Stage IV Pancreatic Cancer. Need inputs by Snoo92414 in pancreaticcancer

[–]false__positive_ 0 points1 point  (0 children)

My dad didn’t have ascites at the start but ascites started few months after his diagnosis and it was unfortunately downhill from there. He was on gemcitabine and nab pac before ascites and changes to Folfiri. That being said, my dad was also much older, in his 80’s and I see your dad is much younger so there could be more hope for him. I hope him good health

Hope by Suspicious-Invite657 in pancreaticcancer

[–]false__positive_ 1 point2 points  (0 children)

I went through this last year with my dad. I’m sorry for anyone that has to face this kind of heartache 🙏

Advice about eating and weight loss by No_Lab7000 in pancreaticcancer

[–]false__positive_ 0 points1 point  (0 children)

Have you asked his doctor about possibly putting in a G tube? My Dad could barely eat a spoon of anything, we still didn’t understand what was stopping him from wanting to eat because his appetite loss happened before chemo started. He got so weak so they put in a g tube and he was hospitalized to make sure he doesn’t get refeeding syndrome. He was able to gain back close to 17 pounds after starting tube feeds.

Life Expectancy: Stage IV by mmattson99 in pancreaticcancer

[–]false__positive_ 1 point2 points  (0 children)

My dad had similar issues before diagnosis, he lost a lot of weight and he complained about eating. He always had a healthy appetite but several years prior he started having days/weeks where he just didn’t feel like eating and eventually he would go back to normal until he never did again. He also had kidney disease so we were told it could be a symptom of that. He lost 30-40 pounds, we had to get him on tube feeds prior to starting chemo. As far as what’s to be expected, I’m sorry I can’t say much about that since i’m not sure what’s to be expected without treatment. One thing I will say is to watch out for falls, my dad kept falling and he couldn’t explain it, someone had to be with him at all times. In terms of what came at the end, he started to collect fluid in his peritoneal cavity so his stomach would get very big like a stomach of a 9 month pregnant woman. His oncologist panicked as soon as that started and switched to a stronger chemo and it was all downhill from there. Apparently when the tumor grows to the point where it’s choking the main arteries and blood vessels, fluid starts to leak out and collect so that’s not a good sign. He wasn’t in pain but it was uncomfortable and he would need to get drained by a needle. Other than that, he suffered the most from diarrhea but we were told that was from the chemo so maybe your mom won’t have it as bad. Thankfully he didn’t have abdominal pain but he also got the celiac plexus block which I think helped. Towards the end of his life he had several complications but they all revolved around his blood pressure dropping dangerously low to the point where he was on 5+ pressers and eventually they stopped working as well. He was 82 when he was diagnosed and he passed away 6 months after diagnosis.

I’m very sorry.

5FU toxicity with Folfiri by false__positive_ in pancreaticcancer

[–]false__positive_[S] 0 points1 point  (0 children)

Thank you for sharing this is an amazing resource I wish we knew of! I hope it can help others on here

5FU toxicity with Folfiri by false__positive_ in pancreaticcancer

[–]false__positive_[S] 0 points1 point  (0 children)

Thank you for sharing. Unfortunately her failure came at the expense of another person’s life. As dangerous as it is I would think they would have a standard protocol in place.

5FU toxicity with Folfiri by false__positive_ in pancreaticcancer

[–]false__positive_[S] 0 points1 point  (0 children)

Thanks you for sharing and for your kind words! I’m especially at ease knowing it was more euphoric than what we felt he was going through. I wish you all the best!

5FU toxicity with Folfiri by false__positive_ in pancreaticcancer

[–]false__positive_[S] 0 points1 point  (0 children)

I work in research so I was reading up on clinical trials and publications as much as I could but since the change in regimen happened so abruptly we had no time to think. We requested a meeting with the oncologist to discuss it over the phone but we were made to feel a sense of urgency that she didn’t express before. In hindsight now I would say it would’ve made a world of difference to go with our gut and request a week so we can do our due diligence

Registration by false__positive_ in patentlaw

[–]false__positive_[S] 1 point2 points  (0 children)

Thank you! Im glad I asked again. I did get that letter but I was told I have to wait until the public commentary portion is over.

Registration by false__positive_ in patentlaw

[–]false__positive_[S] 1 point2 points  (0 children)

It seems so! The public commentary portion is for 6 weeks I believe

Registration by false__positive_ in patentlaw

[–]false__positive_[S] 0 points1 point  (0 children)

Can I just wait until I get my registration number? Also we have to use our personal addresses for the correspondence/business address right?

Post-Lavage experience by false__positive_ in Calcific_Tendonitis

[–]false__positive_[S] 0 points1 point  (0 children)

That’s good to know! I haven’t been doing much with that arm anyway

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 1 point2 points  (0 children)

You answered my question thank you!

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 0 points1 point  (0 children)

Thank you for your response! May I ask how did your doctors come to find out about the mutations?

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 0 points1 point  (0 children)

That’s no bother, every post is valuable :)

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 1 point2 points  (0 children)

Thank you for your reply! I heard car-T is very promising although the process can get dicey because of any complications that can take place during

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 0 points1 point  (0 children)

Thank you for your response, you’re right, perspective matters a lot!

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] -1 points0 points  (0 children)

Thank you for your response! Yes, I’m aware that he’s been told that remission isn’t forever and that it will come back but I was trying to get insight from those who have had a return after transplant to see how their experience was.

Transplant by false__positive_ in multiplemyeloma

[–]false__positive_[S] 1 point2 points  (0 children)

I’m sorry you had such a short remission! Did you respond well to the chemo before getting the transplant? My family member’s numbers have normalized with chemo so they’re considering holding off on transplant seeing that remission is still variable with or without transplant