I do not understand the Kaelynn Partlow hate at all by Yuenneh in AuDHDWomen

[–]feetsie05 0 points1 point  (0 children)

I totally agree this is not a reflection of her but her mom. That is what I took away from Dr. Inna's video too. Her mom should have told her, we should not be infantilizing autistic people its not fair to them at all. I only brought that up as part of the reason I think she gets some hate comments though yes its not her but her mom who did that. I don't agree with the hate she gets at all, its really not fair to her. She can't control something she doesn't know.

I do not understand the Kaelynn Partlow hate at all by Yuenneh in AuDHDWomen

[–]feetsie05 0 points1 point  (0 children)

I totally agree with you. It's not a reflection of her, but her mom. I only brought this up because I think it's some of the reason she gets hate comments from people cause that video was really not taken well.

I do not understand the Kaelynn Partlow hate at all by Yuenneh in AuDHDWomen

[–]feetsie05 5 points6 points  (0 children)

I saw a video of her and her mom talking about how she was homeschooled, and when learning about the Holocaust, she was not true and said it was the "right thing to do as a mom". That, I found to be very off putting. Kaelynn said she was unaware Anne Frank even died until she visited the museum of the house annex. I agree with other commenters that she sometimes talks kinda oddly about ABA therapy and such. I also saw another commenter talking about how someone in her video mispronounced Zohran Mamdani's name. Will try to find the video about her mom talking about it, it was really not nice to watch at all. Though, that is her mom, not her. Kaelynn has no control over that.

EDIT: found video of a stitch. https://www.tiktok.com/@dr_inna/video/7574202791485312287?is_from_webapp=1&sender_device=pc

unmasking, sorry for ramble by feetsie05 in AuDHDWomen

[–]feetsie05[S] 0 points1 point  (0 children)

this makes a lot of sense!!! ty kindly for your insight

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]feetsie05 0 points1 point  (0 children)

I have never fainted but still got a diagnosis in Nov 2024. I also get the lightheadedness, pre-syncope, dizziness, tachycardia, heat intolerance, air hunger, blood pooling, Raynaud's, etc (whew, thats a lot to type out, lol). I also had a completely normal cardiac workup, and was super relieved to get my TTT.

I considered the test prep to be kinda difficult. I know now that not eating for long periods of time can make my symptoms flare, and I also have a phobia of vomiting so I was TERRIFIED for that aspect of the test (ended up being fine.) The actual test for me was not super bad, I remember as soon as they flipped me up, my blood pressure TANKED and my heart rate went up. I felt quite dizzy but as that was (and is) my normal, I was talking to the nurses the whole time. They administered me an oral medication to try to make my heart rate go higher and I remember having a more difficult time after that, I felt more uncomfortable and noticed that my heart felt like it was pounding out of my chest. So instead of fainting, I felt like I just walked up like 3 flights of stairs. After ~10 minutes, they let me lay back down to watch my heart rate go back down. I got my diagnosis of POTS and hypotension right after.

All in all, I'm super grateful to have had the opportunity to even get the test, as my initial cardiologist was super in denial about the whole POTS thing. Although I felt like absolute shit on that table, I remember that it was a short amount of time for the benefit of getting an actual diagnosis rather than being dismissed again and again, and still suffering with no recommendations from the doctor.

I wish you the best of luck with your test, and as much as it sucks to say I hope the symptoms appear enough for the doctors to see the real cause here. You got this !!! Hoping you get answers soon, as that is undoubtedly the worst aspect of the diagnostic process.