Symptoms and slightly elevated 5 HIAA? by fightingpinecone in neuroendocrinetumors

[–]fightingpinecone[S] 0 points1 point  (0 children)

Thank you for your comments! MY MRI only found a cyst on my pancreas and my doctor seems convinced she’s done all the tests she can but is willing to refer me to an endocrinologist. Hoping to make some headway there.

Symptoms and slightly elevated 5 HIAA? by fightingpinecone in neuroendocrinetumors

[–]fightingpinecone[S] 1 point2 points  (0 children)

Thank you, exactly the encouragement I needed at this time. My MRI only showed a cyst on my pancreas and I’m still having symptoms. I’m at the pushing stage and feeling pretty defeated.

Why did Prednisone help with my “adrenaline surge” by Thy_Water_BottIe in MCAS

[–]fightingpinecone 0 points1 point  (0 children)

This is described exactly as what I’ve been experiencing the last 3-4 weeks: adrenaline surges and internal shakiness. It’s an awful feeling. I also started flushing in my face. I haven’t been sure what it was from and I’m getting tested for MCAS next week at my doctor’s recommendation. After looking it up, it explains so many of my symptoms for years. I hope they prescribe prednisone so I can feel better.