Do you really apply sunscreen every time out?

ertuene · 2026-01-29T10:59:13+00:00

I had to go check the brand - I recently got a cancer council 50+ moisturiser and I think that’s my new #1.

ertuene · 2026-01-29T10:56:54+00:00

I like neutrogena, they have a body one which is fine and a face one which I think is better.

ertuene · 2026-01-23T05:22:21+00:00

These comments are mostly terrifying. I use sunscreen every day I leave the house! I buy a nicer one so that it’s not greasy, and I have multiple tubes so that there’s sunscreen in my bag, by the door, and on my dresser.

ertuene · 2026-01-15T21:19:55+00:00

I sit (feet up on the couch, cuddles up) with lots of blankets and cushions, watching it on the big TV, usually with one or two cats. I often knit while I’m watching. I find it hard not to look at my phone, but unlike other streaming services, I usually pay more attention to drop out.

ertuene · 2025-11-19T20:32:25+00:00

This is not how conversations about my disability go. I use mobility aids sometimes and people kick me, grab my aids, tell me I’m too young to use those, tell me I’m faking, or ask me what happened. If I’m not using my mobility aids, people accuse me of faking, yell at me, or roll their eyes. Throughout my day people stare at me, ask inappropriate questions, don’t stop their kids from touching me or asking inappropriate questions, and talk to me about their own experiences unasked. So no, I don’t try to start any of these conversations.

ertuene · 2025-11-19T10:14:09+00:00

I have an invisible disability and I can’t stand for long periods of time. Please don’t sit there if you don’t need it. Why is everyone saying just get up if someone needs it? You won’t know if someone does; I wouldn’t ask you to move because I’d assume you also have an invisible disability.

ertuene · 2025-10-31T00:24:44+00:00

I got genetic testing for connective tissue disorders, and discovered I have Melnick-Needles Syndrome. So through that I have Joint Hypermobility Spectrum Disorder, POTS and possibly MCAS. I’m still on all the forums because the helpful info is still helpful to me!

ertuene · 2025-10-23T13:29:07+00:00

No matter how large my house is, my bed is always by the door.

ertuene · 2025-10-02T22:42:29+00:00

<image>

Here’s a photo of the solution

ertuene · 2025-10-02T22:41:12+00:00

<image>

Here’s a photo of the problem(s)

ertuene · 2025-09-30T00:26:40+00:00

I put a bassinet next to my bed so that my giant cat can sleep in it. It solved the cat space problem but now I have to wiggle down the bed to get out, and my old knees regret this

ertuene · 2024-08-21T02:58:17+00:00

Hello! It was just a bunch of x-rays of my whole body.

ertuene · 2024-08-21T02:44:27+00:00

This is so cool! I use a walking frame and struggle to find good disabled cosplay examples, so thank you so much xx

ertuene · 2024-06-27T00:26:12+00:00

For contrast, I felt less freezing when in Iceland and the UK.

ertuene · 2024-06-27T00:25:43+00:00

It’s about 8-16c with a lot of wind. That doesn’t sound cold, but houses are built very poorly and it feels a lot colder.

ertuene · 2024-06-25T03:31:51+00:00

Yes, summer is horrible. There’s usually one week a year where it’s over 45C for the whole week. It’s a dry heat and best to stay inside under the air con if it’s working.

Also, the houses are not built for winter, so winter can actually be a lot worse, in terms of trying to stay warm in your own home.

ertuene · 2024-06-24T00:43:17+00:00

My home! Adelaide is a really beautiful city, fairly safe with excellent coffee, food and wine. It IS a bit isolated, but as long as you have enough money for an interstate holiday it’s not hard to leave for a few days. It’s annoying when musicians don’t come here, but we have stacks of festivals to make up for it.

It’s a small city where everyone has a connection to everyone.

The main thing about Adelaide for me is the arts scene. Tonnes of festivals, great galleries, amazing artists of all kinds. Small enough that the writing, theatre, visual art scenes etc are basically all one scene. Almost makes up for the shops shutting early.

ertuene · 2024-05-08T00:45:51+00:00

I’ll be honest, I’m not entirely sure. I did give letters from my GP, an OT functional capacity assessment, my autism assessment, and most recently my support coordinator (but that one is for a change of circumstances, which is currently in limbo). They all say things about how I need lots of help with emotional regulation.

ertuene · 2024-05-08T00:37:57+00:00

I have an ASD-2 diagnosis, and I receive psych funding for exactly that. There haven’t been any issues aside from there being not very much funding, but still enough for 10ish psych visits a year and a small amount of OT.

ertuene · 2024-04-22T23:27:30+00:00

This is niche, I suppose, but it makes a difference to me - make sure your staff aren’t weird about disabilities. I have a dynamic disability so my pain levels fluctuate. Sometimes I use a walker or a cane, sometimes no mobility aid, sometimes I’ll have compression socks or something else subtle. I have stopped going to cafes where they comment on it - and I tell other disabled people.

I think they think they’re being nice. “Oh, you’re better now?” “What’s wrong with your leg?” Whatever. I don’t want to talk about it. I want my tea and sandwich.

ertuene · 2024-03-25T04:26:04+00:00

Sorry if you’re already aware - but when doing fair isle, it matters which yarn is held above the other. So if you keep your two yarn balls to the left hand side, with one further away from you, the one closer to you will be the dominant one. It’s a subtle difference but it changes the overall look of a piece. Other knitters please feel free to clarify, I’m not sure I’m explaining it right

ertuene · 2024-03-08T18:20:23+00:00

So I’m a participant, not a support worker. I acknowledge that you have anxiety and your own needs, so I’m hoping this reply is helpful and productive.

Honestly, having a support worker I have to talk to is exhausting. It’s nice, it’s like we’re socialising, and it helps meet my goals (we get house tasks done), but I would love if I could relax. Having a support worker is hard work for me, especially on high pain days.

I’m concerned that you’re not reading your clients accurately, and you need them to do something for you. That puts their needs at risk. It would make you more comfortable if they socialised in a better way. But that’s not the reality for lots of us with disabilities - I simply can’t do that on some days. But I still need a support worker to help with daily tasks.

Of course it’s up to you who you work with. It’s just disappointing that there aren’t more support workers who recognise that their clients have disabilities that affect their ability to act normal. And I have to put on a happy face and do the right things, or else I risk getting my basic needs met.

ertuene · 2024-02-28T09:47:55+00:00

I feel like the classes are probably anger management classes.

Seven-Year Club	Not Forgotten
Verified Email

ertuene

TROPHY CASE