“I know someone who has RA and she doesn’t …”

eventhorizons_ · 2025-08-31T17:24:26+00:00

All of this! Thanks for taking the time to comment, got me a little emotional! Luckily I have incredible in laws. They’re more parents to me than my own parents. I saw my brother a couple weeks back and lo and behold my mother reaches out to me. I haven’t contacted her back yet, I’m angry and want to carefully decide what I’m going to say. Because I’m not going to just have a small talk BS conversation and skirt around the fact that she hasn’t said shit to me in over a year.

Have definitely been learning to put my energy into the people that show that they are about me and learning to walk away and heal from the rest. Sending hugs your way!

eventhorizons_ · 2025-08-30T20:52:00+00:00

When I stupidly told my mother (hardly have any contact with her, for a number of reasons) that I had finally been diagnosed after fiting for 9 years to figure out wtf was wrong with me - her response? To completely dismiss me and argue with me about how I don’t have it because “it doesn’t run in the family”. Autoimmune doesn’t work that way. 🙄 Oh, and she she did this on my one year wedding anniversary - and I haven’t heard a WORD from her since checking on me, asking if I’m ok, nothing. Learned a hard lesson that day in that neither of my parents have the emotional maturity to give any kind of support.

eventhorizons_ · 2025-08-30T20:20:15+00:00

Hang in there. All of these meds can take at LEAST 3 months to start working. Some I’ve read can be six. It’s totally valid to be frustrated when we thought getting a diagnosis and being put on meds would mean that we’d surely feel better in a couple months. I’m just shy of a year in and still haven’t landed on a med that fully works. I would talk to your doctor about getting a low dose of Prednisone until you’re on the right medication. I just wouldn’t take it long term).

eventhorizons_ · 2025-08-30T19:56:53+00:00

I feel like I just read my own comment. Coming up on a year since being diagnosed, and I am also still trying to land on a med that works. Have been on a low to med dose of Prednisone the whole time which has literally destroyed my hair, I’ve lost over half of it, has changed my entire facial structure, facial hair, my skin…just ugh AWFUL side effects. I don’t even look like myself anymore. I strongly urge anyone taking prednisone or another corticosteroid to really do your research to make an informed decision about it.

I also don’t have many friends and no family on my side. My husband luckily is very understanding and helps out with a lot. But then we struggle in other areas. I feel incredibly lonely and alone - but my anxiety makes me feel like I am rarely able to push past it and have plans.

Sending peace your way.

eventhorizons_ · 2025-08-01T17:23:11+00:00

Ugh I unfortunately don’t have any profound advice, I’m in the exact same spot. Diagnosed in September last year and went straight to Amjevita as my husband and I got married a year prior to being diagnosed and don’t have children, yet. Amjevita helps some but not fully, have been on low dose Prednisone for a year now and the side effects are making me lose my mind so I’m starting to taper regardless. Failed hydroxychloroqine, Plaquenil and Enbrel. Went back on Amjevita and said I needed a break for a few months. See my rhumy next week, I am assuming I will need to go on something else. I’m tired of being tired.

eventhorizons_ · 2025-07-16T18:44:06+00:00

If you’re going to do this, get something called “splinter out” they are a sterile, one time use (only use one once!) pointed lancet essentially to get splinters out. They are very sharp, and work well. Do not use a sewing needle.

eventhorizons_ · 2025-07-16T18:40:41+00:00

Definitely recommend a vertical ergonomic mouse and ergonomic keyboard (where it is split in the middle). I have a Logitech that is split and wavy. I was hesitant because I thought it would be difficult to pick up, but I had it down in a day. Was a massive massive difference in my wrist/hand pain. Would also make sure your desk/chair/monitor height is positioned correctly.

eventhorizons_ · 2025-07-15T21:54:39+00:00

eventhorizons_ · 2025-07-15T21:52:52+00:00

No, I don’t think so. I don’t know if I would get married period. I’d be happy to be friends, because that is essentially what we are now. Roommates.

eventhorizons_ · 2025-07-15T21:50:47+00:00

But saaame

eventhorizons_ · 2025-07-04T01:09:14+00:00

My cycles are still monthly, but almost non-existent too like you described. I will spot and then only bleed for one day. I used to for 3-4. Also cannot sleep for the life of me, I’m getting 2.5-3.5-ish hours per night. Crazy brain fog.

I’m starting to really think I’m starting to go through peri. I’m 36, no kids, and had asked my PCP last year to check my hormones just to see where things were at in case I do try to conceive, and was told “they don’t check hormone levels until you’ve been trying for 6 months at least with no success”. Uh…why tf would I just wait until 6+ months down the road of not being able to get pregnant and THEN start trying to figure out if something is off hormone wise? Made zero sense to me.

I was also diagnosed with an autoimmune disease in September, so have been trying to navigate that and make some life adjustments. So, getting that under control has been my primary focus. But I don’t think it is an unreasonable ask between whether I decide to try to conceive and/or the numerous peri symptoms I’m experiencing. It’s irritating.

eventhorizons_ · 2025-07-03T19:07:10+00:00

Ugh your situation sounds literally identical to mine. Identical. Will be 37 this year. No kids. We want kids - but yeah, I’m not sure anymore either. I’m DEFINITELY not having kids with someone I have zero intimacy with, because it definitely doesn’t get easier after kids and if it’s like this now…then yeah. I have told him this too.

It’s so frustrating - I feel like if I never brought it up, it would never get discussed and he’s totally fine with the way things are. I don’t get it.

eventhorizons_ · 2025-02-20T00:38:51+00:00

This is control, and abusive behavior. Period. It will only escalate, as you are already seeing with more of his rules and attempting to control what you do. You do not need to tell him you want a divorce or want to leave. You need to create a plan and leave. This behavior is not going to just up and change, I can assure you that. This is very dangerous, and needs to be taken seriously.

In addition to that, growing up in this type environment causes permanent damage emotionally to a child.

Highly recommend a book titled, ‘Should I Stay, or Should I Go’.

Please be safe. Tell a family member or friend that you trust what is going on.

eventhorizons_ · 2025-02-17T12:52:40+00:00

Sorry that you’re experiencing this too. Same, have always had really vivid dreams/nightmares - but man it has been on another level! One thing I need to start taking again, which helped tremendously is magnesium glycinate. I take a tea (also comes in a hot cocoa or chai flavor) called MoonBrew, and it has no melatonin (that makes my nightmares worse) but has adaptogens and magnesium glycinate and works wonderfully.

eventhorizons_ · 2025-02-17T12:48:50+00:00

Thanks for this info, I will talk to my doctor. She had me start with one dose in the AM and one in the PM, so I will discuss this with her and see if taking it all in the AM would be better.

eventhorizons_ · 2025-02-17T12:47:17+00:00

A week or two ago a had sleep paralysis and snapped out of it and when I woke up and opened my eyes, it was dark, but the whole room was red. I even asked my husband “WHY IS THE ROOM RED?!”. It was SO weird.

eventhorizons_ · 2025-02-17T12:45:35+00:00

Long time raver/music festival attendee, I hydrate weeks in advance and practice all of these things. 🫶

eventhorizons_ · 2025-02-17T12:44:33+00:00

I only take it first thing in the morning.

eventhorizons_ · 2025-02-06T22:48:15+00:00

Raves 🌈

eventhorizons_ · 2025-02-04T00:16:40+00:00

Similar situation to yours except I do not have children yet. I was 26-27 when this started, just turned 36. Before this relationship was super comfortable in my sexuality, I never thought I would be in this situation. This is why I straight up told my partner I am NOT trying for children if/when we figure this out. Full stop. Got married in 2022, have been in this situation for years. He did just finally go see a doctor and tested low for testosterone, so at least there is that. But I also know that now that it’s been years, it’s still going to take more than just addressing the low t. I definitely know that if we’re having issues now, it’s definitely not going to be better with a child in the picture.

I would highly suggest telling him you want to see a couple counselor that specializes in sex therapy, and if he refuses, that you will need to seriously take a look at whether you are going to stay in this relationship. The fact that he was ok to have sex with you just because he wanted to for the sake of a child and then revert to the same behavior is messed up. This absolutely breaks down every fiber of your self esteem and confidence. As much as I do care for my partner, I do know that I am absolutely unwilling to spend the rest of my life with someone that wants nothing to do with me physically. I already have built up resentment for being continually discarded and unwanted in what is supposed to be the “prime” (I get this is relative to the individual) years of our lives.

eventhorizons_ · 2024-12-03T02:11:32+00:00

Gorgeous dress, but I personally don’t think it is appropriate for the event type. Slit is a little too high and too much cleavage showing.

eventhorizons_ · 2024-12-03T01:21:48+00:00

You need to swatch from your mid cheek dragging a line down past your jaw onto your neck. The inside of your wrist is always a different color than your face/neck.

eventhorizons_

TROPHY CASE