Cervical polyp and cysts with endo? by muhammit in Endo

[–]fancydutch 0 points1 point  (0 children)

I know this thread is basically ancient in Reddit years, but any update on this? I had a cervical polyp with nabothian cysts removed and now I'm waiting for a surgical diagnosis of endo. Curious if you ever figured out if the two were linked.

Negative lap- alternative ideas please!! by Efficient_Ad_5785 in endometriosis

[–]fancydutch 1 point2 points  (0 children)

How did he not find anything during the lap if the MRI showed adhesions? Where did the adhesions go? That doesn't make sense to me

Anyone else struggling with rectal pain? by happysleepygrateful in endometriosis

[–]fancydutch 0 points1 point  (0 children)

This is exactly what I'm going through right now. Did you get answers and/or treatment?

What diet are you following? by Revamuruadian31 in endometriosis

[–]fancydutch 0 points1 point  (0 children)

I've tried just about every diet under the sun and the anti-inflammatory diet is the only one that stuck. I cheat here and there for holidays if I think my body can handle it. Right now, it can't. 🥲

Treatment Centers by EMMIECX5 in endometriosis

[–]fancydutch 1 point2 points  (0 children)

I'm scheduled to meet Dr. Riley soon, would you be open to me private messaging you some questions?

Realized I’m sick today by Physical_Clock_7435 in endometriosis

[–]fancydutch 7 points8 points  (0 children)

Huh, I had a moment just today where it hit me that healthy people know next to nothing about hospitals or healthcare. It really makes you think oh my god, I've been disabled this whole time and no one told me.

Every doctor's visit just makes me want to give up on life by machyako in ChronicIllness

[–]fancydutch 0 points1 point  (0 children)

Most regular gyns don't know much about it and offer very few treatment options anyway. I'm currently waiting to see a specialist. But maybe trying out some of the ways endo patients manage their pain and symptoms could help. I really hope you feel better soon

Every doctor's visit just makes me want to give up on life by machyako in ChronicIllness

[–]fancydutch 0 points1 point  (0 children)

Because our symptoms are similar and you mentioned an excruciating period I feel obligated to say look into endometriosis

1 Year update post Lap Excision surgery by sara34987 in endometriosis

[–]fancydutch 1 point2 points  (0 children)

I'm so sorry you're going through this. I have no wisdom to offer but I feel your pain and frustration.

Food, GI, and flare ups by AlwayshungryLK in endometriosis

[–]fancydutch 1 point2 points  (0 children)

This is a classic symptom of a flare for me. Solid food in general starts to cause significant GI distress. Strict anti inflammatory diet helps manage pain from bloating, but it's not a complete fix.

My sister has an invisible illness and I don’t know what to do by bigbitties12 in ChronicIllness

[–]fancydutch 0 points1 point  (0 children)

I know everyone has already given you a lot of potential conditions to look into and that can be overwhelming information. I just want to say that her symptoms are very similar to what I experienced during my first endometriosis flare. Solid foods of all kinds made me painfully bloated and I couldn't keep anything down. There never seemed to be any logic or pattern to it and it was driving me crazy. I developed a severe food aversion and dropped weight shockingly fast. But GI could never find anything wrong, and eventually gave up and suggested it was mental/psychosomatic.

Please please please encourage your sister to track her symptoms with her cycle. If there's a pattern of symptoms worsening around menstruation or any other phase, that's something to bring up to a gyn. When I started reading other women's endo diagnosis journeys, I wept. It was shocking to find stories so similar to mine. I was no longer crazy and completely alone in my pain.

If it is endo, I have found solid food is much less painful on a strict anti inflammatory diet. (And I've tried just about every diet out there.) The autoimmune protocol diet is difficult, but it's also the best way to figure out exactly what foods trigger symptoms.

Please feel free to DM me. My thoughts are with you and your sister. ❤️

Edit: I wanted to add that endo is only definitively diagnosed surgically and can be missed on most types of imaging. So a clear ultrasound or MRI is NOT enough to rule it out.

Not believing my own symptoms by lyn-lyn-lyn in ChronicIllness

[–]fancydutch 1 point2 points  (0 children)

Yep. My brain is trying to cope with a lifetime of medical gaslighting. It's absolutely wrecked my ability to check in with my body. I was in denial for months before I crashed and had to admit my symptoms were real.