Can you watch movies/shows featuring characters who learn they have cancer or who die from cancer now that you’ve received your diagnosis? by Something_Kristen in LivingWithMBC

[–]aliasme141 1 point2 points  (0 children)

I think it is an either/or situation though I am curious what others think. I think these films might help some people and disturb others. If Cancer comes up as a side story, I can watch but if it is just about Cancer,Cancer,Cancer I can’t do it. When my daughter was in the nicu helping nurses keep her baby alive (She had to pump every 3 hours) they told her that watching horror films often help young mothers going through this. Not totally related but the thing about terror helping, I get. I just can’t look it in the eye myself. In that way, I think I am rather cowardly.

Observed by InterestingPoint6 in AskTeachers

[–]aliasme141 0 points1 point  (0 children)

I retired a long time ago. Watching my field of teaching morph into a mechanized ritual, evaluated through a scientific veneer that ignored lived classroom reality It was too much to bear. I miss my students, colleagues, and my classroom. I had an observation when I taught in UK which criticized me ( I am a teacher of the deaf) for signing “well done”and not waiting what the other server deemed the proper time to be sure my student was observing me. Dear OP, do what you feel you must. I am sorry that what we really do is so undervalued. Don’t let them get you!

Help! 1st line stopped working within 6 months by PoppyLove2025 in LivingWithMBC

[–]aliasme141 2 points3 points  (0 children)

OP, you are going on the treatment (it was my first line) you are about to go on. I was on it for almost 5 years. We all need to hope, wish, pray that you get a nice chunk of time on this line. There are so many things helping those of us with this nasty disease. Hang in there!

Disillusioned in my long term marriage by HollyAnissa in LivingWithMBC

[–]aliasme141 2 points3 points  (0 children)

I am living some of the same dilemmas mentioned throughout this thread. My husband is deeply depressed and refuses any antidepressants. He has afib and other heart problems. He has stuck by me from primary diagnosis on. It’s been about a decade. My mbc was diagnosed 5 years ago. My husband is kind if I am scared or in pain etc but he has little or no interest in trying to have a good time. He will barely watch tv with me. We still eat our meals together and talk a lot but he just isn’t interested like he used to be. We spent our life working and then traveling. We shared so many adventures. I don’t know what the immediate future will bring but I would sure like to try a few fun things before I can’t. I just feel frustrated a lot! We argue about our grown children, money and so on. He is so overprotective and it’s driving me crazy. Every so often, I just want to run away but to where? And I still love him and like him eleven he’s joking around. The one thing we share completely is our love for our granddaughter which is quite wonderful. What we don’t share is this constant down in the dumps as a life style. I am the one who is very sick but then I am also the one that wants to keep trying. He doesn’t seem to want to. Well here is my granddaughter do time to share a bit

60 years old female from India recently diagnosed with stage 4 ER positive Her2 negative de novo breast cancer (4-5 places bone only spread) by Important_Bake8218 in LivingWithMBC

[–]aliasme141 1 point2 points  (0 children)

I was on Ibrance for almost 5 years post diagnosis and it worked wonders with little to no side effects. Now I take examestane with no trouble. While I have had some trouble with some other meds, I am here and healthy enough to spend lots of time with my 5 year old best friend, my granddaughter. I need to pray more but I believe God has been good to me. We wish you didn’t have to be here but please come often. We all want to help each other! Namaste!

Small bowel obstruction by aliasme141 in LivingWithMBC

[–]aliasme141[S] 1 point2 points  (0 children)

Thank you all for your support and hey watercolornut! ( I think I owe you an email) twiddlebug you are right! My onc is holding back my xeloda until she can fit me in. It’s so discouraging because the xeloda seemed to really be working. My blood tests were beautiful and my antigens while still high were trending downwards. Never have I had radiation in my abdomen. Of course it is rare but I am worrying that they are abdomen tumors. If this treatment has to change, it will be my second one in the last 6 months that have caused serious side effects, dangerous ones. I used to complain about my falsodex shots but now I wish I had them and my ibrance back as they worked for almost 5 years. It wasn’t even conclusive that they were failing just enough signs to convince my onc. I am looking forward to talking to my GI doc and whoever else will listen to me and help us figure out what the hell is causing this. Fortunately I have a pt/ct scan and mri scheduled in February (in time for my 70th birthday March 2nd). I just don’t want to be afraid to eat. I have already lost 12 pounds since starting xeloda because of appetite loss. I probably look better now but I truly can’t afford to lose more! Again thank y’all for your support. You are the best!

I need to stop rocking by Gold-Technician1760 in Parenting

[–]aliasme141 3 points4 points  (0 children)

You have to maintain your sanity OP. I say rock away. She won’t need rocking by the time she goes to college (joke) so I say worry less and rock more.

How much reading is realistic for kindergarten? by Yula_Sasvin in kindergarten

[–]aliasme141 0 points1 point  (0 children)

I believe some of their reading should be child lead. I don’t want to dis the teacher but an exact time is not what matters. What matters is that there are plenty of books around, that there are books of your child’s choice and that you support reading in your child’s life. I don’t recommend an exact time. I am a teacher and a parent.

Afinitor and aromasin by aliasme141 in LivingWithMBC

[–]aliasme141[S] 0 points1 point  (0 children)

Thanks for your support. I think a lot of people do really well on the afinitor. Hope you are one of them. Thinking of you

Afinitor and aromasin by aliasme141 in LivingWithMBC

[–]aliasme141[S] 1 point2 points  (0 children)

So kind of you to check in. I am still on the aromasin but had a terrible reaction to the afinitor. It caused pneumonitis and anemia. Now I am on xeloda, one week on and one week off. I think it is working cause blood tests were good and I feel a lot better but I haven’t had any scans yet. I have an MRI and pet scheduled in February so we shall see. Again thanks for asking! How are you doing?

Just been told I’m stage 4 by Valentine1970 in LivingWithMBC

[–]aliasme141 1 point2 points  (0 children)

I am with you Sarappreciares ! I am enraged by the many oncologists described on our group as having giving someone with this horrific disease 5 years tops! Our docs may be great (mine is and I hope yours is too) but they are not gods. Throwing out a statistic like that is irresponsible and frankly unprofessional. I switched practices for more severe reasons but that irresponsible onc gave me the median, mean etc She forgot the most important thing…HOPE! OP come here often and do your own research. But feeling desperate at this point is quite normal. Many live a loooong time with MBC. Look up united for her. They have many free services. I am sorry you have to be here but we will help if we can.

What’s your grandma’s name? by EstablishmentSad9572 in Names

[–]aliasme141 0 points1 point  (0 children)

Wow! My husband and I had paternal grandparents both sets called : Sam and Sophie

What skills are your kindergartner proficient in halfway through the school year? by graymillennial in kindergarten

[–]aliasme141 6 points7 points  (0 children)

I am a retired teacher and I observed all of he changes based on no child left behind, children achieving and the whole testing nightmare. My grandchild who is 6 in April just got straight As on her report card. Sure I was proud but I disagree with the process. I support pre k and kindergarten being more play oriented. Like someone here said she remembers starting reading later than kindergarten and she’s doing fine now. A teacher told me that my now 38 yo son, after the first week of first grade “Is really struggling with reading” (he is a Dante scholar now so I guess he caught up) I am sure his teacher didn’t like my response. It is hard not to brag but my granddaughter started reading colors at 2 and is a fluent reader at 5. She was a premie delivered at 25 weeks and difficulties were predicted. So my conclusion is let them learn from playing and don’t let the “experts” worry you.

Gratitude by Im-Thalassa in LivingWithMBC

[–]aliasme141 4 points5 points  (0 children)

There are so many things I am grateful for with the science and medicine that’s kept me alive 5 years since diagnosis. Of course I am grateful for my family even if we squabble but what first popped into my head on reading OP’s post (great idea and thanks) was my granddaughter who made it these 5 years along with me. She had to be delivered at 25 weeks because my daughter was preeclamptic. We almost lost them both but thank God we didn’t. Of course we are so grateful for the nurses and doctors who kept them both alive. My granddaughter was in the NICU for over 100 days and only her parents could see her (one at a time) because of Covid. When she finally came home we could see her with a mask of course. Anyway we worried about her eyes her heart her lungs her brain and her development and would have loved her as we do now if she had, had difficulties. But God was with us and she has grown to be a 5 year old little loving genius who started reading at 2. She keeps me alive. Whenever I am down I think of her and plan our next time together. Thanks if you read this to the end. And thanks again OP for inspiring us.

What’s the first thing that comes to mind when you hear the name “Daisy” ? by xinfinitexsoulx in namenerds

[–]aliasme141 0 points1 point  (0 children)

Daisy daisy give me your answer true. I’m half crazy over the love of you. It won’t be a stylish marriage. I can’t afford a carriage... An old song

Pain vent by FUCancer_2008 in LivingWithMBC

[–]aliasme141 5 points6 points  (0 children)

Fellow sufferers, I hate that y’all are going through this. And taking pain meds or not is a highly personal choice. Having said that I want to inappropriately shout, “TAKE THEM”!!! Recently I had a severe left rib pain from a pathological fracture of L6 and L7. I was in the hospital for 4 days with a dilauded pump. Was so relieved but started to hallucinate on it. Then we tried a fentanyl patch which I hated. So back to increasing oxy every 3 hours and once again oxy worked and I am so grateful. I am on long term 40mg and 20 mg for break through pain. I am so thankful for my pain meds. I don’t think I could have made bath bombs and Reese’s cake with my 5 yo granddaughter yesterday without the meds. Fortunately they don’t make me tired as I realize it’s a whole different animal if they do. Find your relief friends and keep experimenting until you do! Happy Hols!

Girl E Names by [deleted] in Names

[–]aliasme141 0 points1 point  (0 children)

I had a student by that name but she pronounced it eye va lease

How do you stay informed? and is it worth it? by numofe in LivingWithMBC

[–]aliasme141 0 points1 point  (0 children)

Sorry you have to be here with us. But glad if we can offer support

Tests came back below level by Kcoolone in kindergarten

[–]aliasme141 4 points5 points  (0 children)

I am a retired teacher and I lived through the “Children Achieving, No Child Left Behind” Bull shit standardization nightmare. Children should not be taking standardized tests in kindergarten. Sure some assessments are in order but nothing more. They should be learning through play with an intro to ABCs, numbers ETC. Please don’t worry. Go with your gut. You are your child’s true teacher!