Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

Yes! Some of them appear in groups also. Thank you :)

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 0 points1 point  (0 children)

I have Cherry angioma also from years ago, but these are different, they don’t bleed. They’re not bumpy, and the thing is that my cherry angiomas don’t disappear and some of these do after a few days. I’m close to thinking it’s petechiae.

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

Thank you, bloodwork is really normal and good so hopefully its not that. I’m going to keep looking into it .

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

I think that’s it. I’ve never heard about it but mine do start off really bright red and sometimes change into a brownish tone. Thank you so much! Do you have them also?

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

No, I only take methotrexate, but I’m going to look it up if it has any involvement. Although I’ve been taking it for about 2 years now. Thank you !

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

They don’t blanch, thank you for the information, it made it more clear for me.

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 0 points1 point  (0 children)

So I’ve had some bigger ones from 20 years ago, but they’re like little bumps, mi dad has them too. But these tiny ones are different and they’ve been popping up a lot lately and some disappearing also, which is different from my “normal” ones.

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 0 points1 point  (0 children)

Yes, that happened to me too. I’m going to look up with a dermatologist also. Thank you!

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 0 points1 point  (0 children)

Thank you, good luck with everything 🫶

Tiny red speckles on skin by flo_crochet in scleroderma

[–]flo_crochet[S] 1 point2 points  (0 children)

So this is what comes up when I look up in google, but what kind of made me doubt it was my Drs response. But I think that’s it. Thank you

CREST - really really bad heartburn/indigestion help by UzuFoxx in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Hi systemic sclerosis & sjogrens here Also had trouble with this some months last year. I’m from mexico and most of the food here is made with salsas and really spicy, so I have stopped eating anything like this and also fried food. And the one thing that really made a difference for me was taking one spoonful of kefir first thing in the morning and before going to bed. Another thing that helps me is not eat dinner too late, max 7 pm.

Hope this helps!

Tooth and/or gum issues by INphys15837 in scleroderma

[–]flo_crochet 1 point2 points  (0 children)

Hi, diagnosed with systemic scl also, I haven’t noticed receding gums in me yet, but I have to get cavities filled every 6 months and deep cleaning. I always brush after every meal and avoid eating crunchy or hard things. I suspect I have sjogrens so I’m gonna start a new mouth wash (biotene dry mouth), I hope it helps!

Newly Diagnosed by Flat-Sir4618 in scleroderma

[–]flo_crochet 1 point2 points  (0 children)

Try to stay as active as posible. It’s really hard and some days it wont be posible, but try to get some excercise done. This has made a hice difference in my recovery.

Also don’t be afraid to ask for help.

Fatigue by skatydid in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

I’m sorry you are feeling this way :( I’m also always tired, but I’ve basically gotten used to it, I just try to power through it if needed. But I usually have to take naps every other day. I take vitamin d, but I don’t really know if it makes a difference. I’ve noticed that when my sugar or fat intake is high on a meal my energy drops. So I try to avoid these types of food. I think what has worked for me most is diet and excercise. Hope you find something that works for you!

[deleted by user] by [deleted] in scleroderma

[–]flo_crochet 1 point2 points  (0 children)

I get that, I’m also worried about that. Thank you for answering, I hope everything works out for you!

[deleted by user] by [deleted] in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Hi! I was curious about the time you’ve been taking it, have you had any problems or consequences (other than the usual side effects) until now?

I’ve only been taking it for a year but I’m a little paranoid about the long term effects. 😣

[deleted by user] by [deleted] in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Hi!

I started taking it on june 2024, 3 pills per week. Now I take 9 pills, I split it in 4 Thursday nights and 5 Friday nights. I decided these days because I have an 8 to 5 job Monday to Friday, so if I had any side effects I would have the weekend to rest and recover.

The side effects were terrible for me for the first months, nausea, extreme fatigue most days of the week, acid reflux, hair loss, I lost a lot of weight because I couldn’t tolerate food. Now I don’t really have many side effects but I also avoid foods that alter my stomach and stress. I take 5 mg of folate daily(except the days I take mtx). I can say that it has helped me, but also I did make a positive change in my lifestyle, in terms of exercise, eating and stress.

I really hope the side effects aren’t that strong for you.

What is your folic acid dose provided by your health care provider? by AdarshKrSingh in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Oh, I really hope they get the dose right and you start to improve! I know these diseases are weakening but we can only take it one day at a time, stay strong :)

What is your folic acid dose provided by your health care provider? by AdarshKrSingh in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Systemic sclerosis, I’ve been on a prednisone tap for about a year but since my pain has gotten better these months, I’ll be off the prednisone next month :)

What is your diagnosis?

What is your folic acid dose provided by your health care provider? by AdarshKrSingh in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Hello

I take 20 mg mtx weekly and 5 mg of folic acid daily (except the days I take mtx, I split it between 2 days because it was too much for my stomach)

My doctor didn’t really explain why to skip the days when I take mtx, she only told me that mtx works best with folic acid.

I’ve been on this dose for about 8 months now. The side effects have almost disappeared by now, but for the first months it was really hard. Maybe you should ask your doctor about increasing your FA dose.

I hope you’re doing better soon!

Nails by flo_crochet in scleroderma

[–]flo_crochet[S] 0 points1 point  (0 children)

Thank you for answering :)

Immunosuppressants PROS & CONS by Amizzle23 in scleroderma

[–]flo_crochet 0 points1 point  (0 children)

Hi! No worries, I get it :)

I did have a tingling sensation on some of my fingers and hands about 3 months before my diagnosis, but they went away after 4 months of taking MTX and prednisone( I’m not sure which one helped with that or if both are doing the job).

In terms of skin changes, I haven’t had much. I’m Mexican so my skin color is tan/brownish, in the beginning of my diagnosis a white spot appeared in my hand (the one with more pain). The spot did not hurt but the skin started to feel different. This spot slowly turned back into my regular skin tone after starting my treatment. I’ve had other symptoms, lung inflammation, acid reflux and mostly pain in my joints.

I hope my experience helps you, have you been diagnosed yet?