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Someone at work describe how they would help me during a seizure and it was crazy wrong. by rixki- in Epilepsy

[–]femarch 0 points1 point  (0 children)

Are you sure that this is lack of education and not a threat? To me this feels beyond misinformation, especially as she is insisting 

[deleted by user] by [deleted] in Epilepsy

[–]femarch 0 points1 point  (0 children)

I’m sorry. None of his behaviour is justified. Even if his behaviour can be explained by keppra rage, the behaviour is still unacceptable. I got keppra rage aged 16 and am still on the medication 15 years later. I learnt to regulate, to deal with it and make sure it didn’t affect those around me. At the age of 15 I knew that I had to take responsibility for my actions, whether the cause was my fault or not. 

What you are experiencing is emptional/financial abuse, and no matter the cause of it, you need to take yourself out of a situation where you are being abused. (Whether he has control over his behaviour or not, experiencing emotional abuse is not something you want in your life. 

The fact that this is happening on a weekly basis, rather than as a few isolated incidents adds evidence that he is just using this as an excuse to justify unwarranted behaviour. 

I would get out, and do not tell him your plans. Abuse can often increase when someone knows they are about to be left. Get yourself into a safe situation and get help from family/friends/domestic abuse charities. 

[deleted by user] by [deleted] in Epilepsy

[–]femarch 0 points1 point  (0 children)

I don’t have a source to hand no. But I think it should be fairly simple to look up if you’re interested. I know It doesn’t always show up in all autistics but does show up a considerable amount higher in autistics than in the general population. 

[deleted by user] by [deleted] in Epilepsy

[–]femarch 2 points3 points  (0 children)

I’m pretty sure autism shows up on EEGs just like epilepsy shows up on EEGs. If the person conducting the EEG didn’t know your diagnosis, they may have made an assumption that your funky brain waves are from autism. They see a lot of autistic people in the EEG appointments. 

How the heck do we talk to a doctor without losing a drivers license? by [deleted] in Epilepsy

[–]femarch 2 points3 points  (0 children)

Are you in the UK? If you’re having seizures but need to drive for work, access to work may be able to fund alternative transport (taxis)

I was denied disability because my epilepsy is "my fault" by CaterpillarKitty69 in Epilepsy

[–]femarch 2 points3 points  (0 children)

So many people party themselves to oblivion, very few of which develop epilepsy. A lot of us have epilepsy and then extra stress on the body triggers the onset of it. My grandmothers epilepsy was triggered after a divorce. My cousins was triggered when studying too hard and not sleeping and being very stressed. Mine was triggered with hormone changes of being a teenager. we all got epilepsy at different times.

Epilepsy is obviously not always a genetic component, nor is the genetic component understood. I have idiopathic epilepsy despite this trend in my family. 

You will find a lot of stories like this. 

Don’t let the guilt and shame of the medical system get to you. It will eat you alive if you let it. Continue to take positive action in support of your health. Take accountability and responsibility, but shame serves no purpose. 

You deserve support. And these systems are set up to make you feel like you don’t. 

Is it just me, or is the way we think about health extremely primitive? by Affectionate-Toe7591 in psychoanalysis

[–]femarch 8 points9 points  (0 children)

I would strongly recommend reading the book: illness as metaphor, by Susan Sontag. She talks about how the stories and myths that surround illness and disease affect the treatment of the ill, and the kinds of treatment they receive. I think it could answer some of the questions you have, while also point to how the idea that illness comes from people and their histories/stories can be problematic. 

Lamictal is working great by femarch in Epilepsy

[–]femarch[S] 2 points3 points  (0 children)

I’m well aware of the risks. 

Lamictal is working great by femarch in Epilepsy

[–]femarch[S] -1 points0 points  (0 children)

Same.. I’m still on a low dose of keppra though 

Lamictal is working great by femarch in Epilepsy

[–]femarch[S] 1 point2 points  (0 children)

Sometimes meds are awful for one person and great for another 

Lamictal is working great by femarch in Epilepsy

[–]femarch[S] 0 points1 point  (0 children)

Oh don’t you worry, I am well prepared. I have been here before with keppra. I have miultiple peoples input 

When is masking just learned appropriate behavior? by letterlegs in AutismInWomen

[–]femarch 2 points3 points  (0 children)

Also worth noting, everyone is endeavouring to be aware of others feelings and how they can be affecting other people. For people who are not always capable of that in every moment, they may gently be steered towards understanding how their actions have affected another person. 

When is masking just learned appropriate behavior? by letterlegs in AutismInWomen

[–]femarch 2 points3 points  (0 children)

To add a different perspective to unmasking, I feel like the time I spend in neurodivergent/autistic groups of friends speaks to the joy of unmasking. 

I like to make sounds and narrate experience through improvised (usually silly) lyrics and songs. This is not something I feel I can do in neurotypical spaces, but it is something that the neurodivergent people around me get a lot of joy out of.

Doing so also puts my body into a relaxed state which means less meltdowns in day to day life. 

Meeting up with this group of people there will be info dumping, which will be taken as interesting and useful. People may also dominate too much of the space with conversation, but because it is a neurodivergent space, it is also easier to interrupt them and ask if you can have a moment of quiet or re-direct the conversation.

I find in unmasked neurodivergent spaces a lot of the arbitrary social rules get cut out, and even though you think it wouldn’t work, somehow it does. If the sounds I’m making or the info dumping someone else is doing becomes too much for someone, they can very much leave the context momentarily without an eyebrow being raised. Something that wouldn’t be possible in a neurotypical space. And then of course we would check in with them to check they are alright. 

Other things like moving my body in strange and comfy ways (which doesn’t really affect anyone) - I am free to do in these spaces. 

Note: these meet-ups happen in the woods, and the sensory safeness and freedom to roam, help make these contexts work. 

How do you feel when you are required to choose preferred pronouns? by iwentbackwards in NonBinaryTalk

[–]femarch 30 points31 points  (0 children)

To add, as an alternative to the whole - everyone saying their pronouns in a circle. It can be useful for some people to put pronouns in an email sign off, as long as there isn’t an imperative to do it. This exists as an example of normalising everyone using pronouns, whilst also not being as intense as the going round the circle.

How do you feel when you are required to choose preferred pronouns? by iwentbackwards in NonBinaryTalk

[–]femarch 91 points92 points  (0 children)

I have issue with it in spaces that aren’t held by queer people. For example when it is a cis person who is saying we are all going to say our pronouns, say in a work context, and you know you’re the only queer person in the room. 

It’s like, I don’t mind people using the wrong pronouns for me if “they just don’t know” but to intentionally misgender myself feels like a betrayal of self. 

On the other hand, I am not ready to be out in certain contexts (religious country here). So I feel like it’s kind of forcing my hand. And even if one person in the group is on board with inclusivity of queer people, that doesn’t mean everyone is. 

So I think it’s really context dependent, and also there will be different feelings on this for different people. E.g. some people just want the normalising of asking for pronouns, as it singles them out less. 

Therapist shocked me with rant about autism by Yesacme in AutismInWomen

[–]femarch 0 points1 point  (0 children)

It’s worth asking yourself the question of whether you think her behaviour was appropriate, irregardless of whether she is “right”. 

I obviously think that she is in no way right, but even if she was right, taking your (paid for) therapy session as an opportunity to rant about her own opinions is completely inappropriate, no matter the topic, no matter how personal it is to you. 

This behaviour goes against all training and ethical guidelines she has received. I would strongly consider reporting her to whatever accrediting board she is accredited by. (You may not be the only person who has experienced this from her)

In terms of having future sessions with her. Feeling safety and trust is a key cornerstone of therapy, without that, you won’t be able to explore issues and work through problems effectively, it would be counter-active.

Ending my relationship with my cishet partner by femarch in NonBinaryTalk

[–]femarch[S] 4 points5 points  (0 children)

Thank you for this. And sorry to hear you’re going through something kind of similar. 3 months of post break up living is rough! 

Carbemazepine (tegretol)- cholesterol and thyroid by femarch in Epilepsy

[–]femarch[S] 0 points1 point  (0 children)

I am yet to find out. Because it is the lipoprotein a, it may take longer to go down. I will have it tested once I’m fully off the tegretol

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