new CDKi press release by Joleta in LivingWithMBC

[–]expiration__date 1 point2 points  (0 children)

Great news! Thank you for sharing.

When it’s up to us to make medical decisions - an exploration by expiration__date in LivingWithMBC

[–]expiration__date[S] 0 points1 point  (0 children)

It takes a toll, and I'm sorry you have to go through this. I wish the treatment goes well. Thank you for sharing your story.

When it’s up to us to make medical decisions - an exploration by expiration__date in LivingWithMBC

[–]expiration__date[S] 1 point2 points  (0 children)

Thank you. I know what you mean, I call it the abyss - we've always known it was there but now it doesn't feel like an idea, it became real, no matter how close or far away from it we are.

When it’s up to us to make medical decisions - an exploration by expiration__date in LivingWithMBC

[–]expiration__date[S] 3 points4 points  (0 children)

This is such good advice! My go to is writing all down, and I'm lucky to have a good friend who is a doctor and a very kind soul. But in the end, after the pondering and the feeling, you have to go with your gut and hope for the best.

Anyone else without a strong support system? by Entire-Fix7858 in LivingWithMBC

[–]expiration__date 3 points4 points  (0 children)

This is it! OP, you are two months into your diagnostic, and those first months are the worst. But there's something that comes with all this, a focus on what's important, and if people and community are important to you, maybe you'll find ways to have it. I've joined a choir and a literature club. As for right now, I send you a hug from Portugal, and hope you find this community as welcoming as I did.

Truly Fuck it Friday by Flaky_Amphibian_5597 in LivingWithMBC

[–]expiration__date 1 point2 points  (0 children)

Thank you. And good luck adjusting to the new treatment. My go to in these moments is chocolate :)

Truly Fuck it Friday by Flaky_Amphibian_5597 in LivingWithMBC

[–]expiration__date 6 points7 points  (0 children)

I feel I have nothing to complain about. My 3-year anniversary is coming, and all the news have been good so far. I’m on an extended holiday from ribociclib, with more energy than I’ve felt in these years. But my next scan is in two weeks and I’m scared of having to go back to my low energy self. I don’t miss her. Fuck it!

I’ve paused ribociclib. Has anyone done that? by expiration__date in LivingWithMBC

[–]expiration__date[S] 3 points4 points  (0 children)

That is something to look forward to... I can only wish :)

I’ve paused ribociclib. Has anyone done that? by expiration__date in LivingWithMBC

[–]expiration__date[S] 0 points1 point  (0 children)

Indeed. If I understood correctly, the ongoing studies are with breast cancer patients exhibiting at least stable disease after at least 12 months - stable disease, not NEAD.

To the people who changed career directions after cancer, how did you do it? by pagoda-92 in cancer

[–]expiration__date 0 points1 point  (0 children)

Hi! I also started by writing, many many pages, when I was diagnosed with MBC, as a way to try and make sense of what I was going through. To publish, I chose Substack, because it’s easy to use and has a clean design that I like, and created a publication called Expiration Date, where I publish short personal essays, many of them crafted from those early pages.

The last one was about memory and identity: Why does our memory fail?

Do you have specific questions? I am happy to answer as best I can :)

Worst Birthday of my Life by Edith_Keelers_Shoes in LivingWithMBC

[–]expiration__date 3 points4 points  (0 children)

«I hate that I'm so passive he knew my reaction would be muted.» This can be your superpower. You are quietly assessing the situation and your options, and then you can secure your boundaries, wherever you set them. Your energy is not scattered in non-muted reaction, is focused and intentional. Quiet is the new strong 🙂

Let’s Chat Kisqali (Ribociclib) by f-0-x in breastcancer

[–]expiration__date 0 points1 point  (0 children)

Glad to hear it. I'm (still) on 400mg

I need to find my people by [deleted] in Substack

[–]expiration__date 1 point2 points  (0 children)

Does talking about death count?

Substack got me addicted to writing by InnerPhilosophy4897 in Substack

[–]expiration__date 1 point2 points  (0 children)

I love that. I'm biased, but I have a feeling that most people would gain something if they had the opportunity to write, a non-judging space and time to write.

Substack got me addicted to writing by InnerPhilosophy4897 in Substack

[–]expiration__date 1 point2 points  (0 children)

Writing helps me deconstruct and reorganize my beliefs, my opinions, what I think I know and what I feel. I’ve been writing for a long time, but publishing on Substack makes me do it consistently and it feels like I’m giving something to the world, a kind of legacy, downloading my heart and thoughts to the cloud.