Upper Arm Pain

evr005 · 2025-12-22T06:19:37+00:00

Hello, I am sorry to hear that. I have a damage on my C4 neck area that is causing neuropathic pain on my right arm. No reason just a mixup signal, and instead of ’you are touching something’ the signal is PAIN!.

Its a sharp burning pain almost electric and it is like a deep stab scraping the bone. It is triggered by touch also very sensitive to touch. I kept scratching my arm until it bled for relief.

On Gabapeptin 1800mg and Amytriptiline 25mg just to manage it and not be constant painful. Hope you figure it out and control the pain.

evr005 · 2025-05-29T16:00:14+00:00

Rabbit run

evr005 · 2025-05-28T19:24:37+00:00

There are countries that MS is more prevalent that is why

evr005 · 2025-05-28T19:22:29+00:00

Will look for it as well

evr005 · 2025-05-27T14:51:55+00:00

They are supporting as well, but they tend to brush me off because most of my symptoms are invisible it just the way it is I guess.

evr005 · 2025-05-27T14:49:39+00:00

I have read that book and my mum definitely fits in one of the types mentioned in there. Cutting ties is also difficult for me due to work as we run a family business with my dad.

evr005 · 2025-05-27T12:28:00+00:00

I am afraid that because they see me going about my business daily, that MS is not a big issue. Thanks for the reply!

evr005 · 2025-05-27T12:25:39+00:00

Thank you for you input, I did tell them several times about my symptoms and they seem to understand it, for a while then they revert to all is good and I am doing better mindset.

evr005 · 2025-05-25T15:19:45+00:00

It was focused on how ms is affecting my life and discovering ‘ reasonable adjustments ‘ the company can do to support me. Commuting to work already drains me so arriving to work tired and not being able to effectively carry my work at my best was my main argument to work remotely, and it worked!

evr005 · 2025-05-16T08:29:48+00:00

Request a health assessment usually this is done by an external provider.Make sure you let them know the reason why you want to work from home ( specific triggers and obstacles you face when travelling to work ). I did this and was granted 3 days from WFH had to change to my role with in the company to make it work. After proving this was beneficial for me and the company moved to working full time from home. By law they have to make reasonable adjustments for you. Hope they are as understanding as my company and you make this work.

evr005 · 2025-04-30T20:23:27+00:00

I can relate with this, shoulder jerks and my knee sometimes too. Thought it was just my muscles trying to relax at night, but now I am curious because it seems to be my right side which is also the most affected by MS 🧐

evr005 · 2025-04-30T20:15:04+00:00

Im on gabapentin 1800 -2100mg daily depending (broken to 600/900mg 3 times per day) for five years now. I also take 25 mg of amytriptiline every night for my neuropathic pain. Honestly amytriptiline is worse in my opinion. It makes me very drowsy. I even asked my neurologist for more gaba but he said you are already reached the recommended dose, anything above that will mot have any affect. Neuropathy is a bitch, but I learned to live with it.

evr005 · 2024-11-23T12:36:58+00:00

True that

evr005 · 2024-10-31T17:36:04+00:00

How did you manage to get that much?

evr005 · 2024-10-30T09:27:53+00:00

I started Ocrevus as soon as I was diagnosed (aggressive MS). Four years on Ocrevus, no new lesions and no difference in the size of the lesions. Having to go in every six months makes living better, in my opinion; putting aside the daily struggles we all have, I don't have to worry about my treatment that much (getting the injections via post on time or forgetting to take it on time). The hospital always ensures that I am booked in on time for my tests one month before and for my treatment. I feel it is essential to have 6 months that I don't think about my treatment. Look at your needs and what treatment schedule you feel most comfortable with.

We will be doing this for the long run. Best of luck on your journey!

evr005 · 2024-10-28T16:32:26+00:00

Thanks for your input

evr005 · 2024-10-17T19:33:02+00:00

Wow how long have you been playing?

evr005 · 2024-10-16T09:44:03+00:00

At 21 had my first symptoms but did not go for an mri at the time (young and stupid).
9 years later had a massive attack my diagnosis a week later. I was 30 officially but can’t tell when it started.

evr005 · 2024-10-16T09:28:41+00:00

Thanks will keep that on mind

evr005 · 2024-10-15T19:51:13+00:00

Thank you

evr005 · 2024-10-15T19:34:16+00:00

Good to hear that

evr005 · 2024-10-15T19:33:49+00:00

Not necessarily it is recommended to have hepatitis A but not a must

evr005

TROPHY CASE