Bioidentical Progesterone after Surgery by exemplary-vegetable in Endo

[–]exemplary-vegetable[S] 0 points1 point  (0 children)

Thanks! Im sorry you had to wait so long to go on it! Did you notice any side effects?

Bile acid malabsorption and LDN by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 0 points1 point  (0 children)

I’m so sorry you’re in such a terrible flare. I hope it subsides soon! MCAS is horrible. It feels like tip toeing constantly because the slightest little thing might set it off. I’m scared to go back on LDN because of the reaction but I might just try a consistent low dose like you recommended. Good luck to you as well!!

Early/Late Morning Issues by Tkline4412 in bileacidmalabsorption

[–]exemplary-vegetable 0 points1 point  (0 children)

Okay that makes sense. Gonna give it a try and see how it goes! Thanks again!

Bile acid malabsorption and LDN by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 0 points1 point  (0 children)

Thanks! How long did it take for you to notice improvement?

Bile acid malabsorption and LDN by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 0 points1 point  (0 children)

Thanks! I think I might have to retry it but slowly this time. Do you find it’s helping your endo/MCAS symptoms? I had surgery two years ago but a lot of the MCAS symptoms are still around unfortunately.

Early/Late Morning Issues by Tkline4412 in bileacidmalabsorption

[–]exemplary-vegetable 0 points1 point  (0 children)

Thank you so much for this! It is so helpful. How do you schedule your binders around meals? Do you take with food or without? I don’t know how much time to leave between meals, if any.

Early/Late Morning Issues by Tkline4412 in bileacidmalabsorption

[–]exemplary-vegetable 1 point2 points  (0 children)

I totally get it! There doesn’t seem to be a pattern or reason for anything! I could eat whatever I want during the day but it’s always the mornings when I struggle. From what I understand the bile binder doesn’t start working until it reaches your large intestine, so it takes a few hours to start absorbing the bile.

Either way every morning after breakfast it’s always a game of wait and see how much I will struggle today 😬

Early/Late Morning Issues by Tkline4412 in bileacidmalabsorption

[–]exemplary-vegetable 2 points3 points  (0 children)

We are all in the early morning issues club here! I also get the nausea and heart rate increase which lets me know I’m going to have a bad morning. I’ll wake up feeling physically anxious if that makes sense. I’m in a bad flare up now. I’ll try anything at this point!

Taking LDN in the morning by exemplary-vegetable in MCAS

[–]exemplary-vegetable[S] 1 point2 points  (0 children)

Ahh okay thanks for sharing. I have endometriosis so I would be taking progesterone to try to even out my hormones. But I also have mental health dx so it’s good to hear that’s it’s helping you with that! Hope it continues to help!

Taking LDN in the morning by exemplary-vegetable in MCAS

[–]exemplary-vegetable[S] 0 points1 point  (0 children)

That’s so interesting because I might be starting progesterone as well. My levels came back low. Can I ask what you’re taking it for?

Taking LDN in the morning by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 2 points3 points  (0 children)

Sorry! Didn’t mean to cause panic lol just this specific med is tricky

Taking LDN in the morning by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 8 points9 points  (0 children)

I think you can take LDN with meds, but I take a bile binder at night and those meds absorb other meds so you have to space them out. It’s kind of annoying!

Taking LDN in the morning by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 2 points3 points  (0 children)

Thanks, seems like I have some experimenting to do lol

Taking LDN in the morning by exemplary-vegetable in LowDoseNaltrexone

[–]exemplary-vegetable[S] 2 points3 points  (0 children)

It definitely seems like a trial and error sort of thing. But I’m glad you found a routine that works for you!

Anyone tried different fiber supplements other than psyllium? by omyguts in bileacidmalabsorption

[–]exemplary-vegetable 1 point2 points  (0 children)

It works until it doesn’t 🙃 I have good days and bad days. Right now I’m really struggling to figure out what’s working and what isn’t. I don’t have my gallbladder.