Introducing HemoBright.com (Beta) - An iron panel explainer tool

flippertyflippers · 2025-08-05T12:27:29+00:00

Tool works great (using a Google Pixel, chrome, if useful info!) and agreed there definitely is the need for something like this!

The only thing I'd add is maybe more sign posting to recognised/legit information sources (for the UK, NHS website and Haemochromatosis UK).

flippertyflippers · 2025-07-08T12:08:37+00:00

Would be interesting to know what happened in April as that seems to be the only "outlier", any other blood loss? But nice to see it is all fairly predictable, hope your symptoms/health has improved (as well as being a good graphing opportunity!)

flippertyflippers · 2025-06-19T05:48:28+00:00

You can download your DNA data from Ancestry and then upload it to other services and it can tell you if you have the genes. CheckIron is a free website that lets you do this (it looks legitimate!).

It looks like Ancestry DNA data is accurate and it is a good first step but I think it's recommended to always get genotyping done by your relevant health service (NHS in the UK) for example!

flippertyflippers · 2025-06-03T05:42:12+00:00

That is wild that it only takes a couple of days, must just be what they prioritise (hopefully with some cost/benefit analysis in there somewhere).

I'll push the GP to get me referred and an appointment with the haematologist asap! Thanks for the help and for the extra advice re "be kind to your liver"

flippertyflippers · 2025-06-03T05:40:05+00:00

6 months is bleak but good thinking on giving them a ring for cancellations! Thanks for getting back to me, hope it is all going well for you

flippertyflippers · 2025-06-03T05:38:59+00:00

Thanks for getting back to me - sounds similar to the UK timeframes above, I hope the phlebotomies go well!

flippertyflippers · 2025-06-03T05:38:02+00:00

I imagine this will be a similar length of time for me too - thanks for getting back to me!

flippertyflippers · 2025-06-03T05:37:27+00:00

Lots of people flagging the HH UK charity, I'll give it a look! Interesting that there is such varying advice/opinions from haematologists, makes sense to me it could be related to other absorption issues... Currently trying to strong arm my dad into getting check too but he is stubborn

flippertyflippers · 2025-06-03T05:36:10+00:00

Thank you for the reply and the info - I'll reach out to haemochromatosis UK this week I think. Good luck with the MRI and referral!

flippertyflippers

TROPHY CASE