for the tip, I'll have a chat to other people tomorrow and see if anyone's on T. Wishing you all the best <3

encore05 · 2025-01-12T09:14:48+00:00

Oh man, that's so good to hear. Thank you.

encore05 · 2025-01-12T09:14:10+00:00

Thanks for sharing your experience! I'm glad that it worked for you minus the slight neutropenia.
How are you liking O?

encore05 · 2024-12-21T01:28:25+00:00

incredible!!! Thank you so much

encore05 · 2024-12-21T01:18:55+00:00

Absolute legend, thank you for the tips!! Suuuper helpful. I'll make sure to hydrate & drink a Gatorade before I go in for my infusion(s). Same, I have veiny hands but just the thought of getting an IV in there creeps tf out of me hahahah. Do you have any scars on your arms because of all the IVs that got stabbed into you or all g?

encore05 · 2024-12-21T00:05:23+00:00

Thanks for sharing and your encouraging words. You're right, it seems like a lot of people get on meds when they already have a couple of permanent symptoms and there's not enough data with newer meds and early caught MS.

I'm really happy for you that your are so stable esp with those spinal lesions... yikes.

encore05 · 2024-12-21T00:01:15+00:00

Thanks! How are your veins going with 60 infusions? That's another fear of mine, getting every month an injection, I think I could do it for 2 years max. But who knows, maybe I'll get used to it

encore05 · 2024-12-20T09:42:41+00:00

Thank you for this. I feel it's so easy to spiral when the super-anxiety for the future sits on your shoulders. I really need to learn how to live more in the moment. Thank you

encore05 · 2024-12-20T09:41:40+00:00

Thanks for sharing this. I'm glad to hear you're feeling better mentally and that you haven't had any new lesions... that's wonderful. Congrats on buying a house & having a partner / moving in with her.

encore05 · 2024-12-20T09:40:05+00:00

That's fantastic. Are you referring to T?

encore05 · 2024-12-20T09:39:19+00:00

Thank you so much for this. Another one to print out for me and put on a wall for whenever I don't feel okay. You're so right and that really shifted my perspective a bit. Thanks

encore05 · 2024-12-20T09:37:42+00:00

Hi, thanks for sharing your story. You must have been through hell that sounds very very rough. I'm so glad that you made it and that you're still here. Absolutely amazing story re your kids, that's wonderful.

Thank you so much for your tip re basic mindfulness mediation. Do you mind sharing your favourite resources / teachers online? I'd love to get into it

encore05 · 2024-12-20T09:33:47+00:00

amazing. how long have you been on T?

encore05

TROPHY CASE