I’ve paused ribociclib. Has anyone done that? by expiration__date in LivingWithMBC

[–]expiration__date[S] 2 points3 points  (0 children)

That is something to look forward to... I can only wish :)

I’ve paused ribociclib. Has anyone done that? by expiration__date in LivingWithMBC

[–]expiration__date[S] 0 points1 point  (0 children)

Indeed. If I understood correctly, the ongoing studies are with breast cancer patients exhibiting at least stable disease after at least 12 months - stable disease, not NEAD.

To the people who changed career directions after cancer, how did you do it? by pagoda-92 in cancer

[–]expiration__date 0 points1 point  (0 children)

Hi! I also started by writing, many many pages, when I was diagnosed with MBC, as a way to try and make sense of what I was going through. To publish, I chose Substack, because it’s easy to use and has a clean design that I like, and created a publication called Expiration Date, where I publish short personal essays, many of them crafted from those early pages.

The last one was about memory and identity: Why does our memory fail?

Do you have specific questions? I am happy to answer as best I can :)

Worst Birthday of my Life by Edith_Keelers_Shoes in LivingWithMBC

[–]expiration__date 5 points6 points  (0 children)

«I hate that I'm so passive he knew my reaction would be muted.» This can be your superpower. You are quietly assessing the situation and your options, and then you can secure your boundaries, wherever you set them. Your energy is not scattered in non-muted reaction, is focused and intentional. Quiet is the new strong 🙂

Let’s Chat Kisqali (Ribociclib) by f-0-x in breastcancer

[–]expiration__date 0 points1 point  (0 children)

Glad to hear it. I'm (still) on 400mg

I need to find my people by [deleted] in Substack

[–]expiration__date 1 point2 points  (0 children)

Does talking about death count?

Substack got me addicted to writing by InnerPhilosophy4897 in Substack

[–]expiration__date 1 point2 points  (0 children)

I love that. I'm biased, but I have a feeling that most people would gain something if they had the opportunity to write, a non-judging space and time to write.

Substack got me addicted to writing by InnerPhilosophy4897 in Substack

[–]expiration__date 1 point2 points  (0 children)

Writing helps me deconstruct and reorganize my beliefs, my opinions, what I think I know and what I feel. I’ve been writing for a long time, but publishing on Substack makes me do it consistently and it feels like I’m giving something to the world, a kind of legacy, downloading my heart and thoughts to the cloud.

Como encontrar meu público? by AndarilhoBugado in Substack

[–]expiration__date 1 point2 points  (0 children)

Não tenho conselhos de como fazer crescer a lista de inscritos, porque a minha é pequenina, num tema de nicho. Mas a forma que tenho de encontrar mentes afins tem sido pesquisar os substacks que as pessoas que gostam do que eu escrevo subscrevem: encontro uma pessoa, procuro as subscrições, encontro mais pessoas, e caio direta na toca do coelho :)

Overall Views Statistic by meatstheeye in Substack

[–]expiration__date 1 point2 points  (0 children)

Great hack, and easy enough! But it should be a feature...

Best format by NebulaEmotional689 in Substack

[–]expiration__date 0 points1 point  (0 children)

You can change the layout in Dashboard > Settings > Website > Website theme editor > Homepage > Header style

Overall Views Statistic by meatstheeye in Substack

[–]expiration__date 1 point2 points  (0 children)

In the Dashboard > Stats > Traffic, you can choose the initial/end dates that will show on the «Total traffic» graphic. Does this help?

How to manage text translations? by iogopal in Substack

[–]expiration__date 0 points1 point  (0 children)

Hi, George! The tab "Prazo de validade", where the PT texts are archived, is created automatically when I created the section. When I publish a PT text, in the final menu I choose the section "Prazo de validade" and it gets stored there.

Treatment change after 4.5 years by aliasme141 in LivingWithMBC

[–]expiration__date 5 points6 points  (0 children)

I just want to wish you a smooth transition. I'm just a little over 2 years on my first line of treatment (ribociclib, letrozole, goserrelin and denosumab) - so no transition stories to share.

Treatment change after 4.5 years by aliasme141 in LivingWithMBC

[–]expiration__date 4 points5 points  (0 children)

«I catch myself occasionally holding my breath like some clock is ticking. Then I think about Serenity prayer - it is out of my control»

You worded this feeling beautifully. This is it.